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Dupuytren's and Boutonniere Deformity?
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09/28/20 22:01
rockinroller 
09/28/20 22:01
rockinroller 
Dupuytren's and Boutonniere Deformity?

Does anyone besides me suffer from boutonniere deformity on a finger treated for DD? My little and adjoining ring finger were treated with Xiaflex a couple of years ago and while both are reasonably erect, the little finger has a horrible deformity called boutonniere deformity. I am a pianist and unfortunately both the DD and now this deformity severely impact my ability to play correctly. I just was curious if anyone on this forum had a similar response to the DD treatment. By the way, there's no surgeon (at least not in my area (USA-Michigan) that has offered any solution to the deformity in terms of surgery, etc. Frankly I am not sure I am any better off with the boutonniere deformity than I was with DD (although that little finger was horribly encased with collagen cords and the DD probably could not have been treated any other way).

09/29/20 08:21
spanishbuddha 

Administrator

09/29/20 08:21
spanishbuddha 

Administrator

Re: Dupuytren's and Boutonniere Deformity?

Sorry to hear this (has developed further). Looking back at your history you asked about it before. There are treatments for boutonniere usually starting with splinting, but maybe it's too late now? I would ask your surgeon if they think, given your history and past treatment, if they think it can be improved or even the possibility of surgical repair.

10/09/20 21:56
rockinroller 
10/09/20 21:56
rockinroller 
Re: Dupuytren's and Boutonniere Deformity?

I had a virtual visit with the surgeon who performed the Xiaflex treatment two years ago on that finger. He said that while progressing casting of the finger MIGHT assist it in straightening, it would be temporary at best. His expertise is hand surgery but even he admitted there's nothing he could do to mitigate that deformity. It's unfortunate that my little finger was the recipient of so many cords from the Dupuytrens, that caused the traumatic damage. Honestly I am not sure the DD would have been better to have lived with then the end-result following treatment.

09/01/21 09:40
Livorsi 
09/01/21 09:40
Livorsi 
Re: Dupuytren's and Boutonniere Deformity?

I have an unusual manifestation of a hyperextended DIP (since I was a toddler) and my PIP prefers slight flexion but it is actively and passively correctable. I have had an ultrasound scan and my central slip is intact and when I try ORL stretches I have limits but more on only the left side of the DIP joint. Ultrasound also showed moderate tendonesis volarly on DIP joint. As I read more, it seems it may be an atypical Dupeytreyns. That led me to your post and I had just read about collegnese injections in the DIP transverse ligaments to reduce joint contractures. I thought this moght help you as a pianist.

09/03/21 21:01
rockinroller 
09/03/21 21:01
rockinroller 
Re: Dupuytren's and Boutonniere Deformity?

Livorsi:
I have an unusual manifestation of a hyperextended DIP (since I was a toddler) and my PIP prefers slight flexion but it is actively and passively correctable. I have had an ultrasound scan and my central slip is intact and when I try ORL stretches I have limits but more on only the left side of the DIP joint. Ultrasound also showed moderate tendonesis volarly on DIP joint. As I read more, it seems it may be an atypical Dupeytreyns. That led me to your post and I had just read about collegnese injections in the DIP transverse ligaments to reduce joint contractures. I thought this moght help you as a pianist.

Thanks for the advice. Do you have a link to provide for that article on collagenase treating Boutonniere Deformity?

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treatment   hyperextended   Boutonniere   unfortunate   manifestation   Deformity   straightening   unfortunately   Dupeytreyns   transverse   tendonesis   Dupuytren   correctable   injections   ultrasound   contractures   USA-Michigan   possibility   collegnese   collagenase