Personal experiences of Dupuytren's contracture and Ledderhose disease

 

While we describe on our web site several medical therapies and some of the background of Dupuytren's contracture and of Ledderhose disease, we believe it is equally important and helpful for patients to see how their fellow patients get along with this disease and what they experience with treatments of Dupuytren's contracture or Ledderhose disease. Some of this can be found in our forum but it's in bits and pieces, and often hidden below other comments.

Here are some real life stories, not systematically collected but added as they come in. If you yourself have a story to tell, please send it to us and it might be included on this page as well.

Experiences with Radiotherapy:

Judith : Radiation therapy for Dupuytren’s Contracture in the UK

Nigel: Radiation therapy in Essen, Germany (last update: August 2008, now covering about 3 years)

Philip: long term experience (>9 years) with radiotherapy

Experiences with needle fasciotomy (NA):

Ron's experience with NA (short but also with a personal touch):

"From what I'd read, Charlie Eaton (that's how he introduces himself) is the go-to guy. So my wife and I took a mini-vacation in Jupiter--arriving two days before the procedure. Among other things, like kayaking down the Loxahatchee River, we found an amazing funky seafood restaurant called Little Moir's Food Shack.

As for the procedure itself, here's my hand about one hour after Dr. Eaton finished.  You can see three little band-aids."

 

Richard's search for the right doctor

Page last modified: 09/06/2008