Forum for Dupuytren's and Ledderhose disease

(for reference to Peyronie's disease please see below)

With our web site, we want to facilitate the communication between people suffering from Dupuytren and related diseases. Communicating individual experience can help others to handle their disease better, and it might help science to find new ways to cure Dupuytren. We want to encourage everyone to describe his or her experience with Dupuytren, what therapies have been used and whether or to what extent they helped or didn't help. On our web site, we so far describe three therapies in more detail but we have heard of, and in part also tried, other therapies as well. The more knowledge and experience we can collect, the more insight we get, and can inform better on good therapies.

Therefore please visit our Forum and share with us your experience!

Our forum is organized into several boards:

Dupuytren boad is for all posts referring to Dupuytren's contracture and its classical treatments. This boards includes topics like NA experience by Australian Users which hold a variety of posts.

Ledderhose board targets Ledderhose disease and includes topics like My PF/Ledderhose Experience .

Other therapies is a board for all discussions on new therapies and related ideas. It contains topics like Collagenase - where is it available?

Forum Archive 1 and Forum Archive 2 are archive boards holding older topics/threads for reference. They can be searched with the Search function of our forum software.

Click here to get the Forum start page .

 

Other forums on Dupuytren therapies that you might want to visit:

BioS_forum - A formerly very active forum, visited predominantly by US patients, mainly targeted to NA for Dupuytren, and available on the site of BioSpecifics Technologies Corp.. This forum had been subject to heavy spaming and now only has occasional posters. Still holds some valuable information but buried under many other posts.

French_NA_forum  - A patients' forum in French and English targeted to non-surgical treatment of the Dupuytren disease , and specifically to needle aponeurotomy (NA). Unfortunately this forum became heavily spamed and has been shut down completely for quite while now. We don't know whether it will be re-started.

Belgian&Dutch Forum - A forum in Flemish, managed by the Belgian ‘Vereniging voor ziekte van Dupuytren, Peyronie en Lederhose’ (link to website).

Ledderhose - Specialized on Ledderhose disease are the Yahoo groups on ledderhose_disease and plantar_fibromatosis (the latter being age restricted for whatever reason). You need to join the Yahoo groups to participate in those forums (but that's easy).

Peyronie's - A very active US forum, combined with an excellent web site on Peyronie's disease (IPP = Induratio Penis Plastica).

 

Page last modified: 04/12/2008