| Lost password
439 users onlineYou are not loggend in.  Login
Risk of Radiation Treatment and other questions
 1 2 3 4
 1 2 3 4
08/28/2014 20:36
Gloria 
08/28/2014 20:36
Gloria 
Re: Risk of Radiation Treatment and other questions

I don't know. I think he will be looking for changes. More/bigger nodules and chords. I'm pretty sure I have a couple of new ones. Guess I'll just have to wait and see if there is enough change to warrant the RT.

08/28/2014 21:10
kate 
08/28/2014 21:10
kate 
Re: Risk of Radiation Treatment and other questions

Thank you Gloria. This is what my Hand specialist said - just to wait and see if it progresses. Could you let me know when you see the Prof.S if he decides to treat your hand. I have looked at your photo of your hand and did not see any visible nodules , are they so small?

08/28/2014 21:57
Gloria 
08/28/2014 21:57
Gloria 
Re: Risk of Radiation Treatment and other questions

Sorry, the picture is pretty bad. I can feel them, but they are not obvious when you look at my hands. The only chord that really pops out is in my little finger. Of course I'll let you know what he tells me. I go back the first week of November.

08/29/2014 06:37
spanishbuddha 

Administrator

08/29/2014 06:37
spanishbuddha 

Administrator

Re: Risk of Radiation Treatment and other questions

Not all signs of DD are visible, which is why a physical examination is important, and part of the consultation done by ProfS. He will palpate feeling for nodules and cords, stretch looking for areas of blanching, ask about tenderness whilst doing this, examine the skin for pits and teeny 1mm or less surface 'blisters', ask about symptoms going back several months.

If you keep a record of symptoms, with photos, and other signs, also take measurements of stretches, pinkie tip to thumb, reverse palm curl extension of fingers and palm. I don't bother with this, since as a piano player you notice quickly if the fingers aren't functioning correctly.

On my last visit, February this year, the gap ProfS was using was 12-16 weeks, and he showed me a paper in a journal discussing this gap. Unfortunately I did not take a note of the paper title.

08/29/2014 07:18
kate 
08/29/2014 07:18
kate 
Re: Risk of Radiation Treatment and other questions

spanishbudda, thank you. Prof.S is a real doctor , I wish I could find a similar one in Sydney. I have tried to stretch a pinkie tip to a thumb, but was unable to do so.

08/29/2014 07:50
newman 
08/29/2014 07:50
newman 

Re: Risk of Radiation Treatment and other questions

Hi Kate , I've had numerous surgeries including 4 grafts to my hands. The Rt on the feet was successful .I was first diagnosed with Dupuytrens in my late 30's I'm now 72 yrs of age. The ledderhose in the feet were diagnosed in 2000 and I was prescribed orthodics up to 2007 when I had Rt. and then they were no longer necessary.In 2007 I had a repeat surgery and within 4 weeks of the surgery I developed numerous nodules adjacent to the surgery. That's when I found the Dupuytren's Society. I've had PNF to both index fingers a couple of years back. One was successful the other not so. I wear a night splint now a couple time a week .I read you have difficulty in touching the thumb to pinky. Do you have any contraction. Prof. Seegenschmiedt advised me that Rt was best when the disease is active on nodules and not on cords in the hand.

Edited 08/29/14 10:52

08/29/2014 08:08
kate 
08/29/2014 08:08
kate 
Re: Risk of Radiation Treatment and other questions

Hi newman. Thanks for sharing your experience. Have you had RT only for feet but not for hands? I can stretch thumb to pinkie tip, I just tried to do it in a wrong way)))

08/29/2014 08:46
newman 
08/29/2014 08:46
newman 

Re: Risk of Radiation Treatment and other questions

Yes on both hands 30Gy on the left and 15GY on the right. Maybe It was not clear when I posted yesterday.(click on page 2 on bottom)

Edited 08/29/14 11:50

08/29/2014 09:16
kate 
08/29/2014 09:16
kate 
Re: Risk of Radiation Treatment and other questions

And after so many years of having DD, the RT still was effective for you! It is so good to hear.

09/10/2014 09:38
Lucie 
09/10/2014 09:38
Lucie 
Re: Risk of Radiation Treatment and other questions

newman:
Hi Kate , I've had numerous surgeries including 4 grafts to my hands. The Rt on the feet was successful .I was first diagnosed with Dupuytrens in my late 30's I'm now 72 yrs of age. The ledderhose in the feet were diagnosed in 2000 and I was prescribed orthodics up to 2007 when I had Rt. and then they were no longer necessary.In 2007 I had a repeat surgery and within 4 weeks of the surgery I developed numerous nodules adjacent to the surgery. That's when I found the Dupuytren's Society. I've had PNF to both index fingers a couple of years back. One was successful the other not so. I wear a night splint now a couple time a week .I read you have difficulty in touching the thumb to pinky. Do you have any contraction. Prof. Seegenschmiedt advised me that Rt was best when the disease is active on nodules and not on cords in the hand.


Hi Newman

Just asking for your input on my situation - any advice would be much appreciated in regards to my suspected Ledderhose disease. First could you let me know what your foot pain is like. Mine feels like a burny achy pain when I am in bed radiating half way up my calf. When I get up in the morning I feel a tightness and tenderness in my fascia which relieves on mobilising.
Also how are orthotics meant to help - do they alleviate pressure on the fibromas? I had orthotics but the foot surgeon said I had a dropped front right foot which I now disagree with and stopped using them as they were just putting extra pressure on my fibromas. I am considering radiation therapy on my foot fibromas -what are your thoughts? Had them for about 4 years now and they are not that big - about the size of a large peanut.

Thanks in advance for any advice.

Regards
Lucie

 1 2 3 4
 1 2 3 4
Radiation   misunderstanduings   Treatment   questions   nodules   dupuytren-online   Seegenschmiedt   unfortunately   Germany   Dupuytren   Wolfgang   ledderhose   presentation   successful   experience   Strahlentherapie   Dupuytrenschen   correspondence   re-examination   radiotherapy