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Personal experience
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10/19/2012 03:18
Seph 
10/19/2012 03:18
Seph 

Re: Personal experience

mobaygirl; I think question is "Do you have DD" or is there something else going on. Some people with DD do just get one lump that is tidy and pulls one finger in but I don't think this is the norm. Over time most people get a bit more distortion with DD but no pain.

Attached is an image of my right hand as it is today. This is it at its worst. I am booked for NA in 3 weeks. So back to normal in 3 weeks and 20 minutes.

Seph

Attachment
S Right.jpg S Right.jpg (37x)

Mime-Type: image/jpeg, 415 kB

    10/19/2012 04:53
    switcombe 
    10/19/2012 04:53
    switcombe 
    Re: Personal experience

    Seph, Dr. Kline, from Boise, ID had contractions like yours. He had RT after his last NA and the contractions haven't come back. That was after having had NA repeatedly. I think it's been 5+ years since his RT. He's mentioned on this site as a physician who has a lot of experience with doing NA. I saw him in Portland several months ago and he recommended RT for my DD.

      10/19/2012 05:12
      Seph 
      10/19/2012 05:12
      Seph 

      Re: Personal experience

      Thanks switcombe; I have been thinking about RT for the next time it starts to come back. I have already had NA done twice in the past 5 years.

      Seph

        10/19/2012 12:25
        mobaygirl 
        10/19/2012 12:25
        mobaygirl 
        Re: Personal experience

        Seph:
        mobaygirl; I think question is "Do you have DD" or is there something else going on. Some people with DD do just get one lump that is tidy and pulls one finger in but I don't think this is the norm. Over time most people get a bit more distortion with DD but no pain.

        Attached is an image of my right hand as it is today. This is it at its worst. I am booked for NA in 3 weeks. So back to normal in 3 weeks and 20 minutes.

        Seph


        I think that is a very good question and one that I am guessing this second opinion will confirm. I have attached a photo of my hand and you can see the puckering and thickening of the skin at the base of my ring finger and the ring finger has just started to contract. I also have a cord that is just starting to develop, one that can be felt but not yet seen. I was given the DD diagnosis in late July.

        Attachment
        20121019_060532.jpg 20121019_060532.jpg (31x)

        Mime-Type: image/jpeg, 26 kB

          10/19/2012 12:30
          wach 

          Administrator

          10/19/2012 12:30
          wach 

          Administrator

          Re: Personal experience

          A little difficult to see but it might well be Dupuytren's. A 2nd opinion definitely makes sene. Only if you are sure about what you have you can consider treatment options.

          Wolfgang

          mobaygirl:
          Seph:
          mobaygirl; I think question is "Do you have DD" or is there something else going on. Some people with DD do just get one lump that is tidy and pulls one finger in but I don't think this is the norm. Over time most people get a bit more distortion with DD but no pain.

          Attached is an image of my right hand as it is today. This is it at its worst. I am booked for NA in 3 weeks. So back to normal in 3 weeks and 20 minutes.

          Seph


          I think that is a very good question and one that I am guessing this second opinion will confirm. I have attached a photo of my hand and you can see the puckering and thickening of the skin at the base of my ring finger and the ring finger has just started to contract. I also have a cord that is just starting to develop, one that can be felt but not yet seen. I was given the DD diagnosis in late July.

            10/19/2012 12:58
            mobaygirl 
            10/19/2012 12:58
            mobaygirl 
            Re: Personal experience

            This is kind of a brief timeline of my experience with this issue so far:

            18 months ago I injured my ring finger on my right hand bowling, I just brushed it off as a sprain. In May of this year I went to my PCP when I noticed the puckering at the base of my ring finger and felt a lump below and to the side of it. She sent me to the hand surgeon who palpated my hand and announced that I had Dupuytrens (7/24). He gave me a cortisone shot and told me to come back in a month. No information was given about this diagnosis. I returned 1 month later where he barely looked at my hand and decided I needed Physical Therapy. The pain started as a dull ache but has progressed to a sharp pain. My ring finger has started to bend in towards my palm. I found this site in my quest to know what Dupuytrens is. After I found this site I sent my Dr a couple of emails asking questions and I guess he took offense judging by the tone of his last email. Also in his last email he threw out the idea of tendonitis or "something else" causing my pain. I am shocked that he said that and did not encourage a return visit to him to explore what was causing the pain. Instead he said " I suggest you get an opinion from another hand surgeon". Needless to say I have since visited Health Grades and he didn't didn't score so well with me.

            At this point in time it is something that can be felt more than seen at this stage. I took his orders and I will have PT on the 22nd and have my second opinion on the 24th. It will be interesting to see what this evolves into.

