hi,first post
dd started in my right hand about 15yrs ago, i now have 3cords in each hand.
right hand the middle fingers are contracted one finger is stage one about 70deg.
i will start xiaflex injections aug 26 and see how it goes. i will document.
the injections are one per cord, have to be 30 days apart in one hand
i need 3 injections each hand .one injection is about $3500.
my insurance will pay all of it since my deductable has been met
should have done something yrs ago but was not aware of rad. or n/a
surgery is my last resort.
thanks for listening this forum is great
Gary

Edited 08/21/10 23:37

will it do a better job than NA in preventing or extending the time for recurrence. If not, until the price comes way down, I don't see any advantage for it.

I suppose it will be years before the answer is clear.

Hello, I am posting on behalf of my husband,who just learned that his pinkie and ring finger on his left hand and his right pinkie are Dups. The hand surgeon we saw today only spoke of surgery as the better cure for his condiition. His two left fingers are almost touching his palm, the right one is less involved. I have been on the Xiaflex website and we are lucky to have a couple hand surgeons in the area who have been trained. After hearing that surgery may not permanently be the solution and that subsequent surgeries may be worse or not possible because of scar tissue in addition to the nodules we are more inclined to try the least invasive. I am prepared to fight the insurance battle if need be. I have to believe that this Xiaflex injections have to be better in the long run. Dave T I appreciate your posts and have read them to my husband. We are getting ready to go to his Primary Care Dr. to request her help in getting this relatively new treatment for him. Thanks for posting your experiences we don't feel so isolated anymore.

Price is a function of what people are willing to pay. The companies involved with Xiaflex have invested millions in research and developing manufacturing capabilities and the surgeon providing NA has only invested in a scalpel by way of comparison.

Hi All,

I have had dups abut 8-10 years and ehrd about Xiaflex several months ago from my hand doc who has been trained in the procedure. He told me about the new procedure and he submited all the paper work to my insurance company. It has been approved and I'll pay about $13,00 co-pay. My first injection is Sept 30 and follow-up the next day to rupture the cord.

Thanks for all your coments. I'll report back, too.