Hello all.

I just wanted to give a update on the advice and actions I have taken. I am fortunate in that my symptoms have halted naturally (so far), after they got to the point where I have noticeable knots on each hand but only slight impairment on my right hand. They both hurt at times. This was first diagnosed when I was 34, in 2010. I am a pianist so this was quite concerning when it first appeared.

I was referred by my GP in Wellington to see Mr Marcus Bisson, who is a specialist in Dupytren’s. He was aware of the oncological treatment studies. His sage advice was that I should wait before seeking treatment, for the following reasons:

1) If it ain’t broke, don’t fix it. Dupytren's can be triggered by trauma. This includes surgery and possibly other treatments too. It is probable that my Dupytren's was triggered by a nasty broken wrist that happened about 18 months before my diagnosis.

2) The risk of cancer. While this may be slight, the studies haven’t really proven the risk level over the length of someone’s lifetime. Mr Bisson pointed out that most oncology treatment in general is done on people in their later years, and that often some other form of illness ends their life before any long term cancer could form and be detected. For someone who was in their mid 30s, that was worth considering.

My decision was to carefully monitor my symptoms, to avoid trauma (such as rock climbing and even applauding heavily at the theatre), and to seek therapy if the symptoms got worse.

Hope that helps. I guess we all make our own choices based on our own condition and the advice we get. Really glad that this forum exists to help circulate these ideas though. All the best. I know I will be back to this site if / when things change.

Warwick./

Hi all, i was very busy the whole month and did not report regularly as i planned to but may be there is no need to. About three weeks after the RT something provoked a strong burn effect on the palm, the whole area that was treated became red, itchy and very sensitive (it could be exposure to sun, or a chemical that have triggered this - most likely the sun, it was unusually hot and sunny here in December).

The whole rectangular was red and sore, even the top of my hand was slightly pigmented. It took me some toe to realize what was happening, and to identify the correct cream to moisturize it (Neutrogena regularly, and Aveeno from time to time). Still need to moisturize it regularly, and also to were a silk glove when driving and generally out in the sun but it is much less sensitive and and is not a problem.

Otherwise my hand functions much better, feels almost fully restored ; only when i try some really hard pull in the garden or similar i feel tightness and tension, as if something is going to break. So no gardening and heavy lifting for the time being http://www.dupuytren-online.info/Forum_E...smilies/sad.gif . The nodule itself has flattened a bit but has not disappeared and the cord is still visible.

I am going to see the specialist in early January . I decided not to see a doctor when the 'burn' started as the radiation therapists at the hospital warned me to be careful, not to expose the palm to the sun, and to use appropriate moisturizers but apparently i was not careful enough. Happy New year to all!

Edited 12/30/13 01:22

Thanks Gary. Indeed one needs to be careful with cosmetics and creams. I think that i used as well the wrong cream initially, one whcih contianed zinc oxide. It did not help and may have made it worse. It is difficult to read the small print on some of these jars and tubes ...so i got myself a magnifyng glass

GaryBall:

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Hi Kassie,

For the bst results after RT......Use the creams that have a high content of urea.

Good luck with the recovery

Hi Gazza , how time flies!

My radiotherapy on the node i had in my hand was successful, it disappeared. But about 2.5 years after the RT, a new a one appeared , just next to where the old one was. It was getting really bad, i and i was thinking about surgery, and started contacting specialists.

By pure chance i made what i thought was a discovery: Bio-Oil, here you can buy it in pharmacies and in supermarkets. Cheap...

I decided to try it the top on my hands to treat ageing symptoms, out of vanity :) I had one good rub a day, every morning, each hand rubbing the other.

About half a bottle of oil later, i started noticing changes. Ii was not sure at first but continued with the massage and the oiling. And gradually the tension disappeared, i was able to drive gripping wheel properly, and I can flatten my hand on the surface. I.e., all side effects and discomforts disappeared...the node itself became just a very small one, definitely much smaller that it was, almost unnoticeable.

I kept on doing this almost two years. Now i use it whenever I remember but at least once a week. And this keeps it at bay. I read later that actually it is one of the treatments already known, for me it was a personal discovery :) . For me it WORKED :) I am no longer even thinking about RT or surgery.

May be you can try it?

I have actually posted about this in the Other treatments , under a login name KayKay, there are a couple of other people confirming the effect. Search for herbal oil to find this thread. And good luck:)
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Hi Kassie, So..... it s nearly 5 years.....I hope your treatment has worked well for you in the long term....it would be be good to hear from you.........I am thinking of pulling the trigger for RT for my hands now I’m 53......things have moved on over the last year.....I will try to get a referral from my GP and treat in NZ......if not it’s back to sunny Hamburg.
All the best Gazza

Edited 06/21/18 02:31