            Edited 10/19/12 16:15

              10/19/2012 13:29
              marigail 
              10/19/2012 13:29
              marigail 
              Re: Personal experience

              Seph, my pinky is contacted about double of what your pictures show. I'm scheduled for NA in a few weeks. It has progressed VERY fast since the two xylaflex injections just over a year ago. Other fingers in both hands are affected, but they haven't progressed much at all.

              Mobaygirl, I do think you are in the beginning stages--that is what my pinky/ring finger looked like at the start of this. I think it will be very interesting to know what the second doctor says.

              I'm also one of those who have really investigated both sides of my family to see if anyone else suffered from DD. I've not found anyone, however I am from the "Eastern European Jewish" stock that seems to have this run in their genes, so who knows. I was also told it's more prevalent in males....I'm clearly not that.

              Interestingly, about 4 years before any onset I had a frozen shoulder. Gives one something to think about!!! Mine also started after a traumatic injury, however the progression is mostly on the opposite hand now.

              I've liked reading all the posts on this particular thread...so nice to know we're not alone.

                10/20/2012 01:46
                Seph 
                10/20/2012 01:46
                Seph 

                Re: Personal experience

                mobaygirl:
                This is kind of a brief timeline of my experience with this issue so far:

                18 months ago I injured my ring finger on my right hand bowling, I just brushed it off as a sprain. In May of this year I went to my PCP when I noticed the puckering at the base of my ring finger and felt a lump below and to the side of it. She sent me to the hand surgeon who palpated my hand and announced that I had Dupuytrens (7/24). He gave me a cortisone shot and told me to come back in a month. No information was given about this diagnosis. I returned 1 month later where he barely looked at my hand and decided I needed Physical Therapy. The pain started as a dull ache but has progressed to a sharp pain. My ring finger has started to bend in towards my palm. I found this site in my quest to know what Dupuytrens is. After I found this site I sent my Dr a couple of emails asking questions and I guess he took offense judging by the tone of his last email. Also in his last email he threw out the idea of tendonitis or "something else" causing my pain. I am shocked that he said that and did not encourage a return visit to him to explore what was causing the pain. Instead he said " I suggest you get an opinion from another hand surgeon". Needless to say I have since visited Health Grades and he didn't didn't score so well with me.

                At this point in time it is something that can be felt more than seen at this stage. I took his orders and I will have PT on the 22nd and have my second opinion on the 24th. It will be interesting to see what this evolves into.

                mobaygirl; It looks like it is probably DD but I wonder if it could be injury based. And is it possible that your doctor damaged a nerve when giving the cortisone shot? 2nd opinion should be interesting.

                Seph

                  10/20/2012 02:13
                  Seph 
                  10/20/2012 02:13
                  Seph 

                  Re: Personal experience

                  marigail:
                  Seph, my pinky is contacted about double of what your pictures show. I'm scheduled for NA in a few weeks. It has progressed VERY fast since the two xylaflex injections just over a year ago. Other fingers in both hands are affected, but they haven't progressed much at all.

                  Mobaygirl, I do think you are in the beginning stages--that is what my pinky/ring finger looked like at the start of this. I think it will be very interesting to know what the second doctor says.

                  I'm also one of those who have really investigated both sides of my family to see if anyone else suffered from DD. I've not found anyone, however I am from the "Eastern European Jewish" stock that seems to have this run in their genes, so who knows. I was also told it's more prevalent in males....I'm clearly not that.

                  Interestingly, about 4 years before any onset I had a frozen shoulder. Gives one something to think about!!! Mine also started after a traumatic injury, however the progression is mostly on the opposite hand now.

                  I've liked reading all the posts on this particular thread...so nice to know we're not alone.


                  marigail; Its strange how DD seems to have active phases where things happen fast then long periods where nothing happens. I have had NA done on my right hand and the same two fingers twice in the past 5 years. They stayed flat until early this year then away it went again.

                  Apparently the vikings raided into Eastern European 1200 or so years ago so the genetic link is possible.

                  All the reports say that DD is more prevalent in men but I know as many women as men with the condition.

                  Seph

                    10/20/2012 21:07
                    bentfinger 
                    10/20/2012 21:07
                    bentfinger 
                    Re: Personal experience

                    Hi: Well I just wanted to provide an update since I last updated. It has been 25 days since my injection. I have pain in the knuckle of the little finger due to not using for a couple years. I start PT Tuesday. I can move the finger straight and also bend it to touch my palm which is a very good thing. I am amazed at the quick healing of the wound. So my story, thus far, is successful as far as I am concerned. The Dr. stresses to keep the finger straight as the tendency is for it to contract. I was using hydrogen peroxide when I changed the dressing, however, the Dr. said not to as it kills the new cells. So I quit and the healing is great. I was going to include some pictures, however I was unable to figure it out. Maybe someone help with the upload.

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