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I need help with complications after NA
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09/16/2013 16:21
BRIANB 
09/16/2013 16:21
BRIANB 
Re: I need help with complications after NA

Good grief ...with Doctor Eaton out of the picture ... I was considering Dr. Pess if and when I ever need NA again.
Guess I will be re-thinking that idea..

09/16/2013 21:33
LubaM. 
09/16/2013 21:33
LubaM. 
Re: I need help with complications after NA

moondanc:
Let me try asking a different question. I've never had instructions after NA to exercise, stetch and manipulate my hand so vigorously and I'm wondering if that could contribute top irritation of the nerves and/or numbness.

I know there are lots of folks here that have had NA with doctors other than Dr. Eaton. Have any of you had instructions to vigorously massage, stretch, smash and manipulate the same day as NA?
Diane,

I've had NA three times, with two different doctors, and I have never been told to "exercise, stretch, smash and manipulate" my hand vigorously immediately after NA. That does not make sense to me ! My NA's have been for the PIP joint of the small fingers (twice on RH and once on LH) and each time, I have had lots of swelling following NA's and it is very painful to the touch for as long as it is swollen. When I started therapy with an OT each of those times, it was always gentle stretching and massaging to begin with. My problem has been that both my pinkies have a "mind of their own" and very soon after the NA they start contracting again in spite of therapy, night splints and exercises, making it impossible to maintain the correction obtained during NA.

I am so sorry, Diane, that you had so many problems with your last intent for NA with Dr. Pess. I know how important this was and how much you were hoping for good results this time after all the problems you have had in the past with DD.

Hopefully all your symptoms will get better soon, please keep us posted. Best to you...
Luba

09/19/2013 00:53
moondanc 
09/19/2013 00:53
moondanc 
Re: I need help with complications after NA

BRIANB:
Good grief ...with Doctor Eaton out of the picture ... I was considering Dr. Pess if and when I ever need NA again.
Guess I will be re-thinking that idea..

This is a general response not specific to Dr. Pess. Regretably, I don't think those of us who were fortunate enough to be patients of Dr. Eaton will ever find a surgeon with the skils and who took the time and had the patience of Dr. Eaton (I would LOVE to be proven wrong(. My pre-op consults lasted at least 10-15 minutes in his office and were prior to the procedure --not a short drawing of dots on my hand several minutes prior to the procedure. As my disease progressed and more fingers were involved, I would get more and more needle holes-- in the palms and in the involved fingers-- and the procedure lasted upwards of 45 minutes. Dr. Eaton took meticulous before and after pictures and thoroughly documented everything and you knew exactly what he was doing along with the results.

With the advent of Xiaflex I wonder how many surgeons are going to keep up their skills in NA and whether it will be more difficult to find a hand surgeon willing to be patient enough to spend 30-45 minutes doing NA vs the much shorter time it takes to inject Xiaflex and break the cord in the followup appointment. I fervently hope some will remain and also that Xiaflex studies will soon be conducted to ascertain the full range of benefits, complications and reoccurence using this drug.

Diane

09/19/2013 02:34
pia2some 
09/19/2013 02:34
pia2some 
Re: I need help with complications after NA

Diane,

The surgeon who is doing my hand next week, refuses to use Xiaflex. He hates the propaganda of Auxilliam and the way they have sold this drug. He's not quite as concerned about the long term effects of the drug on the body like you and I have talked about. But he really does feel that NA is a better treatment option than Xiaflex. He also does all he can to use NA before open surgery. Sometimes it just can't be done. That is the case with my right hand and is why I'm having open surgery. Dr. Klasson just feels that NA is the least invasive procedure with the best results for most situations. I like his ideals and his approach to DC all the way around.

I do think like you and worry that too many doctors will start using Xiaflex exclusively. It generates more money for them and requires a lot less of their time.

