Hi Lizzie,

I have DD in both hands and LD in my right foot. I have swelling in my left hand that seems to worsen at night before bed. Swelling is a common elliment to a foreign problem in the body (Typically). Swelling, I believe, happens because your body is trying to combat the problem and heal itself. One thing I have discovered (And I don't know if this is documented), but I have swelling that is narrow and ahead of the nodule & about the length of a green bean. I have noticed that the nodule went from perfectly round (About the size of a pea), to more oblong now, following up the path of the narrow swelled area. It seems as if this fluid (Feels like fuid under the skin), is feeding the scar tissue, therefore, it's growing in the same path as the swelling. The pea sized nodule is oblong now and gaining towards my middle finger. The nodule becomes hard as it grows towards my finger, and I believe there is a relation between the two (Just my observation & Opinion). I wonder to myself if this is the case, but being I'm no doctor trained in this field, I really can't say if it is, but I wonder. I have read many DD testimonials regarding this disease, and many have talked or complained about swelling as being one of the symptoms involved. I am still eagerly trying to learn as much about this disease as I can, because until I developed these conditions (DD & LD), I had never heard of them before. I truly think the American population, as well as the world, should know about this awful disease, so they are aware incase they possibly experience early onset themselves. I hope my rambling reply helps some, and remember....You ARE NOT ALONE with this. We all suffer differently in our own way, some mild, some severe, but never the less, we all suffer with it to some degree. I wish you well, and I hope you are able to live a "Normal" as possible & happy life. Take care, and best wishes, Metzie.

My knot showed up in late December 2017. This is mid March and I have a lot of swelling and pockets of edema all over the hand. It started between the knot and the corresponding fingers, but now can be seen all over the palm. The fingers and thumb are also larger with swelling than on the currently unaffected hand. Some areas look like poufed out pockets of fluid under the skin. I too, have some aches and shooting pains it the hand. Unfortunately, I have some shooting pains in the other hand even though there is no sign in that hand, currently. I wish that something could be done to help the problem now. As is, it's just wait for it to get bad enough for surgery or the breaking of the chords.