| RT in Hamburg, Germany - May 2016 |
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06/24/2016 20:03
Peacefulbird 
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06/24/2016 20:03
Peacefulbird
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RT in Hamburg, Germany - May 2016
I had the first series of RT treatments in Hamburg, Germany last month. Everything went well. Prof. Dr. Seegenschmiedt found nodules and cords in my left hand and right foot (no surprise to me), but said it is too early to treat them at this time. So, I only had my right hand treated. I'd be happy to answer any questions forum readers might have about the treatment itself, the expenses, the travel/lodging, etc. If I can figure out how to do it, I'll attach a couple of photos to this post. I return to Germany for the second set of RT treatments in October.
Wishing you all the best,
Peacefulbird
Washington state, USA
right hand DD, onset Oct. 2015
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06/24/2016 20:19
Stefan_K. 
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06/24/2016 20:19
Stefan_K.
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Re: RT in Hamburg, Germany - May 2016
Thanks for sharing. I recognize the drawing style and the equipment :-).
The normal interval between the two series seems to be three months. It probably makes no difference, but if yours is five months, is it because of availability? Hamburg can be nice in late summer.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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06/24/2016 20:40
Peacefulbird
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06/24/2016 20:40
Peacefulbird
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Re: RT in Hamburg, Germany - May 2016
Hi Stef,
When I checked with the clinic about the possible problem with waiting for 5 months between sessions, Prof. S said it would be OK (apparently less than 3 months is not OK). The reasons are because of the clinic being closed for a holiday and Prof. S being away and because of my own work conflicts. I really look forward to being there in mid-October! Thanks for your continuing participation in this forum... I'm always interested to see what you have to say.
Wishing you all the best,
Peacefulbird
Washington state, USA
right hand DD, onset Oct. 2015
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06/24/2016 20:45
Stefan_K.
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06/24/2016 20:45
Stefan_K.
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Re: RT in Hamburg, Germany - May 2016
Thanks  . All the best.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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06/30/2016 12:26
onetopmom 
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06/30/2016 12:26
onetopmom
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Re: RT in Hamburg, Germany - May 2016
Does anyone know if I do R/T can I later if needed do other treatment options. I think I read that hand surgeon do not like to do N/a after R/T is that true?? I know my surgeon is totally against me doing R/T he thinks it will not be useful and too many other health risks. I just don't want not to do R/t and request it later since the window is small with R/T but if I cant had other treatment down the road because I did R/t I might need to rethink it.. Thank you again
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06/30/2016 12:49
Stefan_K.
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06/30/2016 12:49
Stefan_K.
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Re: RT in Hamburg, Germany - May 2016
Unfortunately many specialists defend their specialty and reject most everything else. I can see why someone performing NA would prefer to do it on a hand which has not undergone radiation, as the radiation can stiffen/harden the skin and the tissue, making it more difficult for him to identify and manipulate what is left of the cord, if necessary. It may reduce the choice of doctors for you, but for the good doctors it should not be a problem.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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06/30/2016 13:00
onetopmom
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06/30/2016 13:00
onetopmom
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Re: RT in Hamburg, Germany - May 2016
Stef,
Did you have your R/T after your N/A?? It looks like that from your dates
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06/30/2016 13:18
Stefan_K.
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06/30/2016 13:18
Stefan_K.
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Re: RT in Hamburg, Germany - May 2016
onetopmom:
Stef,
Did you have your R/T after your N/A?? It looks like that from your dates
Yes, at the time my pinky bent I wasn't aware of RT and it was time for NA. If had to do it again at that stage, I would have had RT immediately after the NA to prevent the severed cord from reconnecting and pulling on the finger again after just a few months, and I would start with splinting immediately, too. But on my other hand I plan to do RT before the pinky tightens and hope to never have to have NA. Actually, when I went to Hamburg, it was for my left hand, but was told it was too early but something could still be done on my right hand even at that stage, which it did.
I have shared my experience at http://www.dupuytren-online.info/Forum_E...ris-0_1890.html and at http://www.dupuytren-online.info/Forum_E...edt-0_2161.html.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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06/30/2016 13:32
onetopmom
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06/30/2016 13:32
onetopmom
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Re: RT in Hamburg, Germany - May 2016
Thank you very interesting I didn't know that R/T could be done after a finger had contracture's. Everything I have read stated early N to N1 stages for R/T. I think I might to too early also will see next week with the MRI and oncologist. In right hand one small nodule with two cords toward fingers and one small cord toward wrist. Left hand one cord starting no nodules. I cant believe in a few months your finger was bending again after N/A. Last question after the R/T did you have any success slowing DD progression down and did you ever go back for R/T in the after hand.
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06/30/2016 14:43
Stefan_K.
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06/30/2016 14:43
Stefan_K.
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Re: RT in Hamburg, Germany - May 2016
onetopmom:
Thank you very interesting I didn't know that R/T could be done after a finger had contracture's. Everything I have read stated early N to N1 stages for R/T. I think I might to too early also will see next week with the MRI and oncologist. In right hand one small nodule with two cords toward fingers and one small cord toward wrist. Left hand one cord starting no nodules. I cant believe in a few months your finger was bending again after N/A. Last question after the R/T did you have any success slowing DD progression down and did you ever go back for R/T in the after hand.
Typically RT is done on a larger area of the hand and not just one finger, as more than one nodule or cord are present in different stages.You may not feel them, but the expert can. In my case the RT was recommended because one cord was in an active stage and others were likely about to form. I was surprised myself that Prof. S. thought it was not too late, and that it was too early for my other hand for which I went to see him.
What happened with my needled pinky was that it wasn't completely as straight as the other fingers and tension was still there. This is why it is often recommended to wear a split right away for at least some time. My doctor never told me about splints, I found out about them here, and I started using it when I felt that the cord was pulling again. My finger is pretty straight at the moment while wearing the splint every night. I'll never know how much the finger would have bent otherwise and I am in no hurry to find out. When a cord is severed, often it reconnects again sooner or later with fresh collagen, and some say that RT can help in these cases. I haven't seen scientific evidence for it but I believe that the RT I got 14 months later would have been even more effective if done immediately, before the cord formed and pulled again.
I attribute the shrinking of the main cord and nodule and the disappearance of smaller ones to the RT. The condition of the right hand is now stable. I have a very slight, slow progression in the left hand which I monitor so that I can go and have RT when either the nodule grows more or I feel tension starting in that finger.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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