| New to Dups with a few questions. |
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10/17/2018 13:44
thetutulady 
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10/17/2018 13:44
thetutulady
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New to Dups with a few questions.
Hi All,
I have spent a lot of time reading threads on this forum and it has been so helpful.
I have some questions and I’m hoping some of you might able help.
1) Any doctor recommendations for Louisville, KY (or Lexington)? Particularly if they will perform RT.
2) Dups is obvious in my right hand. But I have two other hard nodules on my body that I have noticed for years but dismissed them as muscular knots from stress but now I wonder if it not that simple:
a) One is at the base of my skull on the right side of first couple of vertebrae. Could it be related to Dups?
B) The other nodule is in arch of my foot. I had severe pain in that foot last year on the top of my foot across the area below the toes. It was so bad I was thinking I could have broken it somehow. X-ray showed no issue and only my very high arches caught the doctors’s attention. I still get weird pain there, especially around the fourth toe. Any thoughts on this?
Any advice is appreciated!
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10/17/2018 13:57
thetutulady
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10/17/2018 13:57
thetutulady
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Re: New to Dups with a few questions.
Oh, three more questions:
3) does Dups correlate with hyperflexibity. My nickname as child was “Noodle.” My daughter’s PT noticed it a few years ago and asked if I had ever been looked at for a connective tissue disorder. I had never heard of that before.
4) I have two hard nodules on my right hand ring finger. A very hard bump on the knuckle that I thought was weird for years. And one on the palm below the ring finger. It seemed to go overnight from small invisible lump to highly noticeable V pucker with a cord leading to the center of my palm. Does this bode badly for me?
5) I have small lump on my thyroid that had to be biopsies a couple years ago. It is benign. Should I bring this up again to a doctor?
Forgot to say, I’m a 45 y/o female and until now my only problem was infrequent idiopathic pancreatitis.
Thanks for reading my novel :)
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10/17/2018 20:36
spanishbuddha  Administrator
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10/17/2018 20:36
spanishbuddha Administrator
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Re: New to Dups with a few questions.
thetutulady:
Hi All,
I have spent a lot of time reading threads on this forum and it has been so helpful.
I have some questions and I’m hoping some of you might able help.
1) Any doctor recommendations for Louisville, KY (or Lexington)? Particularly if they will perform RT.
2) Dups is obvious in my right hand. But I have two other hard nodules on my body that I have noticed for years but dismissed them as muscular knots from stress but now I wonder if it not that simple:
a) One is at the base of my skull on the right side of first couple of vertebrae. Could it be related to Dups?
B) The other nodule is in arch of my foot. I had severe pain in that foot last year on the top of my foot across the area below the toes. It was so bad I was thinking I could have broken it somehow. X-ray showed no issue and only my very high arches caught the doctors’s attention. I still get weird pain there, especially around the fourth toe. Any thoughts on this?
Any advice is appreciated!
Hi tutulady
Have you had a confirmed diagnosis by a hand specialist?
1 we don’t have a radiologist listed on our website https://www.dupuytren-online.info/radiotherapy_clinics.htmlin KY, see also the DART list http://www.dupuytrens.club, but many in he US contact their nearest oncology centre and ask about treatment there. You could also ask on the DART FB group.
2 I think you should get lumps on the body checked out by a Dr. Lumps in th arch of th feet may well be Ledderhose, see a podiatrist or Dr. Lumps on the knuckles are likely Garrods pads.
....continued
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10/17/2018 20:54
spanishbuddha Administrator
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10/17/2018 20:54
spanishbuddha Administrator
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Re: New to Dups with a few questions.
thetutulady:
Oh, three more questions:
3) does Dups correlate with hyperflexibity. My nickname as child was “Noodle.” My daughter’s PT noticed it a few years ago and asked if I had ever been looked at for a connective tissue disorder. I had never heard of that before.
4) I have two hard nodules on my right hand ring finger. A very hard bump on the knuckle that I thought was weird for years. And one on the palm below the ring finger. It seemed to go overnight from small invisible lump to highly noticeable V pucker with a cord leading to the center of my palm. Does this bode badly for me?
5) I have small lump on my thyroid that had to be biopsies a couple years ago. It is benign. Should I bring this up again to a doctor?
Forgot to say, I’m a 45 y/o female and until now my only problem was infrequent idiopathic pancreatitis.
Thanks for reading my novel :)
3 I’m not aware of a direct link with hyperflexibility, but it does come up occasionally with other people, see for example https://www.dupuytren-online.info/Forum_...k-0_1570.html#3. Maybe there is a link with trauma https://www.dupuytren-online.info/dupuyt...ure_trauma.html? The related fibrosis conditions are frozen shoulder, Ledderhosen and Peyronies.
4 I’m not sure what your question is, it’s almost impossible to predict how DD will progress in an individual. It often either gallops away, or progresses slowly, or goes in cycles active to dormant. There are related risk factors http://dupuytrens-society.org.uk/information/risk-factors/ Just like many other conditions, people present with all sorts of other pre-existing conditions, but the old adage that correlation does not imply causation remains until a link is proven.
5 I’m not sure how relevant this is, have there been any changes, have you had thyroid levels checked lately?
Best wishes SB
Edited to add Peyronies
Edited 10/19/18 19:44
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10/19/2018 13:30
spanishbuddha Administrator
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10/19/2018 13:30
spanishbuddha Administrator
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Re: New to Dups with a few questions.
Dr Hoffman has just published his clinics address on FB. Includes KY.
Radiotherapy Centers of Kentuckiana.
We have two locations, one in Kentucky and one in Indiana.
Kentucky:
3920 B DuPont Square
Louisville, KY 40207
502. 409. 9701.
Indiana:
1322 Spring Street
Jeffersonville, IN 47218
812. 285. 6000.
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10/19/2018 15:27
thetutulady
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10/19/2018 15:27
thetutulady
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Re: New to Dups with a few questions.
Thanks spanishbudda for the links and contact info for Dr Hochman. I really appreciate your time spent to address each question.
I’m lurking and reading and trying to understand what I need to do. I’m thankful this is a benign condition as unpleasant as it might be.
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