| Lost password
800 users onlineYou are not loggend in.  Login
Dupuytren's reversed
 1 2 3 4 5
 1 2 3 4 5
08/09/2012 01:57
pdelee 
08/09/2012 01:57
pdelee 
Re: Dupuytren's reversed

Okay, thanks for the clarification Callie.

08/09/2012 04:04
w.currie 
08/09/2012 04:04
w.currie 
Re: Dupuytren's reversed

Hello everyone, the FOCC is part of Dr Johanna Budwig's anti-cancer protocol, easy to find on the web.There's a lot about it. Good to read about her, she was wonderful. It is composed of flaxseed oil & cottage cheese and lots of fresh produce.. Best to read what the experts say. It really heals the body after a lifetime of the Aussie version of the SAD (Standard American Diet) eating everything I fancied & doing far more damage than I ever realised. It takes the right kind of fats to undo the damage done by trans fats at cellular level.Remember Lorenzo's Oil? I never realised how pertinent the movie could be to everyone's lives. Reading what trans fats do to our cells will blow you away, especially as each damaged cell reproduces its damaged self, not a brand spanking new undamaged version of itself. That's why I have to heal, if it takes the rest of my life. I'm 72, feel lucky to be alive & thank providence for the internet, which has so much information, and so many good people. Cheers to all. Win.

08/09/2012 14:57
lori 
08/09/2012 14:57
lori 
Re: Dupuytren's reversed

Susan,

I have osteoarthritis in the hand that has DD. The knuckles below the fingernail have a hard knot that is easily felt and seen. When I had an MRI prior to RT the knots were easily seen and I asked Dr. Crimaldi if this was a nodule or what exactly it was. He was the one who told me it was osteoarthritis. In the winter or on humid days they crack and make all kinds of
noise. If I bend my fingers they crack. They can ache in the winter but for the most part I have no pain. The osteoarthritis and the DD occured in my hand at around the same time. My left hand does not have DD or osteoarthritis.

Hope this helps.

Lori

08/27/2012 05:29
stephenp 
08/27/2012 05:29
stephenp 
Re: Dupuytren's reversed

I think we need to be a little bit careful about DD and anecdotal observations. My experience is that the disease can progress in many different ways with pauses and apparent remissions which in my case only lasted for about 5 years before active progression which led me to RT.

Unfortunately medical research is littered with anecdotal reports that sometimes can lead people to get no or innapropriate treatment.

That is not to discourage or dissuade anyone from doing whatever might help.

Cheers

Stephen

08/27/2012 14:25
John656

not registered

08/27/2012 14:25
John656

not registered

Re: Dupuytren's reversed

Stephen,

Cautious? If we developed Dupuytren's while eating the typical modern foods which are known to cause obesity, autoimmune disorders, diabetes, heart disease, cancer, etc. then how could it be imprudent to clean up the diet in a way that would address all these known issues. There is certainly no evidence that it is harmful, and, as usual, no serious research on DD has used a diet study that goes all the way with a low fat diet free of animal products, low in unhealthy sugars, etc. So what have we got but anecdotal evidence? Not saying the diet will cure DD, but food is our most important environmental exposure. My recent flare up with DD has over the last few weeks calmed down to asymptomatic. It was slowly improving when I discontinued occasional use of an ED drug, but now improvement has been rapid. Just sayin' why not? What can it hurt, and if it it gives hope all the better.

08/27/2012 22:02
Vikingorigins 
08/27/2012 22:02
Vikingorigins 

Re: Dupuytren's reversed

Well, if there is such a substance as glucosamine, which is known to increase dd and ld, then there must be some substance out there that inhibates it. We just haven't found it yet. For the modern food, there is some trace of dupuytren appearing as far as 1000 years ago, so maybe the modern food is not the real problem. I have read that maybe some metals accumulated in organs could be a possible cause to look into. Hope is welcome.
But for all of you considering coloring your hair to trick the disease into beleiving you don't have viking genes, don't waste your time, i have tried it, it does'nt work (it's a joke)

Edited 08/28/12 03:05

08/28/2012 21:44
stephenp 
08/28/2012 21:44
stephenp 
Re: Dupuytren's reversed

I have worked in medical research for quite a few years, most recently leading a research centre working on wound repair (to which DD is somewhat related). I continue to be dismayed by the way in which health professionals and patients base their beliefs and treatments on anecdotal evidence or to put it another way "truthiness".

