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Kenalog injection, what should I expect and how long after?
 1
10/16/07 20:40
Joe 
Kenalog injection, what should I expect and how long after?

Last week, Friday, October, 12, 2007, I finally got my nodules injected with Kenalog. Ouch! The first injections of Lidocaine all around the lumps and cords were the worst. I requested a good numbing but I'm wondering if it was a good idea. I didn't want twitch and possibly influence the doc getting deep into the nodule. Next time, I might go in early and get it numbed with some topical first. I might not even need the Lidocaine then.

One injection in each nodule and the cord was also injected in two spots.

So now that it is done, what should I expect and when?

Should I get with the nodule massaging fairly aggressively?

http://kineoptics.com/stuff.html

Edited at 16.10.07 20:43

10/17/07 02:23
Randy_H 

Moderator

Re: Kenalog injection, what should I expect and how long after?

Joe,

Dr. Kline told me, and it was my experience after Eaton did some Kenalog, that you don't see results for about 4 weeks. Then the shrinking effect will continue for about another 4 weeks.

I'm beginning to see some effect from my last round and look forward to good results. The small nodule Eaton shot disappeared completely. I hope my new ones will suffer a similar fate. Unfortunately it's a bit like Botox. You have to keep doing it. Still, it has been proposed that if you have slow moving disease it's not a bad way to keep it a bay. It should have a mitigating effect on the cord as well.

You've posted some very excellent shots! I look forward to seeing some "after" shots in a few months. If you get great results you'll start a run on Kenalog around here :-)

Edited at 17.10.07 07:09

11/04/07 17:40
Joe 
Re: Kenalog injection, what should I expect and how long after?

Well, it has been three weeks and although the tightness is gone, the main nodule and cord is about the same.

I still have no contraction.

But the newly developed nodule corresponding to my middle finger has grown and there appears to be a cord forming on it too.

I am really bummed out and might have to seriously pursue radiation somehow. I just can't sit by and let this grow and wreck my hand. Since I am a machinist, engineer, and can type fast, and have many hobbies that depend on my hand, I can't loose any functionality of my hand.

Am I passing judgment on the Kenalog too early?

http://kineoptics.com/stuff.html

11/04/07 23:28
Randy_H 

Moderator

Kenalog injections take time to work.

"Am I passing judgment on the Kenalog too early?"

Yes. Give it two months before you make any pronouncements.

Also Joe, with the advent of readily available NA you have another fall back position before Open Surgery. While it is the final option many people do just fine with OS. Also Collegenase may be available in a few years. Don't just sink to the bottom of the pool emotionally.

11/05/07 01:13
Joe 
Re: Kenalog injection, what should I expect and how long after?

Yes, it was that second nodule getting a bit larger that has me concerned that the Kenalog might not work. I have heard some reports that it was not that effective for some. I'll try to report back in a few weeks.

The issues I have with NA and Open Surgery is that one has to wait until it has progressed a good degree for NA and quite a bit for OS.

11/05/07 20:11
Randy_H 

Moderator

Re: Kenalog injection, what should I expect and how long after?

For the PIP (second joint from palm), which is really the only joint to worry about, you need about 20-25 degrees for NA to work. Most surgeons will not perform OS until you reach 45 degrees. That's the point where you really begin to loose functionality and they don't do this kind of surgery for anything less.

Eaton's guess is that well over 50% of new patients can use NA for the rest of their lives and avoid OS altogether. It all depends on the aggressiveness of your disease.

Yep, give the Kenalog another month. I'm planning on doing that every year or so and perhaps NA every five.

Edited at 05.11.07 20:12

11/05/07 20:19
Joe 
Re: Kenalog injection, what should I expect and how long after?

So you are only thinking on Kenalog every year? I'm thinking on it every 8 weeks as I have heard this is close to the maximum one should get of Kenalog.

One would think there would be some other currently available snake oil to inject in the Dupy tissue that would kill it.

Acetone? Acid? Vinegar? Merlot? Nitromethane?

11/06/07 06:31
wach 

Administrator

Re: Kenalog injection, what should I expect and how long after?

Joe, Kenalog does damage to your tissue and skin (otherwise it wouldn't help). Using it too freuqently is not at all advisable. I personally would not have it every two months. Twice a year is already a lot; I rather would have it as little as possible. Maybe you only need a shot every three years.

Regarding the suggested snake oils, Dupuytren is a benign tumor. Treating tumor with vinegar, I don' know ... Merlot sounds better. Seriously: collagenase might be a reasonable option (it dissolves Dupuytren tissue) but it is not available and it will not be issued in the foreseeable future to dissolve small nodules but just to weaken strong cords before snapping them mechanically. Injecting nAC might do some good but it is not approved either.

Wolfgang

Quote:



So you are only thinking on Kenalog every year? I'm thinking on it every 8 weeks as I have heard this is close to the maximum one should get of Kenalog.

One would think there would be some other currently available snake oil to inject in the Dupy tissue that would kill it.

Acetone? Acid? Vinegar? Merlot? Nitromethane?


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