I will start from the beginning but then I will make a long story short. I found my lump in my left foot arch area. It scared me but it wasnt painful so I chose to forget about it that was last february 2009. By August it had grown and was now painful to wear my boots to work and stand 8-12 hours a day. There was cort. injections didnt do anything but make my lump madder. So my pod. did surgery the end of September 2009. I am better but not much it feel like somethings pulling when i walk and it still gets swollen the whole foot and ankle area if im up on my feet to long. The incision sight is also very hard and shooting pains happen if up on it to long. So I am still off of work.I also have several more growing in the other foot causing me pain. The doctor doesnt want to do anything with my right until the left one is fixed The Doc now has suggested this CRYO surgery I have read mixed things on it can anyone give me any experiences that you have gone through. Has anyone had this procedure Im scared now since surgery didnt work. They think a fibroma has grown back..... Or its really bad scar tissue.. Helpppp Please !!!!! Thanks

I was just informed by my Insurance Company that this procedure is covered Yeah for me but on the other hand this to however is not permanent Boo for me. Is there anything to forever take away the pain ??? And why isnt there more research being done for us sufferers ??? I wish now sometimes that I wouldnt have had surgery. Is there anything we can do as sufferers of this disease to get a cure ????

Hi Australia Calling. I was diagnosed in 2000 with Ledderhose in the arch of my left foot. I was prescribed orthodicts which were Ok until 2007. I went to Germany to see Prof. Seegenschmiedt for my Dupuytrens on a recent repeat surgery. During my examination I discovered that the Ledderhose was forming on the ball of the right foot as well. I decided there and then to have Low Dose Radiotherapy. ( 2 X5 treatments a total of 30 Gy.) It is now 2 1/2 years since the RT . The orthodictics have been dispensed with. The nodule in the arch has deminished that I can only find it when I stretch the foot under stress. I am more than happy with the results. I use a creme containing Urea every now and then for a week at a time which removes any hard skin. Regards.

Edited 01/08/10 12:01

Has anyone had to go on disability or do they even recognize this for disability? I have been off of work 4 months now doctor said could be a year. And then what to do with the other foot ?? That means more time off of work .. Unfortunately for me Germany as great as it sounds is not going to be an option due to finances. Why doesn't the Podiatry society accept radiation therapy as one of their options here in the U.S.A. ???? Since some of us respond differently to different treatments why haven't there been more studies and trials to help find a cure if not a treatment to ease the pain and suffering we all have been and still are going through??This is in its rough stages is very debilitating. Has anyone after Surgery experienced swelling after 3-4 months where you cant see your ankle swollen..... ??? I'm sorry for all the questions all at once but this is all new to me and very frustrating at times. Thanks for any feed back good or bad or indifferent.

I've had surgery on both feet. Right foot in 1993 and left foot 1997 and again 3 weeks ago. This is the worse recovery of the three surgeries. In 1997 I was putting weight on the foot at around 4 weeks out. I don't see that happening this time. I have pain when the foot is down and it tingles constantly. It is still swollen and I'm icing and elevating a lot! It was getting painful pre-surgery. I waited as long as I could. I think I have nerve damage but hope it will not hurt long term. I didn't know RT was an option but will look into it b/c I have a nodule again on my right foot (the foot done in '93). I've also had Dups in both hands and had NA done by Eaton last year and worked out great. I have a few more nodules pop on the same hand but no pain. I am an active tennis player--at least before surgery. If anyone knows of RT being in FLA, please post.