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22y/o too young for RT?
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04/25/15 15:50
Southpaw 
04/25/15 15:50
Southpaw 
22y/o too young for RT?

Hi everybody

22y/o Australian male here with early stage DD and LD, wondering if RT will be a safe treatment option for my condition.

Have had DD since age 19 with a cord in my right pinky and a few other small nodules on the same hand. What’s really causing the problem, however, is the nodule in the arch of my right foot, which I first noticed about 18 months ago and is causing increasing discomfort when walking.

The early onset of the conditions could be due partly to a family history of DD, LD and frozen shoulder, as well as the trauma my hands and feet were subjected to as a competitive runner and rugby player as a teenager.

Since it sounds like RT is the most effective method of treatment for DD and LD, I was just wondering if it is appropriate for young patients like myself. There have been a couple of posts on this forum that advise against it, but I’ve heard of a couple of success stories also.

I asked my GP about the use of RT on Dupuytren’s, but she told me it would result in me developing cancer, if not now, possibly 30 years or so down the track. I also understand there’s a risk of RT inhibiting the success of future surgeries.

What do you guys think? Do I opt for the RT, or shouldn’t I take the risk?

Cheers
Sp

04/25/15 18:44
spanishbuddha 

Administrator

04/25/15 18:44
spanishbuddha 

Administrator

Re: 22y/o too young for RT?

Hi Southpaw

I think caution is advised with RT at a young age, and probably you should discuss this with a radiologist. How severe is the pain and impact to you?

There have been past examples of young people having RT, perhaps one of the best is Gary of the Ledderhose blog, http://ledderhose.blogspot.co.uk/, but his condition was causing severe difficulty in walking, standing, and chronic pain. So there was a high and immediate need to improve his quality of life. He now runs and coaches badminton! Read his blog, perhaps contact him.

Best wishes
SB

04/26/15 05:00
Cherise 
04/26/15 05:00
Cherise 

Re: 22y/o too young for RT?

Southpaw:
Hi everybody

22y/o Australian male here with early stage DD and LD, wondering if RT will be a safe treatment option for my condition.

Have had DD since age 19 with a cord in my right pinky and a few other small nodules on the same hand. What’s really causing the problem, however, is the nodule in the arch of my right foot, which I first noticed about 18 months ago and is causing increasing discomfort when walking.

The early onset of the conditions could be due partly to a family history of DD, LD and frozen shoulder, as well as the trauma my hands and feet were subjected to as a competitive runner and rugby player as a teenager.

Since it sounds like RT is the most effective method of treatment for DD and LD, I was just wondering if it is appropriate for young patients like myself. There have been a couple of posts on this forum that advise against it, but I’ve heard of a couple of success stories also.

I asked my GP about the use of RT on Dupuytren’s, but she told me it would result in me developing cancer, if not now, possibly 30 years or so down the track. I also understand there’s a risk of RT inhibiting the success of future surgeries.

What do you guys think? Do I opt for the RT, or shouldn’t I take the risk?

Cheers
Sp


Hi you are far too young to have so many problems with DC. I am very sorry to hear that. I had many issues at a young age now in my late 40's decided to try surgery.

I tried surgery, NEEDLING or NA, no luck and Xiaflex finally worked . Straightened out my pinky from 130' . Yet it is still painful and wear splints nightly. The Surgery made all four fingers curl and it's not just the the pinky now, which orgionaly was the only finger with a slight curve. The hand surgeon said the surgery would prevent the finger from closing to a fist position.After surgery a flare or Keobner effect occurred which is quite common with DC. Surgery made all my fingers curl & the pinky was now in a fist position. Worse than I started with treatment. There are many treatments for DC depending on what stage of DC your in.

See a doctor who specializes in DC. & has worked with many patients thru many stages of DC. Very important! In some cases it's best to leave the nodules alone and will not agrevate the disease any further thru treatment. It's slow moving in most cases.

I saw another plastic hand surgeon who is experience with DC. I asked my doc about RT at my stage level four. His response was very cautious because the reaction to it many years from now the studies are not conclusive. RT is supposed to shrink the small nogules yet it could also cause more damaged to the hand. It's called the Keobner effect. This has been my issue for years thru surgery, NA, and Xiaflex a bio drug. Each time it's treated the disease stage has progressed which in many cases is common.

