| Lost password
583 users onlineYou are not loggend in.  Login
RT under 40
 1 2
 1 2
11/04/2013 21:16
spanishbuddha 

Administrator

11/04/2013 21:16
spanishbuddha 

Administrator

Re: RT under 40

newman:
Hi RT is only beneficial on nodules in the early stage. Not on cord. PNF or NA is your next option . I noted some on the forum have had RT after NA.
I think there is confusion about what we mean by early, since symptoms are often cyclical. So NA to release a cord and then if symptoms recur, early part of a new cycle, then RT can be useful.

11/05/2013 02:17
humana 
11/05/2013 02:17
humana 
Re: RT under 40

spanishbuddha:
newman:
Hi RT is only beneficial on nodules in the early stage. Not on cord. PNF or NA is your next option . I noted some on the forum have had RT after NA.
I think there is confusion about what we mean by early, since symptoms are often cyclical. So NA to release a cord and then if symptoms recur, early part of a new cycle, then RT can be useful.

What if nodules never appear? Just contacting cord?

11/05/2013 09:45
wach 

Administrator

11/05/2013 09:45
wach 

Administrator

Re: RT under 40

The risk of cancer strongly depends on what is irradiated. Hand and foot have a relatively low risk. Did you have a look at http://www.dupuytren-online.de/downloads...20Dupuytren.htm ?

Wolfgang

humana:
Has anyone had radiation therapy in their 30's or 20's? The feeling I get from this forum is the benefit from radiation far out weighs the risks from radiation. I am a radiation worker and explain the risk vs benefit multiple times a day to my patients for diagnostic images. The radiation dose from a life time of mammograms/x-rays is miniscule compared to the dose from radiation therapy. There is a theoretical risk for diagnostic tests but a measured risk for radiation therapy. This was echoed to me at my appointment with a radiation oncologist.
Since I have cords not nodules, I agree with the risk far out weighs the benefit in my case.
Maybe in 20 years when I'm in my 50's the risks would be less scary.

11/05/2013 12:53
humana 
11/05/2013 12:53
humana 
Re: RT under 40

I do understand what you are saying that radiation to the extremities involves less risks than radiation to the head and trunk. I don't have the time to properly review your estimations (I write an exam on the 22nd on a different subject and don't want to clutter the brain).
Can I say thank you for this discussion!! And to be continued...

11/22/2013 18:16
bstenman 
11/22/2013 18:16
bstenman 
Re: RT under 40

It is wrong to compare deep XRT for cancer with the radiation going into organs with the radiation of the dermal layer in the hands or feet. With my XRT in the USA a CAT scan was done to help with the exact calibration of the machine so that the x-ray radiation would be focused at the correct depth in my hands. The machines are able to focus the radiation in a manner that is similar to using a mangnifying glass to focus the rays of the sun to burn a piece of paper. The lens has to be held an exact distance from the paper for the solar radiation to be focused and affect the paper.

XRT needs to be done as soon as possible to get the best long term outcome. A delay of less than 12 months can make a big difference. My GP doctor. Dr. Dawn Motyka in Santa Cruz, misdiagnosed my Dupuytren's and the resulting delay in XRT meant that the disease has progressed too far in my left hand to be effective. Fortunately the Dupuytren's in my right hand was not as advanced and now 6.5 years later my right hand is no different than it was in 2007 when the XRT was performed.

If you do not have insurance in this pre-Obamacare time then it is going to be cheaper to travel to Essen in Germany and have the XRT done there. My medical costs in Essen as a US citizen in 2007 was only 400 Euros and this was for both hands. Even with airfar, trains, lodging, and food, the treatment in Germany was a third of the cost of getting the XRT in the USA.

11/24/2013 05:08
humana 
11/24/2013 05:08
humana 
Re: RT under 40

bstenman:
It is wrong to compare deep XRT for cancer with the radiation going into organs with the radiation of the dermal layer in the hands or feet.

My intentions are not to compare. "As I stated previously, everyone is different." My situation is very different. RT is available but there would not be any benefit, only an additional radiation exposure.
My goals are simple; maintain as much hand function as possible so I can provide for my family.

 1 2
 1 2
diagnostic   mammograms   Dupuytren   circumstances   dupuytren-online   appointment   benefit   therapy   knowledgeable   different   misunderstanding   pre-Obamacare   theoretical   radiation   consideration   radiotherapy   patient-interviews   understanding   nodules   spanishbuddha