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Is it Dupuytren's?
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09/29/2016 04:03
Nicole 
09/29/2016 04:03
Nicole 

Is it Dupuytren's?

Hi, I'm Nicole. I've had some health issues in the last year, but no diagnosis yet. My doctor probably thinks I'm a hypochondriac, what 28 year old woman could possibly have dupuytren's, after all? He dismissed my latest concern about my palm, saying it's probably related to whatever undiagnosed nerve issues I'm currently having (also seeing a neurologist & having a nerve conduction test in a few weeks to hopefully get an answer).
So, I wanted to describe the problem with my palm and see if anyone has some advice or any similar experiences. The first symptom I noticed was itching. Insane, under the skin, never-ending itching! No skin irritation, no visible signs of anything. This started (from what I can remember) somewhere around the end of May, beginning of June, 2016 - about 4 months ago. I didn't pay much attention to it for about 2 months. It wasn't interfering with anything and, although extremely annoying, it didn't hurt. Over this time period, the itchy area (small area, about 1 square inch, beneath my index finger and middle finger) started slightly swelling. Not much of a surprise, I had to rub and massage pretty rough to get to the itching.
I finally had enough and started googling... yep, I know - it's a bad idea. But I knew my specific symptoms, and looked just for those. I honestly didn't think I'd find anything, only itching and swelling - it could be anything or nothing! But I kept coming back to this weird looking word - dupuytren's. How the hell is that even pronounced? (I finally found the pronunciation on YouTube lol)
I dismissed dupuytren's for a good month or so. I didn't have any nodules, no pitting - which looks horribly painful, even though they say it's not. Over the last month I've been paying more attention to my palm. I can see what looks like a cord going through my palm and into my index finger. In the last 2 weeks, a nodule (looking thing) has formed right in the itchy spot and over part of this cord. It looks kinda like a small callus, really. The cord is only visible when I stretch my index finger backwards. That finger is actually more flexible than its counterpart on my right hand, so there's not even a smidge of contracture going on.
Sorry about the long rambling story. No one has taken me seriously. And I mean absolutely no offense to anyone, but I feel like an old man. Shingles, pneumonia (twice), nerve issues that wake me up feeling like my arms are on fire and make my hands painfully numb throughout the day, and possibly dupuytren's - all in the last year. I also have TMJ, so yay migraines!
If you've made it through all that, thank you for reading.
Any help or advice is so very much appreciated!

09/29/2016 06:47
spanishbuddha 

Administrator

09/29/2016 06:47
spanishbuddha 

Administrator

Re: Is it Dupuytren's?

Hi Nicole

Sorry to hear your story. Some people including women do get DD quite young. But do you have DD - difficult to say based on what you say? Are you aware of any family history? Have you seen the risk factors? Do you have other related signs or symptoms?

Many people report itching, or tingling, or pain as signs that their DD is active. Some do not. A cord or nodule is best diagnosed by feel, to exclude other causes such as calluses, tendon inflammation, or other skin conditions or causes of swelling or lumps. It's really hard to comment on your case on description alone, by someone who is looking for problems ;) to find for what they feel. Even a photo is likely to be unhelpful, but post one if you feel. Have you excluded activity that you do with that hand and not the other that might be causing some irritations, examples might be use of a mouse, gripping a mobile phone, some specific work in the garden or kitchen or similar?

So what to suggest? Maybe some symptomatic relief through icing, skin creams or emollients, gentle massage, if there's pain people have used pain patches. But the real thing for you sounds like a diagnosis - it would have to be a combination of a systemic review of your health and an experienced hand surgeon or dermatologist or rheumatologist, etc.

Best wishes SB

09/29/2016 07:17
wach 

Administrator

09/29/2016 07:17
wach 

Administrator

Re: Is it Dupuytren's?

Hi Nicole,

some of the symptoms you have may indicate Dupuytren's disease but only an experienced doctor can tell. Maybe it might make sense for a hand surgeon to have a look at it? Depending on where you are living you might pick one from the list on http://www.dupuytren-online.info/NA_list_North_America.html or the other lists for other ountries. Those doctors are all familiar with Dupuytren's.

An "age of onset" of 28 is not excluding Dupuytren's http://www.dupuytren-online.info/patient_survey.html . Occasionally even kids develop Dupuytren's. For me it started at the age of 35. The good news is that I am now 68 and still doing OK, so no need to worry should you really have Dupuytren's. BTW, are you smoking? Smokers seem to develop DD earlier.

Obviously you have problems and something is going on. The challenge is finding what it is. But before starting any kind of treatment you need a firm diagnosis.

Wishing you all the best

Wolfgang

09/29/2016 12:42
Seph 
09/29/2016 12:42
Seph 

Re: Is it Dupuytren's?

Hi Nicole; The itching you describe sounds a lot like Dupuytrens. You will read a lot about Dupuytrens being a male disease and comments about alcohol, smoking etc. My view is that if you get it you its genetic. If you serach the web you will find many women with the disease and quite a number that develop it at a young age.

I amd a male but I developed DD and LD in my mid teens. I have never been a smoker and I was not an alcoholic at 14. Plus I grew up in Country New Zealand with no smog or pollution of any kind. I can't find anything to blame other than genes.

Yes talk to doctors about the itchy feeling you describe but don't hold your breath. The cords and other stuff you describe are probably just normal stuff and nothing to do with the DD that you might have.

I probably sound flippant but I am not trying to be disrespectful just realistic. If you have DD at 28 it is probably genetic and will almost certainly be slow moving and difficult to diagnose. Then again you can't do anything about so best course of action, in my view, is to do absolutely nothing.

It is a condition that cannot be cured but can be managed. I am now 62 so I have had LD and DD for about 50 years. I go to the gym most days, I play tennis 3 times a week, last weekend I did a 15km hike in the Macedon ranges and next month I will be cycling with my wife in Argentina for 5 days. The DD affects the way I hold a wine glass but doesn't interfere with my enjoyment of life at all.

Good luck.

Seph

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