| Lost password
452 users onlineYou are not loggend in.  Login
Any success with RT retreatment?
 1 2 3
 1 2 3
05/09/2013 03:03
flojo 
05/09/2013 03:03
flojo 
Re: Any success with RT retreatment?

RT was successful for me. I agree with the others who said there is a slim to none increased chance of getting cancer from the radiation.

The dosage used on my right hand that was done first was a total of 20 Gy and on my left hand 21 Gy. It worked and I'd do it again with the smaller dosage. Less is better if it works and both worked for me.

05/09/2013 06:39
spanishbuddha 

Administrator

05/09/2013 06:39
spanishbuddha 

Administrator

Re: Any success with RT retreatment?

lori:
My doctor said he was/is willing to retreat my hand with RT if nodules reappear in the treated area.
I know that I would retreat the area and take the chance rather than let contracture occur.


Lori
As I have stated elsewhere ProfS in Germany advised me that one half dose of the treatment was possible (5 x 3Gy) on a previously irradiated area, in specific circumstances. Let's be clear, most if not all radiologists treating DD are using the study and work of ProfS as their basis for treatment.

I have continuing DD activity in my RT treated hand. I ask myself, if it didn't work the first time, why is it going to work with a repeated half dose? Maybe it will, maybe it won't.

Sadly my untreated hand now has active DD, and I ask myself in a similar way, is RT is an effective treatment for me?

05/09/2013 18:30
lori 
05/09/2013 18:30
lori 
Re: Any success with RT retreatment?

My doctor follows Prof. S. protocols, that is why he said he would be willing to retreat the area should the need arise. He also said he would only do the reduced doseage. Sorry if their was a misunderstanding.

Lori

05/09/2013 19:48
JohnG 
05/09/2013 19:48
JohnG 
Re: Any success with RT retreatment?

Vikingorigins:
On the disclaimer form that i signed, the doctor added 0.5 - 1.0 % of cancer risk from RT in 30 years. No case of cancer occured in his practice.

It's interesting that you got something that specific written down on the disclaimer. On my disclaimer it just said there is risk of cancer but without quantifying it. The doctor did mention, without writing it down, that he thought the risk was some "tenths of a percent" for cancer and about the same for nerve damage.

05/09/2013 22:11
Vikingorigins 
05/09/2013 22:11
Vikingorigins 

Re: Any success with RT retreatment?

Yes , and if i recall correctly, i think the figures came from some data from RT treatment for cancer, hence, for higher doses. I am thankful for his transparency.

05/10/2013 01:18
stephenp 
05/10/2013 01:18
stephenp 
Re: Any success with RT retreatment?

Various studies estimate that there is about a 0.5% chance of cancer developing from radiotherapy treatment for cancer. Given that 1 person in 3 will develop cancer of some sort in their lives, the increase in risk is small.

The incidence is probably even lower as contemporary RT is much more focussed and targeted whereas the data is based on RT delivered some years ago.

05/14/2013 03:34
rah0902 
05/14/2013 03:34
rah0902 
Re: Any success with RT retreatment?

Hello,

I just found out that I have Dupuytren's Contracture. I also have arthritis, which I control very well with acupuncture. A physician friend told me to try Paba both topically and orally. He also recommended olive leaf extract appied 2-3x/day.

What is RT therapy, please


I'm pretty scared about this whole thing. I am a very young 64 year old woman. I go to Crossfit 3-4x/week, lift weights and make my living teaching online. Like anyone in this situation, I am afraid of losing the use of my hands.

I live in Oregon and heard about Dr. Kline in Portland. Does anyone have experience with his treatments?

Thank you so much.
RH

05/14/2013 03:56
switcombe 
05/14/2013 03:56
switcombe 
Re: Any success with RT retreatment?

RH, I saw Dr. Kline for my Dupuytren's about one year ago. He recommended RT (radiation treatments) in my case. I am glad that I followed his advice. It greatly slowed the progression of my disease and I have no contracture at this point.

05/14/2013 04:28
Seph 
05/14/2013 04:28
Seph 

Re: Any success with RT retreatment?

rah0902:
Hello,

I just found out that I have Dupuytren's Contracture. I also have arthritis, which I control very well with acupuncture. A physician friend told me to try Paba both topically and orally. He also recommended olive leaf extract appied 2-3x/day.

What is RT therapy, please


I'm pretty scared about this whole thing. I am a very young 64 year old woman. I go to Crossfit 3-4x/week, lift weights and make my living teaching online. Like anyone in this situation, I am afraid of losing the use of my hands.

I live in Oregon and heard about Dr. Kline in Portland. Does anyone have experience with his treatments?

Thank you so much.
RH

RH; My suggestion is that you don't rush into anything with your Dupuytrens. I have had it for more than 40 years and it hasn't stopped me doing anything that I have wanted to do. You haven't told us what condition your hands are in. Do you have contraction in more than one finger and how quickly has it developed.

Read around this web site and you will see that for many people the growth is slow and often only one finger in one hand. It may be that you best option is to ignore it and get on with whatever you have been doing in the past.

05/14/2013 06:41
spanishbuddha 

Administrator

05/14/2013 06:41
spanishbuddha 

Administrator

Re: Any success with RT retreatment?

rah0902:
Hello,

I just found out that I have Dupuytren's Contracture. I also have arthritis, which I control very well with acupuncture. A physician friend told me to try Paba both topically and orally. He also recommended olive leaf extract appied 2-3x/day.

What is RT therapy, please


I'm pretty scared about this whole thing. I am a very young 64 year old woman. I go to Crossfit 3-4x/week, lift weights and make my living teaching online. Like anyone in this situation, I am afraid of losing the use of my hands.

I live in Oregon and heard about Dr. Kline in Portland. Does anyone have experience with his treatments?

Thank you so much.
RH
Welcome to the forum. See on this website at top of page the options under 'Treatment'. We refer to Radiotherapy as RT. But as already stated since DD (Dupuytren's disease) often develops slowly and for many does not lead to contracture, the first thing to do would be to photograph, monitor and record your hands on a regular, monthly, basis, so you have objective data about progression. Protect your hands from undue pressure when handling or gripping, use gloves and not just for cold. Study the treatment options, risk factors, make lifestyle changes if they affect you, and plan ahead any treatment should your hands condition develop further or faster.

 1 2 3
 1 2 3
retreatment   Vikingorigins   Seegenschmidt   experience   Cambidgeshire   treatment   Unfortunately   progression   circumstances   dupuytren-online   success   treatments   Dupuytren   controversial   radiation   misunderstanding   radiotherapy   contracture   recommended   condition