~ dawn

09/20/2013 21:28
moondanc 
09/20/2013 21:28
moondanc 
Re: I need help with complications after NA

pia2some:
Diane,

The surgeon who is doing my hand next week, refuses to use Xiaflex. He hates the propaganda of Auxilliam and the way they have sold this drug. He's not quite as concerned about the long term effects of the drug on the body like you and I have talked about. But he really does feel that NA is a better treatment option than Xiaflex. He also does all he can to use NA before open surgery. Sometimes it just can't be done. That is the case with my right hand and is why I'm having open surgery. Dr. Klasson just feels that NA is the least invasive procedure with the best results for most situations. I like his ideals and his approach to DC all the way around.

I do think like you and worry that too many doctors will start using Xiaflex exclusively. It generates more money for them and requires a lot less of their time.

~ dawn

Good information, Dawn. Where is Dr. Klasson ? Of course, the other thing about Xiaflex is that a lot is how many doctors/hand surgeons using Xiaflex are *consultants* to and paid fees by Auxilium including a number of the doctors who participated in the FDA trials.

I feel like a real wimp complaining about my NA when you are brave enough to try OHS. I wish you the very best and hope you have a way to dictate posts to let us know how you are doing.

Diane

09/20/2013 21:41
pia2some 
09/20/2013 21:41
pia2some 
Re: I need help with complications after NA

Dr. Stephen Klasson is in Rome, Georgia (northwest corner of the state). It's kind of funny, because I always associate the best doctors with big cities. Having grown up in Atlanta probably led to that idea. lol. Rome is a good sized city but not like Atlanta. But Dr. Klasson has a great reputation as a hand surgeon in general. I know 3 people who've had surgery for other problems than DC. My mom had NA done by Dr. Klasson earlier this summer and I was impressed with his knowledge and skill at that time. After I went to see him, I felt very confident in his skills. Today I had my pre-op appointment at the hospital and the nurses were talking about the fact that he has done many open surgeries for DC and it's known that his results are very good. So that also made me feel much better.

We each have our own pain and complexities to deal with. I know you have been struggling after your NA and I feel for you. Did you ever update us on what happened with your hand? Did you talk to Dr. Press and figure out why you were having such problems?

~ dawn

09/22/2013 22:37
moondanc 
09/22/2013 22:37
moondanc 
Re: I need help with complications after NA

pia2some:
We each have our own pain and complexities to deal with. I know you have been struggling after your NA and I feel for you. Did you ever update us on what happened with your hand? Did you talk to Dr. Press and figure out why you were having such problems?

~ dawn

No real explanation other than it is "unusual" might take 8-12 weeks... or longer.. to resolve.
Thanks for your doc info.

Diane

09/22/2013 23:22
pia2some 
09/22/2013 23:22
pia2some 
Re: I need help with complications after NA

moondanc:
pia2some:
We each have our own pain and complexities to deal with. I know you have been struggling after your NA and I feel for you. Did you ever update us on what happened with your hand? Did you talk to Dr. Press and figure out why you were having such problems?

~ dawn

No real explanation other than it is "unusual" might take 8-12 weeks... or longer.. to resolve.
Thanks for your doc info.

Diane

Are you feeling better yet? Do you still have numbness and all?

~ dawn

09/24/2013 19:24
moondanc 
09/24/2013 19:24
moondanc 
Re: I need help with complications after NA

pia2some:


Are you feeling better yet? Do you still have numbness and all?

~ dawn

Pain is almost resolved. Still have all the numbness, very disconcerting.

Good luck tomorrow-- to you and your doctor!. Do you have a tablet or cell phone where you can use voice recognition software to let us know how you're doing?

Best,
Diane

09/24/2013 23:55
pia2some 
09/24/2013 23:55
pia2some 
Re: I need help with complications after NA

moondanc:
pia2some:


Are you feeling better yet? Do you still have numbness and all?

~ dawn

Pain is almost resolved. Still have all the numbness, very disconcerting.

Good luck tomorrow-- to you and your doctor!. Do you have a tablet or cell phone where you can use voice recognition software to let us know how you're doing?

Best,
Diane

That is some progress, right? Numbness would be annoying at the least. I hope that gets better soon. I'll be able to type with just my left hand. It'll be slow going, but it's doable. lol

~ dawn

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