| Forum » Dupuytren » New to DC |
 1 2
|
|
Answer
|
 
|
02/09/08 23:00
Roannsh 
|
New to DC
I was diagnosed with DC about this time last week..
I had no idea what it meant nor what it was.. My
doctor said I needed surgery and to cut back on
my drinking ?? She showed me a few pictures and
off I go.. well I have since found Doctor Terrence
Barry in Florida who found for me the only Doctor
in Canada who does NA.. which is the way I feel
I will go at this time.. But most important I found
this forum ..
I am in the beginning stages and I see now it
is straying to my baby finger.. I am getting all
my ducks in a row for the future .. I would not be
doing any of this except for reading your own
private histories.. I guess I want to say Thank You
to this Forum and to you all for the information you
have provided.. I will stay in touch with my own
personal history as it unfolds..
Sincerely
Oh I forgot to Thank Newman ..
Thank You
|
02/15/08 00:13
Roannsh
|
Re: New to DC
Well I have a consultation for March 4th.. my
GP sent me to a plastic surgeon who does not
do Needle release from the info I got on her
online. Has anyone gone to a surgeon and
said the want NA instead of OS.. I'm very
nervous about the reaction I may get..
What with EGOS etc.. I have the early stages
of Dupuytrens in my right hand and another small
nodule showed up about 3 mths ago in my left
hand.. I have all the info on the Dr I want to
see but will need to be refered I hope she refers
me to him.. Is there a proper way I should Go about
asking for a referal .. To me it's a no brainer to have
NA but this Surgical Clinic does not practise it..
My head is kind of spinning...
|
02/15/08 18:16
Mike S
not registered
|
Re: New to DC
Well, I too (initially) went to a local (highly regarded) hand specialist/surgeon, for the purpose of confirming my self-diagnosis (DC). He confirmed the condition and recommended open surgery. Relative to NA, he was fairly dismissive saying you can go that route if you want to but it's not sometning that he woud ever consider doing.
PS: I had NA done by a doctor sourced from the predecessor to this Board and am extremely satisfied with the results. Good luck!
|
02/16/08 00:15
Roannsh
|
Re: New to DC
Quote:
Well, I too (initially) went to a local (highly regarded) hand specialist/surgeon, for the purpose of confirming my self-diagnosis (DC). He confirmed the condition and recommended open surgery. Relative to NA, he was fairly dismissive saying you can go that route if you want to but it's not sometning that he woud ever consider doing.
PS: I had NA done by a doctor sourced from the predecessor to this Board and am extremely satisfied with the results. Good luck!
Thank you Mike your experience helps me organize
my thoughts 
I'm thinking I'll contact the surgeon I INtend to see,
explaining my situation.. My assigned surgeon is highly
qualified with Dupuytren's surgeory .. I'm sure they're
aware of each other. I live in Canada and there are not
very many NA surgeons. I'll do this if she gives me the
same dismissive attiude you unfortunately received.
|
02/16/08 04:44
newman 
|
Re: New to DC
Australia Calling . Hi Roannsh.
Rember Dupuytrens is a slow growing disease ,which can become dormant , it can be aggressive or mild, so dont panic. Look at Radiotherapy . I have no experience with NA but it appears that patients have a severe contraction ,when the have this done. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.
Be well informed before going to the medicos. You call the shots and tell your general practioner who you want to be referred to . Don"t be afraid to ask the specialist how may patient they have seen with MD. Download the infor from Seegenschmiedt from the Dup/Society web page and send it off with photos to your specialist before you have your appointment. This alows more time at your consultation. Regards from down under
|
02/16/08 18:54
Roannsh
|
Re: New to DC
Thank you for your time Newman..
I am in the process of either faxing or Emailing
the litriture I have on NA and Raditheraphy..
Botton line will be whats best in my case regarding
recovery and the over all benifits of the process I end
up going with.. I feel more empowered as I read these
posts.. So thank you both for your time 
|
02/19/08 02:15
gavinp
not registered
|
Re: New to DC
Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.
Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.
Regards Gavinp
|
02/19/08 09:02
TrevB
|
Re: New to DC
Quote:
Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.
Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.
Regards Gavinp
see this http://www.dupuytren-online.info/Forum_E...ma=196&page=1#0
|
02/21/08 22:11
Roannsh
|
Re: New to DC
Well I went to my GP to cancel my first consultation..
I want to start with Dr Binhammer.. she asked if she
could keep the literature I brought along about NA..
Hopefully her next patient with DC will get a better
education of the options now available in Canada
than I did.. small steps .. anyway Now I feel relieved
and await my appointment ..
|
02/22/08 05:22
newman
|
Re: New to DC
Quote:
Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.
Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.
Regards Gavinp
Adeliade Calling-Australia.
I was treated in Essen Germany. However since my return I have spoken with Dr.Martin BORG
at Adelaide Radiotherapy.He has used the treatment used by Prof Seegenschmiedt Germany, and can offer the treatment here. I am hoping he will list on the Dup/Soc. web.He is waiting on the Medicare Item Nos. for treatment of MD & ML.
How about becoming a Registered Member on the forum and you can have direct contact with a member. Regards.
Edited at 22.02.08 05:27
|
|
Answer
|
1 2
|
Login
1 user(s) online
Login