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6 weeks post open fasciectomy
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05/12/14 14:38
AnneD 
05/12/14 14:38
AnneD 
Re: 6 weeks post open fasciectomy

Re frozen shoulder:
I also developed a frozen shoulder after a carpal tunnel surgery a few years ago. It began a month later when I reached for a glass on a table to the side of the sofa and felt a searing pain in the anterior joint area. I was wondering if my shoulder had been twisted in surgery and that I hadn't noticed it sooner because I was babying the hand. Well I studied the shoulder trying to find a solution for the issue which quickly went from pain to restriction and didn't respond to therapy/ ultrasound and daily stretching. I learned two things- there is a link between dupuytrens and frozen shoulder, and a frozen shoulder can spontaneously "thaw" but it takes up to a year and a half, which mine did, and now it's normal. I cringe to think of injecting something risky when the problem may resolve on its own.

05/12/14 15:16
pia2some 
05/12/14 15:16
pia2some 
Re: 6 weeks post open fasciectomy

There is a link between DC and frozen shoulder. But adhesive capsulitis can also be caused by other conditions or situations. I developed it after having shoulder surgery. No amount of PT or waiting it out was causing it to go away. There was too much scar tissue in there to work it out. I had to have a second surgery in order to free up that joint. I'm not a fan of Xiaflex at all, so for that reason would not have opted for that as a treatment. But I can definitely see the appeal of using an injection over having another surgery.

~ dawn

05/27/14 05:28
moondanc 
05/27/14 05:28
moondanc 
Re: 6 weeks post open fasciectomy

zinkadoodle:
My doc compared it to a "bomb" going off in my hand.

That's the best description of Xiaflex I've ever seen. In my case a bomb going off in both hands. Prior to Xiaflex, only one finger affected; after Xiaflex--8 fingers, two hands.

zinkadoodle:
I think Badalamente and Hurst will find that Xiaflex will eventually be pulled from the market, as its effectiveness is no better than NA, and the side effects are much worse, not to mention the ridiculous expense of that drug. I hate it. NEVER AGAIN......


~~ Diane

If all of us urge our doctors to report the post-market Xiaflex side-effects to the FDA, the process will go much more quickly. Since I received mine in the trials I DID report it directly to FDA.

Another Diane

05/27/14 15:05
zinkadoodle 
05/27/14 15:05
zinkadoodle 
Re: 6 weeks post open fasciectomy

The Xiaflex injections I underwent were part of a multi cord study. They were testing for drug toxicity, for which there was none, and even though they already knew it, they had to go through the FDA formality. The problem with the drug trial though, was the surgeon didn't seem to give a rat's ass about my hand after the study was over. They were done with me. Period. The surgeon even stated that if I was having additional problems with DC and nodules, I should go back to the surgeon who did my left hand. I was stunned. I'm sure they reported to the FDA that the drug had no toxicity, so therefore was just a wonderful alternative to NA and surgery. What a scam for the developers, Drs. Badalamente and Hurst. Now, they're going for testing of Xiaflex on adhesive capsulitis. OMG!!!

~~ Diane

05/28/14 23:28
moondanc 
05/28/14 23:28
moondanc 
Re: 6 weeks post open fasciectomy

zinkadoodle:
The Xiaflex injections I underwent were part of a multi cord study. They were testing for drug toxicity, for which there was none, and even though they already knew it, they had to go through the FDA formality. The problem with the drug trial though, was the surgeon didn't seem to give a rat's ass about my hand after the study was over. They were done with me. Period. The surgeon even stated that if I was having additional problems with DC and nodules, I should go back to the surgeon who did my left hand.

~~ Diane

I was part of the Stage II study. They didn't give a rat's ass about my hand DURING the study. They refused to report pain I experienced subsequently saying the studying 'didn't allow use of the 'P' word." They also fudged on the measurements (and some of the results according to the hand therapist who made my splints in the study), guessed on measurements--i.e. didn't have all the required instruments at my appointment, etc. It may have just been poorly run at my institution--a prestigious one--but it sure made me not trust the study results. Also, the doctor who headed my study and a number of the other docs who headed studies were either consultants to or received payments from Auxillum.

Look at this study--three of the four authors have relationships with Auxillium including Dr. Denkler.

http://www.jhandsurg.org/article/S0363-5023(12)00886-6/abstract

09/13/19 18:51
iamjaxx 
09/13/19 18:51
iamjaxx 
Re: 6 weeks post open fasciectomy

OMG thank you for posting this 5 years ago! I just saw the thread and it gives me SUCH HOPE! I, too, am 6 weeks out from surgery on 3 fingers and thumb on my left (dominant) hand. Your description of the swelling and pain -- as well as input from others -- is exactly what I'm going through. The swelling in all fingers and palm makes it really hard to do any of my therapy exercises. I also had a nightmarish experience with Xiaflex three years prior to my recent surgery, and would NEVER recommend that for anyone. Just wanted to say THANK YOU to all of those who posted on your thread! You are a life-saver, and I feel such hope for future improvement.

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dermofasciectomy   recovery   specializes   surgeon   fasciectomy   dermofasciectomies   Bios-Robert-L-Howell   plastic   shoulder   because   measurements--i   Xiaflex   stonybrookmedicine   hand-subspecialty   experience   swelling   fingers   surgery   complications   experienced