Anyone know of Dr's in Utah (USA) who do radiation treatment or needle aponeurotomy?
I see on the NA list, some in NV, CA and WA for needle aponeurotomy.

Edited 05/30/17 18:41

So, I can lay my hand flat. By the chart i saw at http://www.dupuytren-online.info/dupuytr..._therapies.html, i would be Stage N. I have little nodules. There is a hard material below my right index finger. The very first pic on http://www.dupuytren-online.info/dupuytr..._therapies.html, that has a title of "Picture provided by University of Erlangen, Germany" is like my hand. There is a distinct hard material, but my fingers can still be laid flat on a table.

If I take both hands and lay them on a table, and then begin to bend my fingers backward, my left had finger can get a -80 degrees or so, while my right hand can't get more then -5 to 0 degrees. I have a neighbor friend who is a hand surgeon. He suggested about 8 months ago when I first noted this to him, to wait until its debilating, then get surgery. I am just looking now for any preventive measures like RT or NA, that may prolong my symptoms, so this DD/DC doesn't progress in stages.

I will contact the local places you suggested. I have another friend who administers various Radiologist in Utah. He gave me a contact number in Salt Lake City after I pointed him to http://www.dupuytren-online.info. I think he gave that website to some of Dr's he works with. I called my insurance, and they will cover the consultation and they do cover RT, but since I didn't have the exact code, they said I need to get that first. The code on the clinics page is for diagnosis only (728.6 - benign condition contracture). So, my next step is to make an appt. On your list of drs for RT, there are some in some states that I do travel too for work some times. If the Utah one doesn't pan out (they don't know anything of this), then I will surely make an appt the next time I am in a state that has a dr who does know of RT. Thank you!! -Kyle

FYI I have had N.A. twice ...results were more than great ...

last year I noticed something in my palm that looked like the beging of a cord...I was going to give RA a shot..
So first I went to a respected hand surgeon,to get an opinion...Sure enough he confirmed my fears,and had no problem with me getting RA... Just to be certain , I got a second opinion from another respected hand surgeon.....gues what ?
I was told not to get RA ...and more to the point I was told my condition was not a cord but a vein !
Sure glad I got second opinion ,,,,as all is well now ..without treatment ..

Hi Shoney. You may be a candidate for radiotherapy. The challenge is indeed to find an experienced specialist. Unfortunately I haven't been able to find one searching the internet, either.

Progression is hard to predict. For the other treatment options, for when contracture starts without RT, I have found this SLC doctor in a search for Dupuytren Utah: https://healthcare.utah.edu/the-scope/sh...hows=0_p2o8i2lv

Stef

[55, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017, night splint glove]

Hi Shorney Firstly I did not see in your posting your age . You must realize that hand surgeons are not in the business of administering Radiotherapy so I would look for an Oncologist who has an interest in treating benign diseases. NA would only be an option when you have around 30 degree contraction to break the cord. Do not have surgery. Further it has been reported that up to 80% of patients with Dupuytrens never need treatment. I have not seen any evidence reported of cancer after the treatment of the Low Dose RT administered for Dupuytrens. Compliments of the Season from Down Under.