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Dupuytrens RT in the USA
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02/20/2011 01:29
David26

not registered

02/20/2011 01:29
David26

not registered

Re: Dupuytrens RT in the USA

Lauri, yes both of those websites had several sentences about RT as a treatment option for Dupuytren's. I would guess the medical societies would have more input with those web sites than insurance. I don't think the ASSH is a proponent of RT.

http://www.assh.org/Public/HandCondition...ensDisease.aspx

02/20/2011 23:17
Larry 
02/20/2011 23:17
Larry 
Re: Dupuytrens RT in the USA

David26:
Lauri, yes both of those websites had several sentences about RT as a treatment option for Dupuytren's. I would guess the medical societies would have more input with those web sites than insurance. I don't think the ASSH is a proponent of RT.

http://www.assh.org/Public/HandCondition...ensDisease.aspx

They do not even mention radiotherapy for early stage disease, but show ugly advanced stages od Dupuytren's Disease


A recent citation from them was: ...

Radiotherapy has been used to prevent disease progression in the early stages of Dupuytren’s contracture. However, both acute toxicity and chronic side effects were observed, such as redness or dryness of the skin, extensive erythema, moist desquamation, swelling, and an alteration in heat and pain sensation. Among hand surgeons, prophylactic radiotherapy is not supported; surgery performed after radiotherapy is unduly complicated.

This sounds awful, but does not match with the many experiences treated patients have made and in the long-term studies from Germany these findings are not confirmed ...

02/20/2011 23:57
lauriw 
02/20/2011 23:57
lauriw 
Re: Dupuytrens RT in the USA

The hand surgeons do not want RT on their turf. It's really all pretty sick, their wanting to protect their $$$. They don't even tell you about RT, just told me, come back when your fingers curl. This website is so important to get the word out to people with DD. I am so grateful that I found you guys!!
LauriW

02/21/2011 04:14
LubaM. 
02/21/2011 04:14
LubaM. 
Re: Dupuytrens RT in the USA

lauriw:
The hand surgeons do not want RT on their turf. It's really all pretty sick, their wanting to protect their $$$. They don't even tell you about RT, just told me, come back when your fingers curl. This website is so important to get the word out to people with DD. I am so grateful that I found you guys!!
LauriW
I don't know if its about $$$, not wanting RT on their turf or whatever their reason...but it was exactly my experience.
I had four different surgeons telling me to come back when my finger was curled, and that surgery was my only option. They didn't recommend RT or not even NA for that matter...

I wish I had found this website sooner. I would have had NA or RT before my right hand small finger was contracted at the PIP joint to the point where two NA's have not helped....Luckily the RT on the left hand and foot has stopped the progression of the disease.

I'll be forever grateful to have found this forum.

02/24/2011 20:17
bstenman 
02/24/2011 20:17
bstenman 
Re: Dupuytrens RT in the USA

The comment about "within generally accepted standards of medical care in the community" is what I ran into when trying to get a US oncologist to initiate X-ray treatment on my hands. Procedures or medical care which is not an accepted standard puts the doctor at risk for a malpractice claim and if they lose their insurance they lose their ability to practice medicine. It took the American medical community more than a decade to accept the research from Australia that showed that bacteria was involved in many stomach ulcers and for doctors to start proscribing the necessary antibiotics.

Oncologists seem more fearful and it is great to hear that so many in different parts of the country many are now willing to take a chance and offer XRT to people. A lot of change in attitudes in only the past 4 years among the US medical community which is heartening. The presentation by Dr. Seegenschmiedt at the Annual Meeting of the American Society for Surgery a few years ago also probably helped to open doctors' minds regarding the value of XRT for Dupuytren's.

02/25/2011 19:14
lauriw 
02/25/2011 19:14
lauriw 
Re: Dupuytrens RT in the USA

Hi everyone! As I work on my appeal for RT from BCBS, I was wondering if anyone in the US has had their RT approved by insurance could let me know the state, the doctor and who their insurance carrier was, oh yea, and maybe the year. I have already heard from many of you, thank you for that. I think that this could be helpful not only for me but for others who will have the same problem that I am having. We cannot let the insurance carriers stop paying for this treatment! Should I start a new thread on this?
LauriW

02/25/2011 22:39
Sentinella 
02/25/2011 22:39
Sentinella 
Re: Dupuytrens RT in the USA

lauriw:
Hi everyone! As I work on my appeal for RT from BCBS, I was wondering if anyone in the US has had their RT approved by insurance could let me know the state, the doctor and who their insurance carrier was, oh yea, and maybe the year. I have already heard from many of you, thank you for that. I think that this could be helpful not only for me but for others who will have the same problem that I am having. We cannot let the insurance carriers stop paying for this treatment! Should I start a new thread on this?
LauriW
Mine was approved by Regence Blue Shield (Skagit County) Washington State. I had it done August - October of 2010.
North Puget Cancer Center: Muff Nicholas S MD
2000 Hospital Drive Sedro-Woolley, WA 98284-4327 - (360) 856-7588

02/25/2011 22:45
flojo 
02/25/2011 22:45
flojo 
Re: Dupuytrens RT in the USA

Sentinella,

Would you be willing to describe what you said and provided to build your appeal case? I would like to use your effective information to appeal to Medicare.

02/25/2011 22:50
Sentinella 
02/25/2011 22:50
Sentinella 
Re: Dupuytrens RT in the USA

Sounds a lot worse than it is. The pictures of the surgeries, and the horror stories from patients that have had surgery makes my stomach curl. I just had a few beers last night with a friend that's 10 years older than me. He started getting Dups and LH when he was a little younger than me. He has had surgery on both hands 3 time. His hands look like SH_ _. He needs to have surgery again. The doctors are talking about amputation of his pinkie finger. the arches in his feet each have a lump the size of an egg. I have no idea how he runs, let alone walks. Doctors should be forced to tell their patients all the options, not just the options that make them money. Anyone suffering should also research what they have and force the doctors to do the right thing or find another doctor. My doctor has learned not to argue with me, I always do my homework before I talk to him.
Terry

02/25/2011 22:54
Sentinella 
02/25/2011 22:54
Sentinella 
Re: Dupuytrens RT in the USA

flojo:
Sentinella,

Would you be willing to describe what you said and provided to build your appeal case? I would like to use your effective information to appeal to Medicare.

If you have facebook, friend me there and I'll give you my phone number. You can call me, that way you can explain exactly what you need from me. Yes I will help you out. I have before pictures on a ZIP drive I can send you and I can take pictures sometime in the next week. Does that work for you.

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