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Image British Actor (Bill Nighy) who has Dupuytren's
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04/17/12 02:41
flojo 
Re: Image British Actor (Bill Nighy) who has Dupuytren's

Yankee 21, You have an aggressive case of Dups. It's tough. Let us know how it goes.

04/17/12 14:09
yankee21 
Re: Image British Actor (Bill Nighy) who has Dupuytren's

Sorry for the long post, but I'm trying to get it all in........
Yeah it's aggressive alright. Had N/A done on both hands a couple times and it only lasted about 1 to 1 1/2 years each time. Doc said N/A can't really be done anymore. Luckily, I was able to find another Doc. close by that did a combination of N/A and minimally invasive surgery. Baby finger on right hand first, bent to the palm on around june 1-st 2009. He made a 2" incision from the base of the finger and cut out the bad tissue?cord? Then he did N/A on the cord in my palm.Was in medium amount of pain for 3 days. After 4 weeks of healing with little to no pain, it was time for left hand.Ring finger bent to the palm. He made a 1-1/2" incision in my palm and a 1" incision on my finger ( no N/A on this side). Cut out the bad tissue?cord? Don't know the exact timing on all this ,but, worked out good for work. Off jun-jul-aug of 2009. Now april of 2012, fingers still straight, (although I feel a tightening on both sides, so i give it ~ another year or 2?,since we all know it doesn't go away forever) I'm happy? that it's lasting 4 to 5 yrs. hopefully longer, compared to the 1 to 1-1/2 years. That goes by very fast.

04/17/12 14:10
anna71 

Re: Image British Actor (Bill Nighy) who has Dupuytren's

Hi Yankee21
Sorry if you took offence, it wasn't intended. It sounds like you're
really suffering and I can understand why you'd want to know how
someone else in the same situation is managing. I hope your
surgery went well.

04/17/12 18:58
yankee21 
Re: Image British Actor (Bill Nighy) who has Dupuytren's

Anna71....I'm sorry if it came off that way ...but.....I took no offense....just was curious how Bill is able to do it.

04/17/12 20:24
callie 
Re: Image British Actor (Bill Nighy) who has Dupuytren's

I'm surprised he did a limited surgery. Why didn't he do more, especially with the severity of your situation. I had my surgery about 10 1/2 years ago.

04/18/12 17:15
anna71 

Re: Image British Actor (Bill Nighy) who has Dupuytren's

Hi Yankee21

Thanks, I just worry what I've written doesn't come across
right!
Wish you all the best!

10/09/12 23:56
doctox 
Re: Image British Actor (Bill Nighy) who has Dupuytren's

Whether or not to go ahead with surgery is a very personal decision. In general, the fibromas / contractures do come back, so relief is temporary, and you will only encourage debilitating scar tissue if it is repeated several times. Bill Nighy of course has the National Health, but here in the Land of the Fee, many or most insurers don't cover previously existing conditions (let's see what the election brings), and an inherited genetic disease is by definition "pre-existing", so not covered by insurance. It can be very complicated surgery, with fibromatous tissue wrapped around nerves and vessels that control and feed your fingers, and so can be dangerous and hideously expensive. And then you might need to do it all over again in a few years. So if some choose to just live with it, especially after more than one prior intervention, that is understandable.

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