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In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel
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08/03/16 22:18
Angetori 
08/03/16 22:18
Angetori 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hi All,
I spoke to my radiologist about my questions regarding my carpal tunnel and surgery. He is in agreement with starting the most conservative approach through splinting and OT exercises If surgery is needed he told me that in many instances surgery is done after radiation for things such as reoccurring cancer's and tumors , so in those instances he has seen it done

However as far as the hand, he told me to ask my hand specialist . I explained to him about my bad experience with my last hand specialist and he recommended me to another hand specialist that is a proponent of radiation for DD.

So off I go to another doctors appointment on August 19 In the meantime i am splinting and starting my OT exercises and trying to take the inflammation down from my wrist.

The OT that I went to today suggested possibly that the carpal tunnel has something to do with my DD Possibly the fascia around my wrist is becoming fibrotic and the only way to tell that is through an MRI That is a question I will ask again Hand specialist when I go on the 19th. I didn't know that the nodules from DD can extend down by my carpal Tonnele nerves. YIKES !!!!
Let's hope that's not the case

I will keep you posted

08/03/16 22:19
Angetori 
08/03/16 22:19
Angetori 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Please excuse the typo's on my last message I'm speaking for my iPad to type and my wrist hurts too much to go back to correct

08/03/16 23:22
nanshands 
08/03/16 23:22
nanshands 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hi Angetori,

Sounds like you’re making headway! What I do for my carpal tunnel that you asked about is very similar to what I do to prevent problems with my DD. I was told after my RT the only thing I shouldn’t do is lift or pull heavy objects. That seems to also apply to reducing pain with my CT. Though my CT came first it has never been too much of an issue for me. Played golf and gardened for years with it. Rested it when needed and worked on CT exercises that I pulled off the Internet. After getting DD, however, my hands are much weaker; golf and gardening are out! Gripping difficult, as well as pulling a club through grass and dirt or yanking and digging in the yard.

Since I never had these limitations with my CT or pain in my hand, just wrist, before getting DD I believe majority of my issues are related to DD.

I used to splint occasionally for my CT to rest my wrists, but now my cord from DD in my thumb is too tight, and the splint hurts to wear. I do recommend massage combined with CT stretches. Focus on the elbow down.

Isometrics a good way to go for maintaining arm and shoulder strength, unless you are fortunate to have access to a pool!

Hope that helps a bit. This is said a lot on the Forum, though we all share in this disease, we also seem to each experience it differently.

Nan

08/03/16 23:30
nanshands 
08/03/16 23:30
nanshands 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

P.S. Seems like a few years ago I read a discussion on the Forum about nodules extending down into the wrist. You might want to ask if anyone else has heard about that or could weigh-in on the subject?

Nan

08/04/16 01:17
Angetori 
08/04/16 01:17
Angetori 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hi Nan ,
Thanks for all your great information I will follow through with your suggestions I was wondering if you ever had NA or collagen injections into your cords ? If not , maybe that would help some of the tightness and pain that you feel from your cords

I will definitely post that other question about wrist nodules . I am leaving for vacation tonight and will get back on Monday and will post them.

It's so true , the more I'm on this forum i see it does affect everybody differently.
I am so grateful for this forum and to be able to talk to people like you and get feedback. We can all learn from each other's experiences .

Jeanne

08/04/16 20:35
newman 
08/04/16 20:35
newman 

Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hi you may be aware that women are three times more susceptible to Carpal Tunnel Syndrome than men. Try typing Carpal Tunnel in the search box at the top and read the literature. The condition C.T. causing Dupuytren's is reported to be rare.
Are you aware that radiotherapy is used to treat nodules in the Active stage and not beneficial in the treatment of cords.
The area treated usually extends just outside of the known nodule or group of nodules. I have not heard of the wrist being irradiated . Regards.

08/05/16 03:18
Angetori 
08/05/16 03:18
Angetori 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hi Newman ,
Thanks for your response .
Yes I have read that carpal tunnel is more common in women.
I didn't think my carpal tunnel caused my DD , I think my DD might be causiing my carpal tunnel.
I don't have any cords as of yet, I just have about four nodules in the middle of my palm and two alongside my ring finger and index finger My wrist isn't a radiated it's just where my wrist meets my palm.

08/08/16 19:44
Daiseypaws 
08/08/16 19:44
Daiseypaws 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

I sprained my wrist a few months ago, it didn't seem to get any better, and the pain and swelling moved to my hand and
my index finger and thumb. Then my palm was getting sore. Ive had serveral acupuncture appointments but didn't get any
relief so I just started using Rolfing and I am getting some relief, and I am thinking this is the answer for me.

08/08/16 20:59
nanshands 
08/08/16 20:59
nanshands 
Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

Hello Jeanne,

Hope you had a nice vacation. You asked me about NA or collagen injections, if I had considered either? At this point though my cords are tightening, and pull at times or simply become irritated from too much use, I have minimal contracture. Not enough for NA or collagen injections to be considered. IF the time comes, which I hope it will not, I think NA a more likely option that I would pursue.

Nan

Edited 08/08/16 21:00

08/08/16 21:50
Stefan_K. 
08/08/16 21:50
Stefan_K. 

Re: In the middle of radiation treatments for DD and just got diagnosed with Carple Tunnel

nanshands:
Hello Jeanne,

Hope you had a nice vacation. You asked me about NA or collagen injections, if I had considered either? At this point though my cords are tightening, and pull at times or simply become irritated from too much use, I have minimal contracture. Not enough for NA or collagen injections to be considered. IF the time comes, which I hope it will not, I think NA a more likely option that I would pursue.

Nan
Nan, if you can find a comfortable night splint which you stand to wear, it may be worth trying to avoid contracture. I've been doing it for more than a year now and credit it with sparing me another NA for the moment. Mine is home-made consisting simply of a cycling glove (cut off tips) into which I insert a wooden stick which can move a little and is just tight enough to prevent my hand from making a fist at night and I don't even feel it.

Stef

[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]

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complications   anti-inflammatory   injections   anti-inflammatories   conservative   radiotherapy   diagnosed   experience   Dupuytren   radiotherapists   surgery   splinting   radiologist   digital-palmar   nodules   treatments   radiation   progression   Contracture   specialist