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Dr Elizabeth Kurien
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10/04/12 04:33
remroberts 
10/04/12 04:33
remroberts 
Dr Elizabeth Kurien

Hello
I am new to the forum and considering radiation therapy as I have dupuytrens on both hands. Has anyone had experience with Dr Elizabeth Kurien in Calgary for their radiation therapy? If so I would appreciate any information you can provide.
Thanks
Richard

08/28/13 20:43
JeffM 
08/28/13 20:43
JeffM 
Re: Dr Elizabeth Kurien

I have just been recently diagnosed and living in Calgary. I am curious if you ever had the Radiation Therapy with Dr. Kurien. My Doctor didn't even mention the possibility of using this therapy and after reading some of the entries in this forum, I am very curious to find out more about this therapy so that I can stop the progression.

10/02/15 19:26
KEH 
10/02/15 19:26
KEH 
Re: Dr Elizabeth Kurien

Kat
What results have you had with radiation therapy and Dr. Kurien? I am going to see her for both Dupuytrens and Ledderhose.
Thanks

10/02/15 19:45
JeffM 
10/02/15 19:45
JeffM 
Re: Dr Elizabeth Kurien

I have now completed the first round of radiation on both of my feet. Last year I traveled to Hamburg to have both hands treated by Dr. Seegenschmidt, so I think I have a good frame of reference. The treatments in Germany went very well and have completely stopped the progression in my hands. My feet were not active at the time of my trip to Germany, so I was not able to treat my feet at the same time. This year I started having the telltale tingling and pain in my feet, so had my doctor refer me to Dr. Kurien. I found that Dr Kurien is very knowledgeable about the disease and from what I understand she is using the same treatment protocols as those developed by Dr S in Germany. I go back for my second round on my feet in November and am hoping for the best. I am hopeful that I will have the same results as on my hands!

10/26/15 17:01
KEH 
10/26/15 17:01
KEH 
Re: Dr Elizabeth Kurien

Kat
Thank you for your help. Good luck in November. I saw Dr. Kurien who will start treatment on my hand and both feet in November, as well!

06/03/16 16:16
jbruce 
06/03/16 16:16
jbruce 
Re: Dr Elizabeth Kurien

Now that time has passed, can you describe your experience with Dr. Kurien and what results you noticed ? Anyone else been to Dr. Kurien for RT ?

06/03/16 17:16
KEH 
06/03/16 17:16
KEH 
Re: Dr Elizabeth Kurien

Kat

I'd recommend Dr. Kurien. Dr. K administered the first round of RT in Calgary but I finished up the second round with Dr. I. Mohamad who is in my hometown of Kelowna.
During our consult she answered all my questions and I had a lot of questions. (I took a list from DART-Dupuytrens Advocates for Radiation Therapy on FaceBook).
She uses Dr. Seegenschmidt's proctol.
She found nodules in my hand that I couldn't feel so I believe she is competent in mapping.
Her team is excellent. Very professional.
She gave me considerable help in transferring treatment from Calgary to Kelowna, then forwarded her notes, drawings and shields to Dr. Mohamad so that he treated the exact same fields.
The round 1 side effects I experienced are common . A slight 'sunburn'.
During round two the skin on one very large thick LD nodule looked like it might blister. On the advise of my RO I removed the orthotic from my left shoe to reduce the constant rubbing. I discontinued the petroleum based ointment I was using called Aquaphor. The skin did not get any worse after that and healed quickly.
Pain was reduced during the first round of treatments. RT reduces inflammation which reduces pain.
I'm walking further and standing longer than before RT and have hope for further improvement. The nodules in my hand are softer. My disease is not currently active.
Does that answer your questions?
K

06/03/16 17:22
jbruce 
06/03/16 17:22
jbruce 
Re: Dr Elizabeth Kurien

Thanks very much Kat. That helps a lot. Mine is only in my right hand so far so am hoping the healing will go smoothly.

06/03/16 18:18
newman 
06/03/16 18:18
newman 

Re: Dr Elizabeth Kurien

Hi when I spoke with Prof Seegenschmiedt in 2007 he made mention to avoid petroleum products for 4 weeks or so and to use a 10% urea cream. Just for information.

Edited 06/04/16 17:27

06/03/16 18:32
KEH 
06/03/16 18:32
KEH 
Re: Dr Elizabeth Kurien

Kat
So you spoke to Dr. S! Are you trying to decide whether to travel to go to him or have treatment here in Canada?
I should have known better than to use Aquaphor during treatment. A women who is trusted highly recommends it on some forums. I showed poor judgement blindly following her advise and so now I harp on it. It's great for dry skin following treatment and I use Aquaphor now.
Kat

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treatment   contracture   electro-hyperthermia   progression   therapy   currently   mis-handling   DART-Dupuytrens   transferring   treatments   radiation   Seegenschmiedt   Seegenschmidt   discontinued   complications   knowledgeable   information   Elizabeth   experienced   radiotherapy