03/15/2014 19:29
Lowell
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R/T - Hands Worse - Maybe Other Things Going On Too
BURN OUT from to much investigation and seeing Doctors and getting nowwhere!
,.. I have done two rounds of radiation as prescribed by the Professor in Germany,,12 weeks apart here in Miami..., finished in December, and no improvement afterward or now, actually my hands are worse....developed a couple more nodules and cords......AND MY THUMBS ARE SORE AND ACHE 24 hours a day, even though I have no real contracture (yet every finger and thumb is being affected).
My skin is wrinkling a lot more in my palms and fingers and thumbs, even where no radiation was done, and have weird straitions of vertical lines runing up my fingers and thumbs, of folding skin I think....they sort of look like old age thin wrinkles, thicker ones kind of look like thin tendons being slightly exposed or something above the skin running up my fingers and thumbs, something to that affect, ----and no Doctor can tell me what they are, or are not.
The radiation treatment was in my whole palm and up just a little in each finger and thumb in both hands (just a little past the crease of where the fingers and thumbs bend ---where the fingers and thumb start) Should I have some good affect by now, if I were to have any at all?
Also: I have been reading about Carpal Tunnel Syndrome lately looking for other things that could cause all these various pains in my thumbs and fingers (which I am not supposed to have with Dupuytrens)..... --- it seems I have all the classic symptoms of Carpal Tunnel as well as Duputrens, even no Doctor has said I have it. But if I do have carpal, it is making my hands much worse, my fingers ache, my thumbs ache, the webbing between the thumb and forefinger aches....etc etc, on top of the nodules and cords I have as well.
Doctors have subscribed Celebrex for the general pain and some of the painful nodules (which are not suppossed to be painful by the way) ...And I have been on that for almost two weeks, and not one lick of improvement at all,, NOTHING.
I just don't know what to do.
Has anyone heard of Dupytrens causing Carpal Tunnel?
Last August when this all flared up, and the nodules and cords came, then the soreness and aches all over my hand came as well, including weekness, uncomfortable rubber band type stretch feelings and tightness of fingers (I guess due to cords), and just weird sensations in general, including burning feelings from time to time in hands and fingers....
I have been to 5 hand doctors.....each one said basically live with it, it is not bad enough for treatment, come back when your fingers curl up....,,,,,YET, I can't use my hands hardly at all because they hurt all over including my fingers and now my thumbs to a great deal, whereas before my thumbs did not seem to be all that involved. .......
HELP, ANY ALTERNATE SUGGESTIONS? Physical therapy, yoga, massage, whatever? My life has become sub-standard, can't do much of anything (can't twist things, press on things, liftt things, pull things, can't even wash my hands or do laundry without my hands hurting to some degree.
thanks, anyone out there with suggestions
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