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Forum for Dupuytren's and Ledderhose 
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  • Nodules on fingers
    • Nodules on fingers
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    09/03/2013 21:30
    pia2some 
    09/03/2013 21:30
    pia2some      		Nodules on fingers

    I am just curious ... are nodules common on the fingers themselves? Or is that kind of unusual?

    ~ dawn
    09/03/2013 21:39
    birdlady 
    09/03/2013 21:39
    birdlady 

    		Re: Nodules on fingers

    the nodules are common between finger joints. I recently had surgery, nodes removed on 1 hand but they were all on the palm side of the hand, not between fingers.
    09/03/2013 22:18
    pia2some 
    09/03/2013 22:18
    pia2some      		Re: Nodules on fingers

    birdlady:
    the nodules are common between finger joints. I recently had surgery, nodes removed on 1 hand but they were all on the palm side of the hand, not between fingers.

    What type of surgery did you have?

    I have large nodules on each PIP joint. They are on the underside of each finger (palm side). They are getting so large that it is interfering with the ability to bend each finger.

    ~ dawn
    09/03/2013 23:14
    cschieber 
    09/03/2013 23:14
    cschieber      		Re: Nodules on fingers

    I have nodules on the palm side of PIP joints. Don't think it's that common.
    09/04/2013 01:24
    pia2some 
    09/04/2013 01:24
    pia2some      		Re: Nodules on fingers

    I was wondering when a nodule on the joint becomes a real problem, what options do you have? Is open surgery the only way to remove them?

    ~ dawn
    09/04/2013 18:44
    BRIANB 
    09/04/2013 18:44
    BRIANB      		Re: Nodules on fingers

    steroid shots softened and and made mine considerably smaller ..
    09/05/2013 00:03
    moondanc 
    09/05/2013 00:03
    moondanc      		Re: Nodules on fingers

    pia2some:
    I am just curious ... are nodules common on the fingers themselves? Or is that kind of unusual?

    ~ dawn

    I thought they were fairly uncommon until I got them! Probably a side effect of Xiaflex-- everything else is Gotta laugh to keep from crying!
    09/05/2013 00:39
    pia2some 
    09/05/2013 00:39
    pia2some      		Re: Nodules on fingers

    moondanc:
    pia2some:
    I am just curious ... are nodules common on the fingers themselves? Or is that kind of unusual?

    ~ dawn

    I thought they were fairly uncommon until I got them! Probably a side effect of Xiaflex-- everything else is Gotta laugh to keep from crying!

    Well, they ARE on the hand where I received the Xiaflex injection. Gotta wonder. lol. I'd really like to get rid of a couple of nodules that are really restricting the use of those fingers. Just wasn't sure if that was possible. I've heard about people using steroid shots but a couple of these are huge.

    I have an appointment on September 16th with a new hand specialist. I'm anxious to get his opinions on my treatment options. Everyone in my mom's family (lots of people) have DC. No one has the finger nodules, though.

    ~ dawn
    09/05/2013 01:38
    callie 
    09/05/2013 01:38
    callie      		Re: Nodules on fingers

    I would guess that these side effects from Xiaflex will never be made public. Too much money behind the product.
    09/05/2013 18:45
    Jolene 
    09/05/2013 18:45
    Jolene      		Re: Nodules on fingers

    Hello,
    I have not had treatment on my hands YET.
    I do have a nodule on my finger. It is located near the the PIP area. I also have two (2) on my thumb

    Edited 09/05/13 21:45
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