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4 years since diagnosed, and the progression
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04/25/2016 13:02
Metzie 
04/25/2016 13:02
Metzie 
4 years since diagnosed, and the progression

Hello,
I am a 45 year old Male, and It has been 4 years since I developed DC Disease. I have had 2 surgeries thus far. The last was to remove a knucklepad on my pinky finger on the left hand. The Disease for me is progressing rather quickly, and I have been noticing changes often. I experience severe pain in my hands at night, and have to sleep with a hand brace to relieve the pain. I have heard that this Disease is painless, however, for me, that is false. I suffer with pain in my hands often, but it is much worse at night before bed. Does anyone else experience this too?
Thank you, and best wishes to all who are here, suffering with this Disease.
-Metzie

04/25/2016 13:32
spanishbuddha 

Administrator

04/25/2016 13:32
spanishbuddha 

Administrator

Re: 4 years since diagnosed, and the progression

Lots of people report various types of pain with DD. Usually during the active progression phase. Mine is mostly painless, but I had a sore or tender nodule appear quite recently; sore to touch and hold things in the palm. It's no longer sore so not sure what's going on, hopefully it's going or gone dormant. Maybe yours is ongoing, sounds like it. Have you tried RT?

04/25/2016 18:31
meunier 
04/25/2016 18:31
meunier 
Re: 4 years since diagnosed, and the progression

Hi Metzie,

I can't speak for the RT as I temporarily cancelled my RT appointment due to the success (at least in my case) of the specialized DD massage therapy of Stephen Jeffrey (based here in the UK). It's been a month now and all aspects of my DD have now regressed if not disappeared completely. I am right pleased.

I would highly recommend at least trying this kind of regime, one with much fewer potential side effects. I know you are US based, but Stephen is more than happy to share his protocol with a skilled massage therapist who may be close to you.

Cheers,

Meunier

Edited 04/25/16 21:32

04/25/2016 21:46
dpjcrfsh 
04/25/2016 21:46
dpjcrfsh 
Re: 4 years since diagnosed, and the progression

My opinion is that the surgery to have knuckle pads removed is to be avoided. Any trauma can activate Dupuytren's and any surgery is trauma. From what I gather knuckle pads are annoying but livable, so surgery is unnecessary. No?

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