| Tried NA ....ready for surgery |
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01/21/2009 16:16
jwag4646 
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01/21/2009 16:16
jwag4646
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Tried NA ....ready for surgery
Ok...I'm a 55 yo male and after years of dealing with this blessed disease.....yes this is a disease, I have elected to have Palmar Fasciectomy done. I have DC in both hands. Left pinkie now @ 90 degrees! Ring finger starting contracture. Left pinkie @ 45 degree and all fingers except thumb on L. have been determined effected! I had the NA done by Dr. Eaton 3 years ago and as far as I'm concerned it was a very expensive band-aid. This is diseased tissue we are dealing with and poking around with a needle for release is a temporary fix(band-aid). I was so hoping NA was my answer........oh the beach in Jupiter, FL was awsome. My current Dr. has convinced me that the diseased facia tissue has to be removed to provide any normal range of motion, shaking hands, putting on a glove, clapping? I have decided to have my RH done first ( I'm RH so this should be a real challenge for me) From all the researching I've done the recovery and rehab is quite lenghty. Also, the reoccurence of contracture is also a concern. My DR is giving me a possible 20% chance of return. I'll take the 80% it will not. Any comments from fellow DC'ers who have had the PF done PLEASE share your thoughts and experience.
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01/21/2009 16:19
jwag4646
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01/21/2009 16:19
jwag4646
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Re: Tried NA ....ready for surgery
sorry the RH is 90 degrees.........LH 45degrees
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01/21/2009 17:14
TrevB 
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01/21/2009 17:14
TrevB
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Re: Tried NA ....ready for surgery
Quote:
This is diseased tissue we are dealing with and poking around with a needle for release is a temporary fix
This is one of the things that I remember Dr Goode touching upon before we agreed to go ahead with radiotherapy in Poole. If you're not one of the lucky ones (mild case) and you don't try to deal with this asap then you're just fire-fighting with already diseased tissue.
Apologies for hijacking your thread, I hope that you get the answers you need and then that the surgeries go well and work for you.
Cambidgeshire, UK.
Edited 01/21/09 19:16
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01/21/2009 18:58
jimh 
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01/21/2009 18:58
jimh
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Re: Tried NA ....ready for surgery
I've had two surgeries, one on each hand. Recovery is long and tedious, you're partially disabled for months, and surgery inevitably does some damage of its own. Today, I'd be waiting for Xiaflex rather than having surgery. Or I'd be repeating NA as necessary.
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01/21/2009 21:16
callie
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01/21/2009 21:16
callie
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Re: Tried NA ....ready for surgery
I have had the surgery on the "pinkie" finger that was 90 degrees contracture. It has been several years (7 years) and my finger is as good as before Dupuytren's in every way. No sign of Dupuytren's. Each person is different, but generally there is very good success with the surgery.
1) Following surgery never let the wound dry out.
2) Exercise the scar tissue continually as it is healing.
3) Do the stretching exercises all the time. You may, or may not, need therapy. I only went twice for the splint and exercise suggestions. The rest was on my own.
4) I was driving a couple of days after surgery. Golfing two months after surgery.
Make sure your surgeon has had considerable experience with Dupuytren's. Good luck and ask questions.
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01/22/2009 01:48
jimh
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01/22/2009 01:48
jimh
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Re: Tried NA ....ready for surgery
The outcome of surgery depends on several things, starting with how extensive it was. In my case, multiple incisions each time, a lot of tissue removed and months of healing. After each surgery I was in a cast for the first week. The surgeon told me right at the start that full recover would take a year, and he was right.
Your mileage may vary. If it's a simple contracture, and confined to the pinkie, it might go very well. I agree that surgery can work and I've had no recurrence in the 'cleared' areas after several years.
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01/22/2009 01:50
jimh
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01/22/2009 01:50
jimh
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Re: Tried NA ....ready for surgery
Addendum - no recurrence, but I should add that the attempt to straighten my pinkie was mostly a failure. Two years later, the finger was bent and frozen. Surgery on the pinkie is difficult and often fails.
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01/25/2009 03:28
RMC 
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01/25/2009 03:28
RMC
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Re: Tried NA ....ready for surgery
Hi,
First hope surgery goes well for you. I had two surgeries on my right hand little finger 20 years ago. After the 1st dc recurred in less than a year. I waited till it was at 100 degrees before the 2nd surgery. The operation lasted over 5 hours I was cut from the tip of my little finger to the wrist and across to the middle finger. Spent 10 days in a cast and 21 days with a pin going through the pip joint. After 3 months of therapy 2 times a week I was able to get it to a little over 10 degrees. It's still that today with no recurrence. In November I had NA done on my left hand little finger that was at 90 degrees for about 5 years. After 3 weeks of therapy it's at about 7 degrees. I would do NA once a year rather than going through another surgery. It's a tough decision everyone must make. Again hope all goes well.
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01/25/2009 19:41
jwag4646
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01/25/2009 19:41
jwag4646
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Re: Tried NA ....ready for surgery
well I have scheduled my surgery for Feb.3 I want to get as much recovery and therapy behind me before spring. I know the cast will be in place for 10-14 days. Anyone comment on how long before normal use again. I know everyone heals differently. It's just I am very active person and I'm right handed. I am going to request the 3 uneffected fingers be free form the cast.
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01/28/2009 01:58
callie
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01/28/2009 01:58
callie
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Re: Tried NA ....ready for surgery
Your healing time will depend somewhat on how well you do the exercises. Remember to keep the wound moist 24/7 for about three months. This also helps for massaging the scar tissue.
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