I wish you the best in your search for what's best for you. I have seen that everyone reacts differently to each treatment.

If you are not in pain have no issues that prevents you from daily living then if I were you I would leave it alone. No treatment until it is absolutely necessary. I had this in my hands for 20 years until my pink began to slowly curve.
I now wished I had left it alone. Now all my fingers are curling and it's a daily struggle to keep them useful and from curling up.

Please keep in mind everyone is different and from what most doctors I have seen said DC is best left alone , treatment will cause more issues. I have it in my feet and shoulders and have decided to leave them alone. Since I had one finger slightly curved been thru a variety of treatments which has made the whole hand and Palm much worse. I am grateful that Xiaflex a bio drug enzyme, did open my pinky from a closed position to mostly open. Yet the tendons are pulling harder and now it's a constant battle keeping all my fingers from curling. Where before I did anything my hand was fine with one slight pinky curl.

Glad to see your on this forum doing your research. There is a whole section on treatments on the forum do a search for explanations and outcomes for each one listed for evaluation.

Good Luck.

Edited 04/26/15 05:36

04/26/15 06:09
Seph 
04/26/15 06:09
Seph 

Re: 22y/o too young for RT?

Southpaw; 60 y/o NZ male living in Sydney. I echo the comments of SB and Cherise. You have a long journey ahead. Best hasten slowly.

I have a strong view on the nodule in the arch of you foot - leave it alone. Push through the pain and, in time, it will go away.

I developed a nodule in the arch of one foot in my early teens. Doctors operated not knowing what it was and within a short period it grew back twice the size followed by a new nodule in the arch of the other foot. I am not assuming a causal connection between the surgery and the other growth but it does seem to me that the more you interfere the more DD LD activity you get.

In any event by your age I had LD both feet and DC one hand and by age 30 the other hand was also affected.

With the LD lump I think the pain is caused by the nodule displacing tendons, nerves and other ligaments. Over time, if you push through, they will stretch or adjust and the pain goes away. At your age I had a issues with pain when I first started walking in the morning or when I started to run. At that time I did a bit of running, played field hockey and squash and was a regular in the gym. By the time I was 30 I had no pain and have had non since.

The other issue I had with my feet was when the nodules started rubbing on the bottom of my shoes. Blisters would form after I had been for a run. These I popped and applied methylated spirits. Today the nodules have a leathery skin covering like my heals and I have no issues.

NB I have also had bilateral frozen should. Now that is really painful. I suspect that there is a good chance you will get to enjoy that at some stage.

Good luck

04/26/15 07:02
Cherise 
04/26/15 07:02
Cherise 

Re: 22y/o too young for RT?

Seph:
Southpaw; 60 y/o NZ male living in Sydney. I echo the comments of SB and Cherise. You have a long journey ahead. Best hasten slowly.

I have a strong view on the nodule in the arch of you foot - leave it alone. Push through the pain and, in time, it will go away.

I developed a nodule in the arch of one foot in my early teens. Doctors operated not knowing what it was and within a short period it grew back twice the size followed by a new nodule in the arch of the other foot. I am not assuming a causal connection between the surgery and the other growth but it does seem to me that the more you interfere the more DD LD activity you get.

In any event by your age I had LD both feet and DC one hand and by age 30 the other hand was also affected.

With the LD lump I think the pain is caused by the nodule displacing tendons, nerves and other ligaments. Over time, if you push through, they will stretch or adjust and the pain goes away. At your age I had a issues with pain when I first started walking in the morning or when I started to run. At that time I did a bit of running, played field hockey and squash and was a regular in the gym. By the time I was 30 I had no pain and have had non since.

The other issue I had with my feet was when the nodules started rubbing on the bottom of my shoes. Blisters would form after I had been for a run. These I popped and applied methylated spirits. Today the nodules have a leathery skin covering like my heals and I have no issues.

NB I have also had bilateral frozen should. Now that is really painful. I suspect that there is a good chance you will get to enjoy that at some stage.

Good luck


Hello Seph,

Good advice. From the voice of experience. Thank you for sharing your experience with this devil of a disease.

