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Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.
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01/11/22 18:55
FrederickGramsci 
01/11/22 18:55
FrederickGramsci 
Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

Hello everyone,

Background:
I recently got diagnosed with Dupuytrens at age 27. I’m a software engineer, and the only harsh things I do with my hands are weight lifting and rock climbing. Although the rock climbing has stopped since covid started and I noticed the first nodule almost 2 years after not climbing at all. No injury or anything. I’m also not fully white. My 23andme has me at around 55% Caucasian and that is all Southern European (mainly Spanish, some Sardinian).
I was a smoker, then a vaper, now have been using rather high amounts of nicotine pouches. I’ve seen smoking as a risk factor but I can’t get a clear answer on whether that means the smoke itself or the nicotine. I did begin cutting down and plan on Quitting after a brief taper down. I also consume kratom regularly as a way to self medicate ADHD and for some general back pain. I drink a few times a year and only a few beers or so. I also consume cannabis (vaporized or in edibles) daily.

Current disease progress:
The current progression of the disease is thankfully very mild so far. I have one nodule in my palm under my ring finger. There is no pain (it’s a bit tender if I really press on it) and I have full range of motion (table test is good, I can move the finger as well as the healthy hand, etc).

What I’ve tried so far:
I’m aware most home remedies or supplements have mixed results at best. That said I’ve started taking the following just in case.
- omega 3
- multiple medicinal mushrooms; for general health but rhe whole “adaptogen” claim made me think it could possibly be helpful(Reishi, turkey tail, lionsmane, chagga).
- magnesium
- vitamin D
- B vitamin complex
- NAC
- I’ve also drastically changed my diet. Basically Keto with some carbs around workouts.

I can’t speak to whether these things have helped or not as I just got diagnosed and just started everything about a week ago. The bump appeared a few months ago but hasn’t changed for the worse or better. That said I have noticed a slight change but it’s so slight it could be in my head due to the stress of the diagnosis (this is what my partner says. She thinks it looks the same).

I also made an appointment with an Radiation therapist in a month and am looking to see if radiation therapy is right for me. Thankfully the place explicitly says they treat Dupuytrens so I feel very lucky as I know many on this forum don’t have easy access to doctors with relevant knowledge.


Questions:
I mainly have one question about a possible alternative treatment. As mentioned before I consume and have access to cannabis. Some time ago a guy named Rick Simpson made a lot of waves by claiming his oil could cure a wide variety of diseases. He claims to have cured his own skin cancer with a topical application of his oil. I know what you’re thinking: grifter. But what i found very interesting is that he’s not selling anything. He’s just telling people his experience and gives them the recipe. He even cautions that you shouldn’t buy it from anyone and make it yourself. In his community he makes it and gives it out to people for free. If it’s a grift, I don’t see how he’s making money.

There have been in vitro and general lab studies done with cannabis showing a lot of promise with similar conditions. I’m aware dups isn’t cancer, but from my (laymen’s) understanding, it seems to be a similar condition where the cells don’t know when to stop reproducing. There have been many anecdotal reports of people suing the oil to treat a wide variety of conditions. While I’m very skeptical, I’m hopeful.

I’ve also found two examples of people claiming to cure their Dupuytrens using cannabis oil. Of course these are anecdotal examples with no scientific oversight, but they’re very interesting.

Here is a case study: https://www.cannabisclinicians.org/resou.../12/?gvid=12089

And here is someone who claims they used it on themselves:
https://forum.grasscity.com/threads/dupu...inking.1183263/

I’m typically the type of person who thinks alternative/natural medicines that work… get extracted into pills and are just called “medicine” haha. Yet cannabis seems to be an outlier as we’ve all seen the variety of uses it has, which have been valid enough to undo decades of the drug war in the Us. So maybe there’s something here.

I’m making my own RIck Simpson Oil and plan to follow the regiment from the case study I linked: nightly application covered with a glove.

