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Forum for Dupuytren's and Ledderhose 
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  • FIXXGLOVE
    • FIXXGLOVE
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    07/25/2016 17:52
    Emdoller 
    07/25/2016 17:52
    Emdoller      		Re: FIXXGLOVE

    Wolfgang,

    I just watched your video. Nice job. I thought I'd add my story and pictures as pictures say a 1000 words as they say.

    Lets start with my finger January of 2013. This is before my xiaflex injection:




    This is February 20, 2013 post Xiaflex:




    This is December 4, 2013 (10 months later - notice how contracted it is)





    Here it is January 1, 2014 after healing:



    Here it is October 28, 2014 (10 months later) It was so contracted, the skin split open during the NA procedure. Took months to heal::



    Here it is February 8, 2015 (4 months later - notice the time between procedures getting shorter)



    Here it is March 7, 2015 after last procedure. Notice it's still a bit contracted.



    Here it is today after wearing the FixxGlove. I can put my hand flat on a table and it's been 6 months!!!!





    Edited 07/25/16 20:53
    07/25/2016 18:05
    Stefan_K. 
    07/25/2016 18:05
    Stefan_K. 

    		Re: FIXXGLOVE

    Very impressive! Knock on wood that it stays like this. Do you see a difference between morning and evening, before you put the glove on again?

    Stef

    [54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
    07/25/2016 18:35
    Emdoller 
    07/25/2016 18:35
    Emdoller      		Re: FIXXGLOVE

    Hence my excitement about the glove. I do my best to wear the glove whenever I don't need my hand (eg, if I'm watching TV or driving). Sometimes I don't wear it at night but most I do. To answer your question, if I don't wear it I can feel it and or see it starting to contract. It's a tug of war and so far I'm winning. I plan on keeping this forum posted.

    Ed
    07/25/2016 19:36
    Stefan_K. 
    07/25/2016 19:36
    Stefan_K. 

    		Re: FIXXGLOVE

    Emdoller:
    Hence my excitement about the glove. I do my best to wear the glove whenever I don't need my hand (eg, if I'm watching TV or driving). Sometimes I don't wear it at night but most I do. To answer your question, if I don't wear it I can feel it and or see it starting to contract. It's a tug of war and so far I'm winning. I plan on keeping this forum posted.

    Ed
    Thanks Ed. Mine isn't as bad, I get away with the lighter, supple version I made myself and which doesn't disturb me at all although I am quite sensitive to anything that would restrain me during sleep. But I can also see the finger slightly bent in the evening and straight in the morning, and I wouldn't want to go two nights in a row without splinting. It's been 15 months for me, with RT during that period which seems to have helped, but as long as that cord is in there it will continue to try to pull.

    Stef

    [54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
    07/25/2016 20:54
    spanishbuddha 

    Administrator
    07/25/2016 20:54
    spanishbuddha 

    Administrator

    		 Re: FIXXGLOVE

    Emdoller

    Would you mind posting a photo of the actual glove you wear? I know about and have a Fixxglove, but don't use it as I do not have a contracture. But I am curious as to the degree of straightness or curve you have set the glove to.

    SB
    07/25/2016 21:11
    Emdoller 
    07/25/2016 21:11
    Emdoller      		Re: FIXXGLOVE

    spanishbuddha:
    Emdoller

    Would you mind posting a photo of the actual glove you wear? I know about and have a Fixxglove, but don't use it as I do not have a contracture. But I am curious as to the degree of straightness or curve you have set the glove to.

    SB

    Hi SB,

    I'm using the standard FixxGlove. See pictures. The metal insert is flat. I tried using it with the insert bent a few degrees to apply a bit more pressure and it made it uncomfortable to sleep so I put it back flat after a few nights of usage..

    Ed
    07/26/2016 06:17
    spanishbuddha 

    Administrator
    07/26/2016 06:17
    spanishbuddha 

    Administrator

    		 Re: FIXXGLOVE

    Emdoller:
    spanishbuddha:
    Emdoller

    Would you mind posting a photo of the actual glove you wear? I know about and have a Fixxglove, but don't use it as I do not have a contracture. But I am curious as to the degree of straightness or curve you have set the glove to.

    SB

    Hi SB,

    I'm using the standard FixxGlove. See pictures. The metal insert is flat. I tried using it with the insert bent a few degrees to apply a bit more pressure and it made it uncomfortable to sleep so I put it back flat after a few nights of usage..

    Ed
    OK thank you.
    02/24/2017 13:15
    Emdoller 
    02/24/2017 13:15
    Emdoller      		Re: FIXXGLOVE

    It's been 1 year since I started wearing the fixx glove and wanted to share that it is still working well. If you read my story you will see that prior to using the glove, I've had several NA procedures every 6 months.

    My finger is straight and I can lay my hand flat on a table. I'm sure if I stop wearing it I would need another NA procedure.

    I hope everyone reading this will try a splint. It has changed my life.

    Any debate over eether splinting works or not is complete garbage. I'm living proof it works.

    Please let me know if you have any questions.

    Ed
    02/24/2017 13:36
    Stefan_K. 
    02/24/2017 13:36
    Stefan_K. 

    		Re: FIXXGLOVE

    Emdoller:
    [...] Any debate over eether splinting works or not is complete garbage. I'm living proof it works.
    [...]
    As someone wearing a night splint myself with so far excellent results I share your satisfaction with the approach, but I wouldn't conclude from a sample size of 1, even when it is myself, for how many other Dupuytren sufferers it will work the same way, or if discussion makes sense or not. We try to be a bit more "scientific" here. To best way to reach a conclusion in this case, considering the low cost, risk and inconvenience involved, is to try and share results. The only risk I can see in debating one way or another would be to lose out on an opportunity to delay or prevent contracture by debating instead of trying.

    What I would actually like to see is patients wearing a glove as soon as they notice tension on a DD finger, before the first contracture occurs, and not after the first NA/PNF or surgical procedure, and report back. This may well be the best advice an informed doctor could give instead of watching the finger bend enough for NA/PNF, or worse: surgery.

    Stef

    [54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]

    Edited 02/24/17 15:37
    02/24/2017 13:58
    Emdoller 
    02/24/2017 13:58
    Emdoller      		Re: FIXXGLOVE

    Stef

    Couldn't agree more. The point is splinting should be tried simply because it's cheap, non-invasive, and has the potential to work. It works for me.

    I only wish I would have known about this option and potential prior to 1- xiaflex, 3-NA procedures, and several thousand dollars ago.

    I can only hope that this forum helps others understand this is an easy low cost option shown to work on me.

    Lastly, and to your point, the more people that try it the more data this forum will have to potentially help others.

    I hope I'm right.

    Ed
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