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triggers(what have you heard?)
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12/01/2008 16:56
dude 
12/01/2008 16:56
dude 
triggers(what have you heard?)

hi all,

I'm new to this site,but soooo glad I found it.
As I read through all the posts from forever,
I can but want to organize.(I think I'm part border collie...)

triggers...
I've read that surgery to remove nodules might 'activate'
the hand,spurring more/new nodules.

interesting.

Can N.A. also be a trigger? radiation?

Rock climbing...does that mean exercise is bad?
I always thought good circulation is always preferred...

Chondroiten/glucosamine makes sense.I've stopped taking that.
any other foods rumoured to be bad?

the Lone Rangers horse? his name was trigger.does he count?

12/02/2008 10:09
crt 
12/02/2008 10:09
crt 
Re: triggers(what have you heard?)

Hi dude,

I'm new to this forum as well.

My experience (of a long time ago when I was 14 and 24, now 57) is that it is possible for surgery to make it worse.
But perhaps that was helped by a surgeon who didn't know what he was doing.

Whilst I did spend a significant part of my life rock climbing, it has only been many years later that I have got DD in a hand (previously Ledderhose and knuckles).

The following is an article published in an Australian magazine relating to DD and climbing (http://www.athlon.com.au/articles/dupuytrens70.pdf).

I have been working out in a gym more recently, and I wonder if the DD is associated with the strain I have been placing on my hands?

I took Chondroiten/glucosamine for many years, but stopped when the DD in hand appeared. Now my knee is somewhat more painful (is that just because I'm a bit older now?).

Regards,

Chris.

12/03/2008 09:53
bstenman 
12/03/2008 09:53
bstenman 
Re: triggers(what have you heard?)

No one really knows enough about the causal factors involved. From my experience the disease makes the hands more sensitive to stress, especially with repetitive stress activities. I can see where climbing would be especially stressful for the hands and exacerbate the affects of the disease as might heavy computer use, playing an instrument, especially a stringed instrument, for long periods of time. With the progression of the disease in my left hand (primary hand) I react more to repetitive motions such as painting whereas in the past I suffered very little in this regard and had above average strength and endurance.

Background stress might be a factor as it is with arthritis but it also requires a genetic predisposition to the factors influencing the development and progression of the disease, also like arthritis. With the fascia already undergoing changes from the disease the musculature of the hands is already compromised so it should not take much additional stress of any kind to get an unusually severe reaction. For my part I find it is important to to stretching and mild exercises for short periods of time. If I over do it my hands are worse but a little exercise is helpful in maintaining flexibility.

Dr Stanley Jacobs who has done the most research on DMSO for arthritis (where he has produced amazing results I have witnessed first hand) is now selling a hand lotion with 60% DMSO and urea for the treatment of Dupuytren's. I have just started to use it and will see if it provides any benefit.

As for stress causing the disease I find that doubtful is based on my family history. My grandfather and grandmother came from Finland and Sweden respectively and he was a carpenter and gentleman farmer. Two of his sons were farmers, one was a mechanic, and one was a stone mason. Neither my grandfather or my father or my uncles suffered from Dupuytren's though they lived into their 70's and 80's and had used their hands extensively all their lives. No one on my mother's side (English stock which may include Viking blood) has suffered from Dupuytrens at least in terms of my great grandparents and their offspring. My brother has worked as a carpenter for 30 years and has stressed his hands far more than I yet he has no symptoms of the disease. So I really do not think their is a trigger but rather a genetic predisposition requiring multiple genetic factors and I was just unlucky in this regard.

It is important to realize that very little real research has been funded or done and the samples are very small and I am not aware of any attempt to do a genetic mapping of individuals with this disease which would be the first step toward identifying people at risk - much as is being attempted with regard to various cancers. This is not likely to change in the next several decades. The best one can hope for is more treatment options, though for now it is just XRT and NA.

12/03/2008 15:05
franco

not registered

12/03/2008 15:05
franco

not registered

Re: triggers(what have you heard?)

good.so good.

strecthing,yes (I've been...)
vigorous exercise,yes.(I bike,ala Lance.that will see a change)

bstenmann,you mention Dr Stanley Jacobs.
I also read your mention of him
on another page here.
but if I google him,I get a guy in San Fran,
not at Oregon Health Services.
and if I go to the O.H.S. site..no listing for him.
where can this 'cream' be purchased?

12/03/2008 20:53
callie 
12/03/2008 20:53
callie 
Re: triggers(what have you heard?)

I have had Dupuytren's for 20 years. From my personal experience I feel that above average stress on the affected hand(s) stimulates the activity of Dupuytren's. Same with Ledderhose Disease.

I have had unbelievably good results from surgery.

12/04/2008 04:50
wach 

Administrator

12/04/2008 04:50
wach 

Administrator

Re: triggers(what have you heard?)

I am glad you are mentioning good outcome of surgery. This is not the case for everyone but it is not rare either. Did you also have Ledderhose surgery and how did that work out?

Wolfgang

Quote:



I have had Dupuytren's for 20 years. From my personal experience I feel that above average stress on the affected hand(s) stimulates the activity of Dupuytren's. Same with Ledderhose Disease.

I have had unbelievably good results from surgery.


12/04/2008 21:22
callie 
12/04/2008 21:22
callie 
Re: triggers(what have you heard?)

I have not had Ledderhose surgery and don't plan on it. It is very important for me not to stress my arches. Comfortable shoes have been extremely important.

My hand surgery was seven years ago and not a hint of Dupuytren's. Full flex and still zero contracture.

12/07/2008 03:35
dude 
12/07/2008 03:35
dude 
Re: triggers(what have you heard?)


Dr Stanley Jacobs who has done the most research on DMSO for arthritis (where he has produced amazing results I have witnessed first hand) is now selling a hand lotion with 60% DMSO and urea for the treatment of Dupuytren's. I have just started to use it and will see if it provides any benefit.


where do we order this cream?

12/18/2008 11:35
Dubarry 
12/18/2008 11:35
Dubarry 
Re: triggers(what have you heard?)

Quote:




Dr Stanley Jacobs who has done the most research on DMSO for arthritis (where he has produced amazing results I have witnessed first hand) is now selling a hand lotion with 60% DMSO and urea for the treatment of Dupuytren's. I have just started to use it and will see if it provides any benefit.


where do we order this cream?




I would like to get hold of this cream too - could you point me to the right place?

D

12/18/2008 21:26
dude 
12/18/2008 21:26
dude 
Re: triggers(what have you heard?)

I have ordered the cream,I will let y'all know what,if anything happens.


https://jacoblab.com/OrderDMSODusaSAL.html

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