A few years back, mock-conservative TV pundit Stephen Colbert famously introduced the notion of “truthiness” into the political lexicon. As Colbert put it, truthiness pertains not to whether beliefs are true, but whether one “feels” they should be true.

There is no doubt that the current western high sugar, high salt, high fat western diet along with a lack of physical activity, makes a significant contribution to the epidemic of lifestyle diseases. However, given DDs strong genetic links, the history of the disease and its rather unpredictable episodic nature, I would hate to see people forego treatments that are supported by evidence in favour of approaches that are based on truthiness.

Having said that, anyone who reduces their consumption of sugar, salt and fat as well as other discretionary drugs from their lives is to be applauded. I only achieve marginal success in this area.

Cheers

Stephen

08/29/2012 00:22
Megan 
08/29/2012 00:22
Megan 
Re: Dupuytren's reversed

I don't think anyone is suggesting people should forgo treatment in lieu of a healthier diet with the belief that a healthier diet alone would reverse this disease. As with other medical conditions, there might be a combination of genetics as well as other triggers. How would people have known that glucosamine might be a problem except for anecdotal evidence that suggests that to be the case?

Megan

Edited 08/29/12 03:23

04/13/2013 15:48
Andrew 
04/13/2013 15:48
Andrew 
Re: Dupuytren's reversed

I think that some of the postings here are slightly missing the point when they go down the route of vitamins or vegetarianism and so forth. Since Dupuytren's is associated with diabetes (i.e. commoner in diabetics) it presumably has something to do with excessive sugar in the blood - or at least in some cases. So the first line of approach should be to avoid the sort of things that diabetics are supposed to avoid, such as fruit juices, for example, which pour a lot of sugar into the blood in a short time, even if from a vitamin point of view they are healthy. If you are getting plump round the middle (as I was at the time I started to develop Dupuytren's, as a result of drinking and eating too much - my trousers went up from 34 inches to 37) it is a sign that you are loading your blood with too much sugar - since building fat cells round the waist is one of the ways the body disposes of dangerously high sugar levels. Anyway, it about 8 years now since I started to develop symptoms in my right hand. I changed my diet; my trouser size is back at 34 inches; the Dupuytren's has gone away (apart from a very tiny lump) and not come back. I do not take vitamin pills, and consider them unhealthy. I am very glad I didn't listen to the doctor's and the surgeon's advice when both of them urged me to have an operation. I can't promise that the same improvement will happen to you if you change your diet (my case was obviously rather a mild one) but it is worth a try. I am 61 years old, 6 foot 3 tall, and quite skinny. I am currently living in Africa, where the weather is warm and there is lots of sunshine, which no doubt helps.

04/14/2013 22:14
stephenp 
04/14/2013 22:14
stephenp 
Re: Dupuytren's reversed

While I am still collecting and digesting the literature, I think the association is one way between diabetes and DD; ie c30% of diabetics are likely to have DD albeit a more mild form. As I understand the literature, people with DD are not more predisposed to become diabetic or have diabetes.

Re glucosamine etc, I cannot find evidence that the consumption of glucosamine or related supplements exacerbates the disease. However, there is evidence that DD tissue taken from patients after surgery contains abnormal levels of glycosaminoglycans. What this means is conjecture.

Anecdotal reports are all too common in health and may lead people down the wrong path, sometimes at high cost. Having said that, any positive non-harmful changes to diet and lifestyle are to be applauded. All the better if DD progression slows or stops. Only evidence, not anecdotes will show a relationship.

It is correct that a collection of anecdotes may lead to studies that generate data that may or may not support a particular treatment. As an example, as I understand the most recent data, there is not good evidence supporting the use of glucosamine supplements to treat arthritis.

It is also important to understand the difference between "marketing" studies and controlled trials. The boundaries are often intentionally blurred but controlled trials are the "gold standard" of evidence.

Treatments based on conviction may lead to the generation of evidence through trials. However, more often it does not.

 1 2 3 4 5
 1 2 3 4 5
glycosaminoglycans   reversed   symptoms   dupuytrens-contracture   Dupuytren’s   interesting   non-diabetics   diabetics   disproportionately   Dupuytren   ‘Dupuytren’s   evidence   malaria-drug-induced   “truthiness”   correlation   diabetes   disease   osteoarthritis   dupuytrens-a-new-theory   mock-conservative