| Radiation in San Diego |
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12/14/09 01:42
homeboymi 
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Re: Radiation in San Diego
I am so happy that the pain has left the palm of my hand since radiation. It seems to get better everyday and I am now using my right hand regularly. I noticed today I was gripping the steering wheel with my hand wrapped completely around it. Before, I gripped it with my four curled fingers keeping my palm away from it to prevent pain. I can shake hands now which I couldn't before. It's hard to express how happy I am and grateful to have found this website. Every doctor I showed my hand to said to wait until contracture and then surgery. One doctor (Orthopedic Surgeon) said he never heard of NA: thought cortisone shot wasn't the answer and radiation was a bad idea.
I don't see any shrinkage of my nodules yet. As long as they don't hurt, who cares? Only problem is a fortune teller would have a hard time reading my palm. lol
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12/14/09 05:33
flojo 
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Re: Radiation in San Diego
Just thinking about what a palm reader would do with our Dupuytren's hands is very funny!
Hope your hand continues to show improvement after your RT.
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12/14/09 18:47
LubaM
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Re: Radiation in San Diego
"homeboymi".....I'm glad to hear about your improvement...I think you did RT with Dr. T.just after me (I finished 11/20) I'll keep checking this thread to see how you and "fojo" are doing... I also had a hand orthopedic surgeon tell me he was totally against NA and RT.
My hand slowly continues to improve, a few nodules are much softer and others are beginning to soften up. So far I'm very happy.
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12/15/09 04:21
jocond 
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Re: Radiation in San Diego
Quote:
Just thinking about what a palm reader would do with our Dupuytren's hands is very funny!
Hope your hand continues to show improvement after your RT.
As much as this inconvenience is for our hands it's always good to have some sort of sense of humor. Your comment about the palm reader made laugh pretty hard. All I could think of is them saying "Well I can tell you lived in a mountainous region" you take it from there.
On a positive note I'm scheduled with Dr Pess this thursday to do NA on my right hand. Very excited. Had my left hand done in January by him and doing good so far.
Joe
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08/11/10 20:29
Larry
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Re: Radiation in San Diego
homeboymi:
I am so happy that the pain has left the palm of my hand since radiation. It seems to get better everyday and I am now using my right hand regularly. I noticed today I was gripping the steering wheel with my hand wrapped completely around it. Before, I gripped it with my four curled fingers keeping my palm away from it to prevent pain. I can shake hands now which I couldn't before. It's hard to express how happy I am and grateful to have found this website. Every doctor I showed my hand to said to wait until contracture and then surgery. One doctor (Orthopedic Surgeon) said he never heard of NA: thought cortisone shot wasn't the answer and radiation was a bad idea.
I don't see any shrinkage of my nodules yet. As long as they don't hurt, who cares? Only problem is a fortune teller would have a hard time reading my palm. lol
That's the worst news which are common in the USA and in many other countries worldwide :
neither GPs nor specialists (Orthopedic Surgeons, etc.) keep an eye on other ways to examine and explore
this bad disease ... cortisone shots are common but useless, advice on later surgery is fatal, and advice
about radiotherapy are just a fear of avoiding the most effective treatment in early stage Dupuytren's disease.
With regard to RT I must confess, that I am convinced about the schedule use in Germany; they had the
longest experience (over 10 years) with different RT schedules and the one which is used in LaJolla (Dr. T.)
is not the schedule which is used by Prof. Seegenschmiedt in Germany, as the doctors in California treat for
2 weeks and 10 sessions which is more risky for early and late side effects than the "German concept"
with 10 sessions given in 5 sessions separated by 3 months. I was treated with this latter scheme for my
Ledderhose (now starting to get Dupuytren ... ), but the person to contact would be Prof. Seegenschmiedt
in Hamburg (Germany) who has treated several hundreds of patients ... he also has educated the doctors
in USA who have just started to do a few treatments ... so explote about the difference between the two
RT schedules !
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