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04/23/2007 15:19
BIGFRANK
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04/23/2007 15:19
BIGFRANK
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Re: POST OP
A big Irish hello to ye all, 8 weeks post op,the hand has healed, almost full movement,very little pain (BUT) the finger has pulled back past 45 degrees. Despite the night splint and exercising the finger wants to bend back into the hand. At this rate the finger will be back to its original 90 degree position before the end of the summer. Has anyone else had this problem.I know Dupuytrens cannot be completely cured but I did not think it would come back as quick as this. I have the condition in both hands but I would never consider surgery again. Perhaps there are other factors involved my age,my diabetes and the fact that I was left for so long without treatment may not have helped.I felt I had to take a chance and hoped the surgery would work.At this point I do not think it is even worthwhile going back to the surgeon. Good luck to all.
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04/23/2007 16:49
Garyd-uknot registered
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04/23/2007 16:49
Garyd-uknot registered
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Re: POST OP
Hi, I had three ops both pinkies which have regressed.right ring finger operated on 4 months ago-this finger is trying to contract and i'm trying not to let it.
I have had two surgeons and very different post op experiences .my last operation the wound was very bad and opened up due to my stretching excercises.was given anti- b's as a precaution and its healed well now although i have not got full clenchability, although this is probably down to my preoccupation with straighteneing the finger.
i'm an eternal optomist and i am seeing the consultant agin in may for rework on my pinkie.
male-49-north west uk
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04/23/2007 19:36
Randy_H
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04/23/2007 19:36
Randy_H
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NA First
I see *no* reason to have Open Surgery for Dups until NA has proven to be ineffective. NA is more prone to recurrence, but OS is no answer either. Essentially, you want the *least* amount of OS in your lifetime as you can, so NA can be used to at least *reduce* the need for surgery. NA can be repeated nearly indefinitely. With OS, usually it is three strikes and you are out. Finished. Reduce the rate of OS with NA. That is my advice to *myself* and anyone who will listen and not trust the standard current American CHS thinking.
Eaton believes that NA can be all that a large majority of people will ever need.
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04/24/2007 04:21
DianeS
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04/24/2007 04:21
DianeS
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Re: POST OP
If anyone goes to a hand surgeon who recommends open surgery, I suggest asking about NA. If the surgeon dismisses it, ask whether he or she has done NA. If they say no, go find a hand surgeon who does both open surgery and NA and see which they suggest. Then make your decision.
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04/24/2007 17:51
Randy_H
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04/24/2007 17:51
Randy_H
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Avoid POST OP Altogether
I *strongly* agree with DianeS. It must be noted however that there are still only a handful of surgeons in the US who perform NA. This might require a plane trip and one night in a hotel, further adding to the expense. Still, I've had both OS and NA so I speak from experience. It's worth checking out NA. Here are the surgeons:
http://www.dupuytren-online.info/needle_aponeurotomy.html
Send them pictures of your hand(s). They will be able to advise you from a distance. NA is not rocket science. This thread is called "Post OP". There *is* no Post OP with NA. That's why you need to check it out:
http://www.handcenter.org/newfile16.htm
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04/25/2007 08:16
meeg1972not registered
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04/25/2007 08:16
meeg1972not registered
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John Travolta of DC
I've had surgery for DC and statistically I'm supposed to be the worst off. I'm a woman, age 34...Irish...the scar is seamless, the finger is as it was before I'd ever heard of DC, and I couldn't be happier. Whenever I search the topic of DC in hopes of learning more about the disease, this Randy comes up...always endorsing Dr. Eaton...whether you get paid by him, are brainwashed, or just really closed-minded...others out there...explore your options. Yes, you should always get 2nd, 3rd, 20th opinions, but when you have a person so focused on telling you to go to Dr. Eaton for NA, you should definitely do some research. *Randy H*--challenge me...I'm sure you can't ignore this post, Dr. E. or your oversized sense of self won't let you.
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04/25/2007 12:02
Wolfgangnot registered
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04/25/2007 12:02
Wolfgangnot registered
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Re: POST OP
Meeg, I am glad your surgery went so well! Surgery is definitely an important option for treating Dupuytren, in some cases the only one, and we are glad we have that option. But there are also many cases where NA is an equally good or better alternative. It really depends on the specific situation.
What we don't want in this forum are personal fights (we had enough of that in other forums). Telling your story about your successful surgery is very welcome, attacking people who post their opinion in this forum is less. We have lots of room for disagreement but not for attacks, like "being paid" and such stuff. Sorry!
Wolfgang
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04/25/2007 12:10
trubleu
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04/25/2007 12:10
trubleu
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Re: POST OP
I am 7 weeks out pf surgery and still struggling with the physical therapy each day. Perhaps some would think some of my reasons for choosing surgery over NA are weak or invalid, but I am happy with my choice at this point.
Dups is often particularly aggressive in women. Such is the case with me. My pinkie finger went from normal to 90 degrees (PIP) in 20 months. I have it in both hands and a related disease in my right foot. I was informed that surgery over NA would give me a considerably better chance of having to go through only ONE procedure in my right hand than with NA.
NA may be able to be performed indefinitely, but there is no one within twelve hundred miles of me who preforms the procedure. Further, my medical insurance completely pays for surgery and postoperative PT. It will not pay for NA, nor for related travel expenses or accomodations or other related expenses. It will certainly not pay for second and subsequent procedures either, or for subsequent visits to the doctor if something goes awry. If the medical reasons were not strong enough to make mine a clear choice for surgery, then I'm not sure I could have afforded the NA anyway.
The disease in my left hand is progressing much more slowly so far. My left index finger may be a candidate for NA in the next few years. Perhaps the collagenase treatment will be available in the USA by then. I'm sure we all respect the choice of each person to do what s/he believes (based on research and in consideration of each individual prognosis) is the right procedure for themselves.
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04/25/2007 13:44
jim_h
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04/25/2007 13:44
jim_h
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Re: POST OP
If you live in Paris, NA is cheap. If you live in Minneapolis, it's very expensive.
Unfortunately, the few hand surgeons in the U.S. now doing NA have set the price comparable to that for conventional surgery - several times what it costs in Europe. These few MDs are on the coasts and the list is not growing.
So like you, I'd be faced with a very expensive trip and a battle with a clueluess insurance company.
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04/25/2007 17:33
ademas
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04/25/2007 17:33
ademas
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Re: POST OP
My NA last month (two fingers affected, plus an unusual band across my palm to my thumb) ran $985 (Dr. Benhaim, UCLA), + another $500 for my flight/hotel/rental car. I didn't really factor the travel in, as I lived in Los Angeles for many years, and I knew I would visit friends and have a nice little vacation (which I did).
They are attempting to bill Medicare and my secondary insurance, but I have a feeling it will end up coming out of my own pocket.
As I understand it now, Medicare and my secondary insurance will pay for the procedure if it's preformed in a "Surgical Suite", but they will not pay if the exact same procedure is done "in-office". (The catch being that NA preformed in a "Surgical Suite" could easily run in excess of 5k, meaning that many people's copay would be higher than the uncovered NA procedure preformed in-office.
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