| RT in conjunction with NA |
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04/18/2016 02:49
yosh01 
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04/18/2016 02:49
yosh01
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RT in conjunction with NA
I had RT on my right hand and foot, which were both in the early stages of nodule formation, about six years ago, and now today both are essentially free of Dupuytrens and Lederhosen. I could not be more pleased with the RT procedure.
Unfortunately, my left hand was too advanced for RT and I had a NA four years ago. It initially straightened my hand, but the contracture has slowly returned to my ring finger and I'm about due for another treatment.
Since the RT worked so well for my other appendages, I'd like to try combining RT with my next NA to see if it would inhibit the reoccurrence. I know a few people have done this and I'm looking for advice. What is the sequence of events? Does the RT follow the NA and how soon afterward? Are there resources available to learn more about the protocol? The doctors at the University of Minnesota Radiation Oncology department are very good at researching these kinds of things for patients, but I'd like to be able to refer them to another physican if there's one out there with experience in this.
Lastly, I'm now on Medicare with an AARP supplement. Various threads in this forum imply that NA and RT are covered, but if I'm mistaken, please let me know.
Thanks,
Tom
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04/18/2016 16:21
spanishbuddha  Administrator
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04/18/2016 16:21
spanishbuddha Administrator
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Re: RT in conjunction with NA
Since no one has answered yet, I'll give my own personal opinion, and that's all it is as I have no experience of this.
If I were to have NA, which could be the case one day, and in the following days or weeks it appeared to settle down quite nicely then I would not pursue RT as a follow up. However if, or when, there was signs of a flare or new activity (often reported following some interventions) or the cord(s) started rejoining, then I would pursue RT pretty quickly.
So that really means get ready to have RT as it's usually easier to turn off an appointment then set one up. YMMV
ProfS talked at the last symposium about a study doing RT following surgery, it would be interesting to know if there are selection criteria for this, or just done as matter of course.
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04/18/2016 17:08
wach Administrator
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04/18/2016 17:08
wach Administrator
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Re: RT in conjunction with NA
I don' think that there is a definite answer to Tom's questions. Having RT after NA is experimental and there is no defined course of treatment available. Research is under way but will take years to achieve reliable results. Maybe below thread is interesting
http://www.dupuytren-online.info/Forum_E...a-0_2167.html#1
Wolfgang
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04/18/2016 17:37
yosh01
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04/18/2016 17:37
yosh01
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Re: RT in conjunction with NA
I asked the doctor who had done RT on my other and and foot, immediately after I had NA on my left hand if she would do RT. She declined, saying 48 hours had elapsed and that was probably too long to wait. She may have been right, or wrong, but that was four years ago. I want to collect whatever relevant info I can before I contact her again.
Does anyone know who is doing the US study? I'm inclined to write them for details.
Thank you,
Tom
Edited 04/19/16 00:05
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