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Melbourne Australia
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05/13/2015 08:05
kate 
05/13/2015 08:05
kate 
Re: Melbourne Australia

Hi Jaci. Thank you for your message. You probably confused me with Milosmum as she lives in Victoria Melbourne and I live in Sydney and I am seeing Dr.M Jackson here who is a radiologist.
Wolfgang, could just one small area where there is the nodule be irradiated?

05/13/2015 09:16
wach 

Administrator

05/13/2015 09:16
wach 

Administrator

Re: Melbourne Australia

Irradiating the nodule + a "safety margin" around it is actually common. The first picture on http://www.dupuytren-online.info/dupuytrens_contracture.html shows a hand where the nodules are indicated (dotted lines) and the RT area (solid lines). Some doctors, specifically if they have not much experience in treating DD, tend to rather irradiate the whole hand "to be on the safe side". That's not a requirement and it makes a second treatment of that hand in other areas impossible. Personally I prefer the resticted irradiation of the nodule + margin..

Wolfgang

kate:
Hi Jaci. Thank you for your message. You probably confused me with Milosmum as she lives in Victoria Melbourne and I live in Sydney and I am seeing Dr.M Jackson here who is a radiologist.
Wolfgang, could just one small area where there is the nodule be irradiated?

05/13/2015 09:56
Jaci

not registered

05/13/2015 09:56
Jaci

not registered

Re: Melbourne Australia

Oh, sorry Kate!
Anyway, am happy to correspond with anyone interested.
Jaci

05/14/2015 08:27
Milosmum 
05/14/2015 08:27
Milosmum 
Re: Melbourne Australia

Thank you Kate, Jaci and Wolfgang and others. I decided to go the route of RT as I presumed the DD was active as one week there was nothing on my hand and the next there were obvious nodules. I know I could just leave it and see what happens however having seen the hands of a colleague with DD I decided that early intervention would be the way to go even though I realise It may never progress. In case it was going to I am trying to stop or slow that down. I understand that even if after Rt the Dupuytren's does progress that surgery is not precluded because of the RT. anyway I will let you know how I go after treatment with Dr. Borg in Adelaide lined up for June. Thank you again for your kindness and willingness to share your information and advice. It has been the generosity and openness of contributors to this forum which I have found so helpful and informative since the diagnosis a couple of weeks ago. My colleague had not heard of RT when he was first diagnosed a few years ago and is now facing extensive surgery on both hands. I have had the good fortune to hopefully benefit from your advice. Warm regards, Milosmum.

05/16/2015 13:54
Rajput1 
05/16/2015 13:54
Rajput1 
Re: Melbourne Australia

wach:
Irradiating the nodule + a "safety margin" around it is actually common. The first picture on http://www.dupuytren-online.info/dupuytrens_contracture.html shows a hand where the nodules are indicated (dotted lines) and the RT area (solid lines). Some doctors, specifically if they have not much experience in treating DD, tend to rather irradiate the whole hand "to be on the safe side". That's not a requirement and it makes a second treatment of that hand in other areas impossible. Personally I prefer the resticted irradiation of the nodule + margin..

Wolfgang

kate:
Hi Jaci. Thank you for your message. You probably confused me with Milosmum as she lives in Victoria Melbourne and I live in Sydney and I am seeing Dr.M Jackson here who is a radiologist.
Wolfgang, could just one small area where there is the nodule be irradiated?


Wolfgang

Can I ask what you mean by "it makes a second treatment of that hand in other areas impossible."

Is a patient only permitted to have one treatment round of radiation therapy and then cannot have radiation therapy again?

Rajput 1

05/17/2015 06:43
spanishbuddha 

Administrator

05/17/2015 06:43
spanishbuddha 

Administrator

Re: Melbourne Australia

Rajput1:
wach:
Irradiating the nodule + a "safety margin" around it is actually common. The first picture on http://www.dupuytren-online.info/dupuytrens_contracture.html shows a hand where the nodules are indicated (dotted lines) and the RT area (solid lines). Some doctors, specifically if they have not much experience in treating DD, tend to rather irradiate the whole hand "to be on the safe side". That's not a requirement and it makes a second treatment of that hand in other areas impossible. Personally I prefer the resticted irradiation of the nodule + margin..

Wolfgang

kate:
Hi Jaci. Thank you for your message. You probably confused me with Milosmum as she lives in Victoria Melbourne and I live in Sydney and I am seeing Dr.M Jackson here who is a radiologist.
Wolfgang, could just one small area where there is the nodule be irradiated?


Wolfgang

Can I ask what you mean by "it makes a second treatment of that hand in other areas impossible."

Is a patient only permitted to have one treatment round of radiation therapy and then cannot have radiation therapy again?

Rajput 1
Basically the answer is yes. But ...

A single treatment consists of 5x3Gy repeated after 12-16 weeks. A second course of treatment is not recommended in the same irradiated area. However under some exceptional and specific circumstances a second half treatment (one course of 5 Gy) may be done, and has been done by Profs in Hamburg. Some people have reported that their radiologist is willing to do a complete second treatment, but this is not prevailing practice.

This is one of the reasons it is important to get the timing right, for most people it's a one chance treatment.

Edited 05/18/15 09:06

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