Dear Wach

Thank you for responding and the advice about Mr Warwick is very helpful.

My mother was 89 years when she died and died of a blood clot and her hands were very soft. Didn't even walk with a stick.

My father was a few weeks off 94 years old and he definitely did not have it.

We are a family that talks to each other a lot, so I think it likely it would have come up at some stage.

Possibilities.

2005 I was in an accident in a taxi and had a whiplash injury and was given a drug that is for epilepsy, which I took for only one month. Apparently that can trigger.

Fell in Florence in 2007 and went down into a square with a hell of a bang, fractured my ankle and elbow. The first signs were after that, with what I now know is a glass shoulder and very painful. It did go. The first nodule appeared the following year.

It maybe be the genetic combination of my parents.

I know my mother's family tree that they came from the North of Europe, the Scandinavian countries more than a thousand years ago.

Don't know my father's so far back, but he was as blond as could be with blue eyes. Funnily enough, I am blonde with green eyes.

It could be the two genetic sides combining.

Anyway, have an appointment with my GP next week and will see what he says. Hope he knows Mr Warwick and does not send me to someone who wants to do old fashioned surgery. I did show it to my GP a few years ago and he asked me to put my hand on a table and said to leave it. No mention of RT.

Anyway, thank you to everyone for responding. It is really helpful when facing this awful disease.

Let us hope Dr Charles Eaton finds a cure.

K

Edited 02/18/15 14:40

KatherineG:

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Just looked up David Warwick who is now Professor Warwick and unfortunately he is based in Southampton and I live in Central London.

He seems to be the go to man, so I will think about it, but my health insurance will only pay if I am referred by my GP.

sadfam:

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WELL I TOO HAVE JUST HAD THE INJECTION FOR MY LITTLE FINGER TODAY. OK WAS PAINFUL BUT NOT FOR LONG AND ITS DONE NOW. I WAS BANDAGED AND NEED TO RETURN IN 2 DAYS. HOWEVER MY HAND IS VERY PAINFUL ALONG SIDE AND PALM AND YES I HAVE TAKEN PAIN KILLERS. NOBODY MENTIONED THIS AFTER PAIN. IS THIS COMMON?

CONSULTANT SAID MIGHT BE SORE BUT THIS IS MUCH MORE THAN SORE. WILL POST BACK AFTER MANIPULATION

I found both the injections and the manipulation to be quite painful. The xiaflex burned and i counted at least 5 injections. The lidocaine injection before the manipulation was nothing, but even after numbing it up I could still feel a great deal of discomfort and struggled through the manipulation. After reading a bunch about the procedure and even watching youtube videos, I wasn't prepared for this level of pain. I think one of the problems was when they splinted me after the manipulation, the nurse had my finger too straight which put my now shortened ligaments on a constant and very uncomfortable stretch. The theory is that I've had this condition long enough that my ligament to the pinky shortened as I'm still at a 20 degree contracture without the cords. Once the custom splint was made I was no longer in this constant and painful stretch.

So anyway, I'm stuck at 20 degrees and with a pretty large nodule still so I imagine surgery is in my future.

KatherineG:

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sadfam:

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sadfam:

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WELL I TOO HAVE JUST HAD THE INJECTION FOR MY LITTLE FINGER TODAY. OK WAS PAINFUL BUT NOT FOR LONG AND ITS DONE NOW. I WAS BANDAGED AND NEED TO RETURN IN 2 DAYS. HOWEVER MY HAND IS VERY PAINFUL ALONG SIDE AND PALM AND YES I HAVE TAKEN PAIN KILLERS. NOBODY MENTIONED THIS AFTER PAIN. IS THIS COMMON?

CONSULTANT SAID MIGHT BE SORE BUT THIS IS MUCH MORE THAN SORE. WILL POST BACK AFTER MANIPULATION

Today I had manipulation under local anaesthetic. There was only one 'pop'. Dr seemed ok with this and quite matter of fact. anaesthetic hurt a little going in but manipulation not at all. Nothing was torn and my skin is still intact. Little finger much straighter than before. Large haematoma and skin around base of finger quite thick. Given a splint to wear for a week. Must remove every hour during day and make fist which is quite difficult. Finger is sore to be expected. Back next week to see OT. Will keep you posted. By the way I am in UK and I think my Dupuytrens may have been brought on when I had a bad fall about 10 years ago. I landed on my hands and was unable to use them for about 2 weeks because I had damaged tendons.

Dear Sadfam,

Interesting you think it may have been a fall as that could be the cause of mine.

Where did you have the treatment?

I am in Central London.

Best wishes and thank you to everyone posting.

K