Hi,
I am Mathieu, male, 33 years old, living in Spain.
Since my 25 y.o. I am suffering from Dupuytren's disease. It is considered as a severe one. I have both palmar and digital affections. Already 9 fingers are affected (3 strongly + 6 slightly including phalanx). I had already 4 hand operations with already recurrence after 1 year. The disease has been strongly accelerating for the last 2 years.
Appart from this, a few months ago, I have been given a diagnostic of Ledderhose nodule starting on left foot.

I have a double hereditary Dupuytren source: my dad is affected since his 60 y.o. + his brother at 50 + one brother of my mother at 60. No heredity for Ledderhose.

The reason why I contact you is because I am very worried about the coming evolution and I am looking for any alternative treatment (not only surgery) which could slower the disease progression.
I would like to contact the most updated doctor(s) in this specialty in Europe so I could experiment the latest medicine (or other) improvement for this disease.
I guess that being young and with an aggressive Dupuytren, I could be an "interesting" patient for specialists in terms of research, analysis... I am voluntary and willing to get deeply involved into this topic.

I hope you could help me in this request.
Looking forward to reading you.

Best regards,
Mathieu

jasmine78:

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Hi Mathieu,

there is a plastic surgeon in... Australia, dr David Chin who just developped a new technique to treat dupuytren. It appears he is the only one with this new technique. Its non-surgical. It may be worth contacting his center for further information. From I have know, the technique can be used at nodular,cord and contracture stages.

http://advancedplasticsurgery.com.au/han...ns-contracture/

good luck
jasmine

pia2some:

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jasmine78:

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Hi Mathieu,

there is a plastic surgeon in... Australia, dr David Chin who just developped a new technique to treat dupuytren. It appears he is the only one with this new technique. Its non-surgical. It may be worth contacting his center for further information. From I have know, the technique can be used at nodular,cord and contracture stages.

http://advancedplasticsurgery.com.au/han...ns-contracture/

good luck
jasmine

What is the technique? I don't see anything on his website that states what the injection is.

~ dawn

Mathieu, you probably have more experience than most of us, despite your youth.

My brother had hand surgery in his 40's, and he'll need it again now in his 60's. After the first surgery, he was told that the scar tissues will make the next surgery more difficult.

Scar tissue is something to be mindful of, especially for a young person. I think it's good to try to plan so that you don't need more than two or three surgeries in the same place over your lifetime.

For a young person, it seems to me that it would be best to use RT and NA when it is suitable and try to postpone scar-inducing surgery. Ultimately, when surgery is unavoidable, I would seek a surgeon who is (1) minimally invasive to minimize the scar tissue and (2) young enough that he/she will be available to do the next surgery, even if it is 20 years later. The reason I mention the 2nd point is that I was told by one hand surgeon that if there is scar tissue from a previous hand surgery, he would prefer that it is from his own work so that he will have a record with notes on the procedure that was done in the previous surgery.

Edited 09/26/13 19:17

spanishbuddha:

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jasmine78:

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hi again, the treatment is not Xiaflex, it is another injection, new. The procedure can be done in 2 steps. Injection and the ''stripping'', but there is not much more I know. I contacted the center in Australia, and since the invention is still not patented yet, not much information can be given by the staff. I have come to this invention in my search for dupuytren new treatment this summer, still not knowing for sure if I have dupuytrens or not in 8 fingers (now believed to be arthritis and debuting a treatment).
jasmine

OK thanks. If it is going to follow conventional pathways to being available it is a few years away yet. Peer reviews, clinical trials, etc.