yosh01:

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callie:

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Thank you. For some reason I was thinking the optimum period was four weeks and as late as 6 weeks. My hand shows zero effects from the treatment in the first round. It looks and feels exactly the same as before treatment. Should I be feeling/seeing something?

Callie, I didn't notice anything in my RT treated hand, even after both sessions for a few months. At first there was no change, then I began to think the nodules were getting smaller. For sure they were no longer getting bigger. Now, two years later, the progression in my hand has stopped in the radiated area, but I think I'm beginning to feel activity outside of the radiated area.

The real success story is the large and painful nodule in my foot that has all but disappeared after RT.

Hey Callie,

I too have a single nodule on my foot, (2-3cm) that does not bother me at all, and is not progressing, so I am leaving it alone.

My 2 small nodules, and 2 cords in a single hand have zero pain & discomfort,(nor itching/creepy feeling) although I am starting my RT treatment on Monday, as it has progressed over last 2-3 Months. So I am an good candidate...

My Rt guy seems to be taking the opposite approach as your person...he wants to do, 1-2cm around the disease, and only do a 3x4" area. (standard Dr. Seeg protocol)

Obviously I have the usual concerns posted on this forum: margins, total dosage, reoccurrence, etc. Dr. Seeg uses 2cm margins, so I'm not overly concerned with mine...it is the number of people in the US posting on this forum who have reoccurrence that concerns me. (supposedly Dr. Seeg has only seen 3-4 of all his hundreds of patients require this)

This has led some to believe he is an expert at sluething out disease that is not apparent to others....

My margins are set, my hand is marked, the mold made, and off I go on Monday....the hope is joining the 85% that have no reoccurrence!

eleven

I think both eleven40 and Callie have been doing their homework......

I have have had RT by Prof S. on both feet.......However, at the time I was alarmed at the large area of foot he treated......my treatment has been very successful with no new nodules......he diagnosed developing MD in both hands with very small nodules and cords which he declined to treat as they were not ready yet....when the hands are finally treated I believe that he will find ALL the disease......it already covers a large area of my hand and is almost undetectable by the untrained eye....

My point being that I would be happier over treating the whole hand than under treating when the time comes.....eleven40 is correct......many people seem to be developing new nodules outside the radiated area.....are the radiologists getting all the disease???.......I am unaware of significant side affects of treating a larger area.....I suspect the bigger evil is to to undertreat and therefore require further treatments in the future....

Wishing you the best with your treatments

Gazza

Yes lanod you are correct......I did nt know I had dups until prof s diagnosed....it took him all of 3 seconds.....but no evidence of active progression...hence no treatment....

Interesting discussion. I've seen the slides that explains a theory of how RT interrupts the disease during a proliferation phase, but nothing to explain changes that that would prevent future disease recurring in the radiated area.