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10/14/2013 14:53
Jolene 
10/14/2013 14:53
Jolene 
Re: New here.

Hello

I did not have a scan, or MRI. The oncologist I went to in New Port Richie, Florida made contact with Prof S. He followed his protocol. I am in the very early stages. Not recognized by the untrained eye. I had the entire hand radiated. Starting at the base near the wrist. All the way up to the tip of the fingers. right above the PIP joints. He also did my thumb.

10/14/2013 16:41
karenhart 
10/14/2013 16:41
karenhart 
Re: New here.First time radiologist.Determining area to treat

Thanks Jolene. I will have another consultaton with this radiologist on Friday.He is only planning to treat the areas with visible nodes and I have to wonder if that is enough.

10/14/2013 21:57
Valerie304 
10/14/2013 21:57
Valerie304 
Re: New here.

Jolene:
Hello

I did not have a scan, or MRI. The oncologist I went to in New Port Richie, Florida made contact with Prof S. He followed his protocol. I am in the very early stages. Not recognized by the untrained eye. I had the entire hand radiated. Starting at the base near the wrist. All the way up to the tip of the fingers. right above the PIP joints. He also did my thumb.


jolene

How many treatments have you had with him? And what is his name? I live in the Atlanta area so hard to belevie there is no one in this area!!

Thank you for all your help!

10/14/2013 22:52
karenhart 
10/14/2013 22:52
karenhart 
Re: New here.

Vanderbilt University in Nashville has a very respected RT doctor.The program has a lot of good financial aid, I understand ,for those without insurance.The doctor's name is Cmelak

10/14/2013 22:53
karenhart 
10/14/2013 22:53
karenhart 
Re: New here.Clinics offering radiation therapy

http://www.dupuytren-online.info/radiotherapy_clinics.html
Hope this helps

10/15/2013 03:01
callie 
10/15/2013 03:01
callie 
Re: New here.

karenhart,

You asked, "Callie,Thanks, have you noticed results from the RT? Did you have a scan first?"

I have noticed "results". The contraction has not worsened. The primary nodule is somewhat smaller and seems less active. A secondary nodule in the web between thumb and forefinger seems to have increased in size. I will know more as time passes.

10/15/2013 23:12
Jolene 
10/15/2013 23:12
Jolene 
Re: New here.

Hi Callie,

I have two question: you stated
A secondary nodule in the web between thumb and forefinger seems to have increased in size.

I am wondering is this 2nd nodule on the inside of the palm web, or on the outside/back of hand side of the web?
If it is a new nodule will you be able to have RT again for that area?

Edited 10/16/13 02:14

10/15/2013 23:17
callie 
10/15/2013 23:17
callie 
Re: New here.

It is on the inside of the palm. It was part of the field that I had RT in January of this year. The RT did not seem to slow it down. I am not completely sold on RT, but time will tell if it was worth it.

10/15/2013 23:32
Jolene 
10/15/2013 23:32
Jolene 
Re: New here.

Hi Valerie,

Where at in Atlanta do you live? It would be great if you tried to contact some oncologist office in the area.

I went to Florida for RT.
Dr. Hochman with Florida Cancer Affilaites 727-372-9159. He is on this site for clinics in the USA that treat DC/LD with radiation.
I completed round 2 of RT on the left foot for LD in Sept. 2013. I began round 1 of RT on hands and right foot with Dr. Hochman in Sept 2013. I return for round 2 of both hands and right foot in Dec.2013

When I went for the 1st round of RT on the left foot it was in July 2013. At that time I did not have LD in the right foot nor did I have signs of DC in either hand.

I have a blog that provides indepth information on Dr. Hochman, his staff and pics of the treatment.

http://plantarfibroma.blogspot.com/

Also this link is to a friend who has ledderhose and has interviewed many doctors around the world. He has also interviewed Dr.Hochman.

http://ledderhose.blogspot.co.uk/2013/07...specialist.html

10/15/2013 23:53
Jolene 
10/15/2013 23:53
Jolene 
Re: New here.

callie:
It is on the inside of the palm. It was part of the field that I had RT in January of this year. The RT did not seem to slow it down. I am not completely sold on RT, but time will tell if it was worth it.


Thanks Callie,
Wow, that sounds depressing. I really hate to hear that. I have heard it can take up to 12 months for RT.

Did you go to Prof S. for RT?
If this does not work for you what will be your next plan of action?
Will you be able to have RT again?

This is such a cunning, baffling disease. It certainly is not a one size fits all treatment. Those who have had success with RT need to be singing praises to God for their success. It grieves me deeply that I have read quite a few reports of RT not working.

I can only hope and pray I am a success story.

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