The shoulder DC is painful does affect movement over a point, reaching back especially. As the dr in the joke says, " don't reach back and it won't hurt". Alrighty then! LOL

But nothing I can't live with considering the risk of alternative treatments and surgery would cause a much worse condition. I too left my feet alone. Wear special made well padded shoes and proper arches . A good soak in hot wax help release the tension in my feet and hands and hot microwave shoulder wraps!

Whatever works. That is the biggest question . Everyone responds differently to different treatments or thru the different stages of DC. Even seriously considering it's better left alone in some cases. In most cases!

Edited 04/26/15 07:05

04/26/15 12:45
wach 

Administrator

04/26/15 12:45
wach 

Administrator

Frozen shoulder treated

Hi Seph,

I had frozen shoulder twice. In both cases I had cortizone injected into the shoulder, most recently 3 weeks ago. After about a week my shoulder was not painful anymore and fully functional. According to my doctor the shots work the better the earlier applied.

Wolfgang

Seph:
...
NB I have also had bilateral frozen should. Now that is really painful. I suspect that there is a good chance you will get to enjoy that at some stage.

Good luck


Edited 04/26/15 12:46

04/26/15 15:56
Seph 
04/26/15 15:56
Seph 

Re: 22y/o too young for RT?

Wolfgang; I decided not to use cortizone as I understand there is a risk that it will weaken tendons; cartilage and other connective tissue. Since frozen shoulder self corrects over time I decided I would tough it out. I did try hydrodilatation on my left shoulder. Very uncomfortable and I'm not sure it helped. I wouldn't do it a second time.

I am right handed and I did get earlier improvement there by continuing to play tennis. I would take 4-5 nurofen tablets before playing then just go for it. Certain actions resulted in excruciating pain but it only lasted 10 seconds each time. In any event it self corrected and I now have no shoulder issues and, so far, it hasn't come back.

The bunch of decrepid individuals that I play tennis with are still better than me but the multiple shoulder, knee or and ankle alterations that they are having are adding up. I will stick to nurofen as my drug of choice and eventually I will beat them.

Seph

04/26/15 16:20
wach 

Administrator

04/26/15 16:20
wach 

Administrator

Re: 22y/o too young for RT?

Sounds like a good strategy, Seph! Tom Peters in his book "In Search of Excellence" stated "The only magic is brute consistence, persistence, and attention to detail". I am sure you will beat your friends!

For frozen shoulder waiting is definitely an option. My understanding is that it typically lasts only 2-3 years and then gets better, even without treatment. Mine was painful, I had difficulties lifting my arm, putting on a shirt or coat, and - probably worst of all - woke up every night when I happend to come into an inconvenient sleeping postition. Therefore I decided for 1 cortizone shot, which luckily cured my shoulder completely.

Wolfgang

Seph:
Wolfgang; I decided not to use cortizone as I understand there is a risk that it will weaken tendons; cartilage and other connective tissue. Since frozen shoulder self corrects over time I decided I would tough it out. I did try hydrodilatation on my left shoulder. Very uncomfortable and I'm not sure it helped. I wouldn't do it a second time.

I am right handed and I did get earlier improvement there by continuing to play tennis. I would take 4-5 nurofen tablets before playing then just go for it. Certain actions resulted in excruciating pain but it only lasted 10 seconds each time. In any event it self corrected and I now have no shoulder issues and, so far, it hasn't come back.

The bunch of decrepid individuals that I play tennis with are still better than me but the multiple shoulder, knee or and ankle alterations that they are having are adding up. I will stick to nurofen as my drug of choice and eventually I will beat them.

Seph

04/26/15 19:54
mikes 
04/26/15 19:54
mikes 
Re: 22y/o too young for RT?

I also suffered from frozen shoulder. My orthopedist advised against cortisone shots saying they do not work so that he no longer administers them for frozen shoulder. However, I told him I had had great success with physical therapy for other shoulder/knee/ankle injuries caused by sports activities. He readily agreed to a course of physical therapy for frozen shoulder which I believe tot have been very effective in terms of greatly speeding up the recovery process. In lieu of 1-2 years of pain I experienced 100% correction within 6 months of onset, probably about 95% correction within 90 days from starting physical therapy (app. 10-12 week duration given insurance constraints).

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