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New to forum-want to offer some advice and encouragement
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10/18/2018 13:16
BEC 
10/18/2018 13:16
BEC 
New to forum-want to offer some advice and encouragement

Diagnosed 10 years ago in Arkansas by a hand surgeon who told me it was caused by drinking alcohol, and surgery was my only option. Good grief! Happily I found better advice on forums like this, and was arranging for an expensive trip to Germany to try radiation therapy. But first I contacted radiology centers around Arkansas.

One center in Little Rock had never used RT on Dupuytren but they were intrigued, and willing to give it a try! After a series of radiation treatments (even covered under my insurance) the very painful bumps on my right hand stopped enlarging, and by five years later they had greatly diminished. (I did stop eating gluten about 2 years in since I was diagnosed with Celiac disease, but have no idea if that helped. I sure wish more could be done re: Dupuytren/autoimmune diseases.)

Another five years in, and so far still diminished with no further enlargement. So if you are newly diagnosed, and want to try RT, it might be worth your time to download some of the articles on RT, and call or bring them by radiation therapy clinics.

10/18/2018 16:42
Stefan_K. 
10/18/2018 16:42
Stefan_K. 

Re: New to forum-want to offer some advice and encouragement

Always nice to read success stories like yours.

Stef

[56, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

10/18/2018 18:14
spanishbuddha 

Administrator

10/18/2018 18:14
spanishbuddha 

Administrator

Re: New to forum-want to offer some advice and encouragement

Thanks for sharing this BEC, long may your success continue. Is the radiologist listed on our pages? Send me the details if not, PM is OK.

10/19/2018 15:29
thetutulady 
10/19/2018 15:29
thetutulady 
Re: New to forum-want to offer some advice and encouragement

Thank you for sharing. This is new to me and it helps to hear an encouraging word.

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Dupuytren   radiologist   encouraging   insurance   treatments   forum-want   encouragement   contracture   autoimmune   Diagnosed   intrigued   diagnosis   enlargement   diminished   radiotherapy   expensive   radiology   Arkansas   radiation   enlarging