| New Dupuytren in left hand (Toronto) - need help |
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04/07/2014 23:30
lebo 
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04/07/2014 23:30
lebo
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New Dupuytren in left hand (Toronto) - need help
Hi
I'm male , 42 years old, living in toronto
Doctor diagnoased a dupuytren in left hand, pinky finger ligament
I have a nodule around an inch down from the pinky finger (little to left of straight down)
I can still straighten my finger but do feel tightness to straighten all the way
Doctor sent me to a plastic surgeon who said he would leave it until it starts to contract (told me not to call it a dupuytren contracture, just a dupuytren because it hasnt contracted yet)
He said when it contracts to call him again and it can take between 3 days and 30 years to start, yes, he wasnt very helpful at all, quite arrogant actually.
I want to try get proactive and not wait until it contacts, read about xiaflex but cant find a place in toronto to have it done, is there anyone here from toronto that has had xiaflex? where can i go?
what are the other options? i'd like to fin out options
Should i be seeing a hand surgeon
I'm quite lost and quite sad that this is all going to happen
Any advice would be awesome
Thanks alot
Julian
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04/08/2014 00:01
callie 
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04/08/2014 00:01
callie
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Re: New Dupuytren in left hand (Toronto) - need help
The information you heard was mostly correct. Everyone is different and Dupuytren's reacts differently with each person. Some people live their entire life without contraction taking place to a degree that requires a procedure. Most likely your situation does not involve a "ligament". It is most likely a Dupuytren's cord. You might have misunderstood, you can have Dupuytren's even though contraction has not started.
Your earliest procedure would be irradiation, but you might be past the window of opportunity for that. Xiaflex may, or may not, be a procedure that would work for you at this time. From your description it may be too early for Xiaflex. Also, you might consider NA (see above under "Treatment") at a later date. Or, you might consider surgery later.
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04/08/2014 06:36
spanishbuddha  Administrator
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04/08/2014 06:36
spanishbuddha Administrator
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Re: New Dupuytren in left hand (Toronto) - need help
Welcome Julian
'Wait and see' is a reasonable option for a doctor to advise, as in many cases the condition quiesces or develops very slowly. You can still be pro-active, as you have started, by exploring and lining up the treatment options, and making lifestyle changes as appropriate. Start a log of the symptoms, hand stretch measurements, and photos so you have an objective status of symptoms to determine how it is or is not progressing and if it is timely for RT.
Best wishes
SB
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04/08/2014 09:23
humana 
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04/08/2014 09:23
humana
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Re: New Dupuytren in left hand (Toronto) - need help
Re: Radiation Therapy in Ontario
The fax number is 416.946.2900
http://www.theprincessmargaret.ca/en/Hea...rtment.aspx#DRO
'General Referral Form for Radiation Oncology'
Although I did not receive any radiation therapy, everyone at princess Margaret were very kind and helpful. They took their time to listen and explain. No arrogance there!!
My family doctor referred me. Good luck!
Edited 04/08/14 12:24
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04/08/2014 10:13
lebo
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04/08/2014 10:13
lebo
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Re: New Dupuytren in left hand (Toronto) - need help
Thanks a lot everyone. Much appreciated
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