| Nodules on my palm developing after wrist strain: is it Dupuytren? |
|
|
1 2
|
| 1 2
|
|
01/16/2015 02:46
JohnG 
|
01/16/2015 02:46
JohnG
|
Re: Nodules on my palm developing after wrist strain: is it Dupuytren?
anvi123:
I live in Milan which is not far from Germany and Austria where RT is considered a normal practice.
If I were that close, I would definitely consider travel to Hamburg if I wanted radiation therapy. While I haven't been to the clinic, by chance I have stayed in one of the hotels nearby, which is also near the airport. The travel and accommodations would be easy.
|
|
|
|
|
01/16/2015 07:41
wach  Administrator
|
01/16/2015 07:41
wach Administrator
|
Re: Nodules on my palm developing after wrist strain: is it Dupuytren?
Stefan,
unfortunately most experts for Dupuytren's are only experts in their specfic field of treatment. While your French doctor is an expert in the needle technique, other excellent hand surgeons will possibly consider NA as bad practise. But they will be excellent in Dupuytren surgery. That's unfortunate but it will take a long time until the understanding of all options in treating Dupuytren's will be common knowledge. In that respect patients might be faster than physicians.
Have you read the literature provided on this Website http://www.dupuytren-online.info/radioth...literature.html ? Available are e.g. long term data by Seegenschmiedt et al. comparing treated groups of patients and an untreated control, and a study by Betz et al. showing that early treatment has the best chances to be effective. Some of the data are also on http://www.dupuytren-online.info/radiation_therapy.html. RT is effective in treating fresh/active nodules but not effective in treating bent fingers. RT is also a good treatment for Ledderhose, which your French NA expert might not be familiar with).
Wolfgang
Stefan_K.:
... On the other hand, it is not so much a question of whether it is a normal practice, but if indeed the scientific data is now solid enough to justify using RT for DD, and under which exact conditions.
|
|
|
|
|
01/16/2015 08:59
Stefan_K. 
|
01/16/2015 08:59
Stefan_K.
|
Re: Nodules on my palm developing after wrist strain: is it Dupuytren?
wach:
unfortunately most experts for Dupuytren's are only experts in their specific field of treatment.
Thank you Wolfgang. Yes, and I am not even asking them to be experts in other fields, just to be a bit more curious and open-minded about directly related fields, both alternative and especially complementary treatments. I wonder where they teach them this tunnel vision at the expense of patients. I was lucky enough my General Practitioner was experienced enough to diagnose DD and to send me (although a bit late) to a competent rheumatologist who further referred me to a skilled NA expert. Perhaps it is time to take it a step back up in this chain to a rheumatologist with a broader vision and knowledge.
After the successful NA on my right-hand pinky I had asked if it would make sense to do something, e.g. RT, about my other pinky which has a very small nodule in the finger, not the palm, no cords yet. The reaction to my question about RT was a look as if I was talking complete nonsense, and the repeated affirmation that there was no such thing as RT for DD, and then, after I insisted, that there was no scientific proof of RT effectiveness for DD.
wach:
Have you read the literature provided on this Website http://www.dupuytren-online.info/radioth...literature.html ?
I had forwarded links and excerpts from the site to my NA doctor, but will now follow up with the link to the recently updated literature page which I had not yet seen. Thanks for pointing it out.
Edit: This issue which many of us face merits its own discussion thread. To not further hijack this one here I have started it at http://www.dupuytren-online.info/Forum_E...nce-0_1945.html with good news from my doctor whom I have finally made curious about RT for DD.
Edited 01/18/15 12:59
|
|
|
|
|
|
1 2
|
| 1 2
|
444 users online
Login
