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Forum for Dupuytren's and Ledderhose 
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  • RT in Seattle?
    • RT in Seattle?
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    10/15/2013 00:25
    sherrin 
    10/15/2013 00:25
    sherrin      		RT in Seattle?

    I have already had one NA, but have rapidly growing cords and nodules in both hands. I am starting to look into all options to slow this progression. Does anybody know of anybody doing RT in the Seattle Wa area? My Dr. does not.
    10/15/2013 01:13
    callie 
    10/15/2013 01:13
    callie      		Re: RT in Seattle?

    Portland is available, but that is quite a drive for five days. There should be something in Seattle at the cancer centers.

    Edited 10/15/13 04:15
    10/15/2013 01:33
    sherrin 
    10/15/2013 01:33
    sherrin      		Re: RT in Seattle?

    Who and where in Portland? I could arrange to be there for 5 days. I would prefer somebody with experience vs somebody doing RT for Dup for the first time.
    10/15/2013 02:22
    Sentinella 
    10/15/2013 02:22
    Sentinella      		Re: RT in Seattle?

    I live north of Seattle in Anacortes. I had Dr. Nicholas Muff in Sedro Woolley, WA perform Radiation on both hands and feet 3 years ago. It has been a 100% success. Google his number and give him a call.
    Terry Sentinella
    10/15/2013 02:42
    callie 
    10/15/2013 02:42
    callie      		Re: RT in Seattle?

    Portland, Dr. Cha at the Oregon Clinic:Radiation Oncology Department (ph. 1-503-215-6029). This location is at the Providence Hospital at 4805 N.E. Glisan St., Portland, OR 97213, just off I-84 (easy access back to Seattle). www.providence.org/radiation

    The staff is excellent. I was in and out usually within 15 minutes. I finished my RT about 10 months ago.

    Also, they ran this through my insurance with no problems.

    Edited 10/15/13 05:48
    10/15/2013 04:13
    sherrin 
    10/15/2013 04:13
    sherrin      		Re: RT in Seattle?

    Thank you. I will look into both of them.
    07/08/2015 21:34
    teeps 
    07/08/2015 21:34
    teeps      		Re: RT in Seattle?

    I've been seeing James Pelton with Overlake Hospital in Bellevue, WA for my radiation therapy. He's only seen a handful of Dupuytren's patients - but has done some research on how to treat with RT. I just finished my second round of RT (once on each hand) and have been very happy with the results so far.
    07/09/2015 20:12
    Cherise 
    07/09/2015 20:12
    Cherise 

    		Re: RT in Seattle?

    sherrin:
    Thank you. I will look into both of them.
    Have you thought about Xiaflex injection? Worked very well for me after NA and surgery failed. My finger was at 180'.
    After injection the enzyme Xiaflex desolved the collagen responsible for the nodes on the cords. Fingers are now straighter at a slight curvature. It was worth it have my finger function again. See video on you tube to view the process.
    It's not for everyone as this disease is so fickle. See search box at top od page for more info on the Dupuytrens society index.
    Kind Regards,
    Cherise
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