So the question is, have any of your successfully treated your Dupuytrens with cannabis? Or have you heard of anyone that has? Also any general advice would be greatly appreciated. I’m not going to lie, I’ve been taking this really hard. Haven’t cried in years haha.

Thank you all for your time and your replies. I’ll be sure to update everyone on the success/failure of the Rick Simpson oil.

01/11/22 19:15
spanishbuddha 

Administrator

01/11/22 19:15
spanishbuddha 

Administrator

Re: Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

Hi Rick

Welcome to the club and forum. Weightlifters and rock climbers seem to be quite well represented in the forum of DD patients, probably due to the regular (micro) trauma caused to the hands and with an underlying genetic pre-disposition. We get quite a few individual reports of people having success with different things in dealing with DD, examples that come to mind include castor oil, boron, forms of cannabis, DMSO, firm stretching and kneading, golden paste turmeric pastes, magnesium oil, vitamin e and so, and jon. I have no doubt they help the people reporting them, but also bear in mind many cases of DD only proceed up to a point, a few nodules, no contracture, or go in cycles of activity and then dormancy, so it's hard to separate the real benefits versus slow progression or non that would have occurred anyway. I have my own one off private protocol for managing DD, but also turned the specialists with more experience, and had RT just as you are investigating.

I don't have the experience with cannabis you ask for, try it whilst you also keep a record of symptoms, and progression, and discuss the possibility of RT at the appropriate time if it becomes troublesome. Keep up the sports but if possible take more precautions to avoid harsh trauma to the hands.

Best wishes SB

01/11/22 19:20
Stefan_K. 
01/11/22 19:20
Stefan_K. 

Re: Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

Hi Frederick, welcome to the club...

I can't speak to the oil, keto & co. but if I was you (which I am of course not) I'd pursue RT, limit the weight lifting and rock climbing and stop the nicotine as you have already planned. Personally I'd not spend time on the oil. Good luck,

Stef

[59, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

01/11/22 19:26
FrederickGramsci 
01/11/22 19:26
FrederickGramsci 
Re: Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

Hi SB,

Thank you for your reply! I’ve noticed the high incidence among rock climbers and weightlifters. And I thought the worst that would come of that was getting stuck on a wall in a storm haha.

Thank you for the advice. I’ve bought some padded gloves and some weight lifting hooks for weightlifting and I plan on climbing much more conservatively than I have up until now. Hopefully that’s enough to avoid exacerbating things.

I’m hoping I have one of those cases that just stops with nodules, but given the age I got it, it seems likely that I have the aggressive variety. Fingers crossed I don’t though.

Well I guess I’ll continue with the regiment I started and I’ll be sure to update the community with my results, good or bad. I hoping all the cannabis hippies were right :)

Thank you for your time

01/11/22 19:34
FrederickGramsci 
01/11/22 19:34
FrederickGramsci 
Re: Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

Hi Stef,

Thank you for the input! I guess it’s very much a wait and see situation. I just figured I’d throw anything and everything at it, since I live in a legal state and can grow, it’s basically free so I figured I’d try.

Thanks,

02/03/22 02:10
Honir 
02/03/22 02:10
Honir 
Re: Just got diagnosed with Dupuytrens. General questions and a specific one about cannabis.

In my personal experience, it's definitely the nicotine. I'm not sure if combustion adds to it but I saw extreme differences in growth when using nicotine in a vaporizer and after quitting nicotine.

I've also noticed magnesium helps a lot and it's important to get a good quality source, personally I use "doctors best" brand magnesium and find it very helpful. Diet I find to also be very important. I try to eat mainly whole foods and avoid added sugars and unhealthy oils. I've also read that vitamin E can be quite helpful.

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“medicine”   experience   progression   specific   Weightlifters   alternative   contracture   investigating   pre-disposition   questions   cannabis   “adaptogen”   understanding   nicotine   General   Dupuytrens   weightlifting   cannabisclinicians   diagnosed   conservatively