Hi there,

and thanks for this Forum.

I have this DP mainly in my right hand, but also left hand is affected. Very strange as I am a woman, no one in previous generations did have it as far as we know, no other signs except a trauma on my right hand in 2012 (first noodle 6 months later). It started to be very aggressive June 2015. I had radiation on my right hand 4 weeks ago in August, but it seems to me that now, 4 weeks later, it is very active in both thumbs (although diagnosed with DD, thumbs were not radiated). They are hurting quite a lot.

It makes me very sad to feel kind of a loss of strength, pain and tension in my hands. I am still at level N (left hand) and N/I (right, pinky affected in less then 4 weeks...), but reading and seeing what future might bring breaks my heart. Also, I do not have any good doctors nearby, I always will have to travel to France or Germany in order to get some minimal-invasive treatments like NA.

As I am an artist, I wonder if there are any other artists here to tell me if you stopped working. I do not dare to use any pincers or scissors right now, even opening a bottle of colours is hurting and stressing.

I feel like being very punished by nature and do not know how to go on without arts and creation or hands even in daily life.

So my questions are:
1) Did anybody stop working in general because of having DD?
2) Did anybody have to give up arts and crafting?
3) Which activities should be avoided in order to not trigger too much this situation?

And
4) Is it normal that DD just moves to another area after radiation? Or was it an error to not radiate also thumbs? (I asked but was told that they still have enough flexibility... now I wonder how long...). I should have the second radiation in November.

Thanks, all the best
Dalila

Edited 09/01/15 11:06

Dalila:

---

Hi there,

and thanks for this Forum.

I have this DP mainly in my right hand, but also left hand is affected. Very strange as I am a woman, no one in previous generations did have it as far as we know, no other signs except a trauma on my right hand in 2012 (first noodle 6 months later). It started to be very aggressive June 2015. I had radiation on my right hand 4 weeks ago in August, but it seems to me that now, 4 weeks later, it is very active in both thumbs (although diagnosed with DD, thumbs were not radiated). They are hurting quite a lot.

It makes me very sad to feel kind of a loss of strength, pain and tension in my hands. I am still at level N (left hand) and N/I (right, pinky affected in less then 4 weeks...), but reading and seeing what future might bring breaks my heart. Also, I do not have any good doctors nearby, I always will have to travel to France or Germany in order to get some minimal-invasive treatments like NA.

As I am an artist, I wonder if there are any other artists here to tell me if you stopped working. I do not dare to use any pincers or scissors right now, even opening a bottle of colours is hurting and stressing.

I feel like being very punished by nature and do not know how to go on without arts and creation or hands even in daily life.

So my questions are:
1) Did anybody stop working in general because of having DD?
2) Did anybody have to give up arts and crafting?
3) Which activities should be avoided in order to not trigger too much this situation?

And
4) Is it normal that DD just moves to another area after radiation? Or was it an error to not radiate also thumbs? (I asked but was told that they still have enough flexibility... now I wonder how long...). I should have the second radiation in November.

Thanks, all the best
Dalila