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09/01/10 16:25
polo 
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Re: 'Causes'
wach:
I mailed the password for user polo to the email address stored for polo. Please check your mail, including spam.
I'm in, thanks!
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09/02/10 16:27
PhilipHa1 
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Vitamin E and other peoples experience
wach:
Philip,
RT isn't preventive, is only good for treating already existing Dupuytren's sites. If you are susceptible for Dupuytren's disease it can start new anywhere at any time and RT can't prevent this. That's actually one of the reasons why you shouldn't radiate areas with no Dupuytren's: you might need to radiate that sometimes later.
Trauma: I had very aggressive growth of new Dupuytren's nodules after Dupuytren's surgery and those new nodules appeared outside the operated area, i.e. it was not recurrence after surgery but extension of the disease and it started within about 4-6 weeks. I also experienced mild activation of my Dupuytren's after a thyroid surgery.
Vitamin E: there is little to no evidence that Vitamin E helps against Dupuytren's. Some time ago it was believed it does but that's no longer so. You might also have a look at http://www.dupuytren-online.info/dupuytren_anecdotal.html.
Wolfgang
PhilipHa1:
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In addition, despite having successful RT treatment 10 years ago I occasionally get symptoms of active DD - aching and itchy hands and feet. These appear to correlate strongly with injuries elsewhere, most commonly pain from my knees (torn menisci) i.e. as a result of causing damage to my knees, something in my body triggers a mending process which as a side effect triggers the symptoms of active DD. ...
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I would be interested if any other forum readers have had experience with trauma elsewhere in their bodies triggering DD ‘activity’ (the itchy/creeping/aching) in hands or feet?
As an aside I have been using Vitamin E tablets (800 ui/day) to suppress the DD symptoms when they are triggered - I was recommended taking Vitamin E for 3 months following RT treatment in Munich. I think the theory is that Vitamin E’s antioxidant properties suppress free radicals and thus suppress DD activity. I am aware that although this has been discussed scientifically nothing has been proven. I would be interested if my personal experience strikes a resonance with anyone else on the forum?
Wolfgang,
I am not convinced by the papers you referenced on the website, they appear contradictory. The King paper is very old, possibly uses impure forms of vitamin E and reports side effects not reported in the other 2 papers. The other 2 papers disagree over side effects, particularly mortaility. Clearly my personal experience, a sample of 1 person is not conclusive either!
The point I was trying to make is that I feel vitamin E may for me reduce the itchy/creeping feeling associated with active DD, and wondered whether anyone else had the same experience? Fortunately or unfortunately I have had only a handful of experiences of 'active DD' since having RT 10 years ago, so I cannot prove that taking Vitamin E caused the symptoms to stop. I am also not expressing the opinion that Vitamin E stops progression, just alleviates some of the symptoms (itchy/creeping feeling). I don't take vitamins normally and stop taking vitamin E once the symptoms disappear.
In addition, like 'stillcantgegister' I was also interested in anyone else who had experienced trauma elsewhere in their bodies triggering DD activity? So little of these 'experiences' are reported scientifically, I can understand that someone's 'feelings' doesn't make good science, but find this forum very useful in understanding other patients experiences.
Philip
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09/02/10 19:45
LubaM. 
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Re: 'Causes'
[
In addition, like 'stillcantgegister' I was also interested in anyone else who had experienced trauma elsewhere in their bodies triggering DD activity? So little of these 'experiences' are reported scientifically, I can understand that someone's 'feelings' doesn't make good science, but find this forum very useful in understanding other patients experiences.
Philip
Re: Trauma triggering DD activity....
Interesting point. It is so hard for me to try to recall the sequence of events of the various trauma experiences I've had in the past ten years or so....I wish I had kept a calendar of events but back then I didn't know that I would be an active "posting" member of this forum needing dates to compare my experiences with those of others.
I know for a fact that my DD started about ten years ago (maybe 1998...give or take a few years? truly don't remember). It began (after I had a bad fall on my right hand and a broken finger) with nodules in my right palm and small finger began to contract at PIP joint. Several hand surgeons told me to wait until the contracture is severe to do surgery...they were all totally against other procedures (RT and NA)...I wish I had done something sooner.
First NA on right small finger in July 2006...Miniscus repair on right knee Nov. 2008...Shoulder rotator cuff surgery April 2009....RT for "other" hand and foot (for my LD) Nov. 2009....and repeat NA on same right small finger March 2010.
So in answer to your question, Philip, have the traumas (knee and shoulder surgeries) elsewhere in my body triggered DD activity? who knows...I say probably. I wish we (the patients on this forum) could get all our information together and compare notes in an easy manner.
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09/03/10 12:48
wach  Administrator
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Vitamin E
Philip, if you don't believe it it's difficult to argue ... the JAMA paper is fairly recent and a generally accepted review of the literature. It addresses a variety of antioxidants, therefore it might differ from the other paper. It concludes "Treatment with ... vitamin E may increase mortality". If the effect of Vitamin E is not proven and the mortality increase is not very low I would personally be reluctant to take it over a long period of time.
Wolfgang
Edited 09/03/10 12:49
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