| Lost password
11 users onlineYou are not loggend in.  Login
Recovery after Xiaflex
 1
 1
07/07/19 02:07
NYNW 
07/07/19 02:07
NYNW 
Recovery after Xiaflex

Hello, I'm a new member here. I had treatment with Xiaflex this week - the manipulation was Wednesday. My right ring finger was/is the one with the cord (small cord under the middle finger too, got a bit injected in that one too, but most was the ring finger cord). My hand is substantially bruised all over the place, and also a bit of bruising on the underside of my wrist a bit up the forearm. It's very painful to try to bend the finger. I suppose the good news is that I can put my palm flat on the table, but it's quite painful. I'm just wanting to know that this is all within the bounds of normal for 3 days post-procedure. My surgeon's office, I am realizing, did not prepare me well for what to expect.

I did get a night splint made, but it's already loose and the edges are very uncomfortable at the wrist and around my thumb.

Also - the MCP joint at that finger is really sore (this seems to have happened very recently) - and it was also very sore at the time of the manipulation - surgeon had to give me extra lidocaine on that side of the hand - twice! My pinky now hurts too, and never has before.

Any words of wisdom and experience would be appreciated.

Edited 07/07/19 02:10

07/07/19 02:48
BRIANB 
07/07/19 02:48
BRIANB 
Re: Recovery after Xiaflex

Did you consider going to an expert in N.A. prior to agreeing to the injections?
Was the splint made by a C.H.T.? Sorry to read of your discomfort. Wish I could be of some help,but I have never been treated with Xiaflex,but I am sure others on this forum have,an will offer advise..
Good Luck ..

07/07/19 02:57
NYNW 
07/07/19 02:57
NYNW 
Re: Recovery after Xiaflex

Yes, the splint was made by a CHT.

My surgeon felt I was a candidate for Xiaflex, that it would be the most effective given the condition of my finger/the cord. Onset of the disease is 6 months ago, approximately.

07/07/19 09:22
spanishbuddha 

Administrator

07/07/19 09:22
spanishbuddha 

Administrator

Re: Recovery after Xiaflex

Hi NYMW, yes it all sounds quite common. Many people have some discomfort for a few weeks, maybe 6-8 weeks after treatment with Xiaflex. There’s no normal as it all depends on how you react to the enzyme, how severe the contracture was, and how hard the manipulation was too. The manipulation can cause bruising and modest joint injury depending on the experience of the Dr. I would use ice to help, wear the splint at night, and gentle exercises to help with the recovery. But do see the Dr over lingering concerns after more than a couple of weeks.

07/08/19 19:23
rockinroller 
07/08/19 19:23
rockinroller 
Re: Recovery after Xiaflex

I am approx. 1 year following (2) Xiaflex injections/manipulations, within 2 months of each other. My little finger was over 85% contracted and the adjoining finger about 1/2 that (my little finger was so mangled with cords that the doc decided to do that separately, which was the latter of the two sessions). The first session resulted in some bruising of the palm after the manipulation, and some armpit pain with some discoloration. The 2nd injection however was extremely more impactive in terms of discoloration and armpit pain, with the end result being a basketball-sized "bruise" around the entire armpit area and arm. That lasted about a week before subsiding.

Honestly, if I knew the amount of pain and inconvenience plus side effects that the Xiaflex process produced, I probably would have thought twice about submitting to it. Plus Medicare only covered 80% of the "street value" for each vial, which apparently is/was around $4000 USD per, so $1600 and 1 year later--despite considerable improvement in the contracture--I am not sure I would do it again. I spent two years investigating every possible treatment option and saw no less than 5 ortho and hand surgeons. With the experience my father went through with two surgeries on his hands--neither of which eliminating the problem and really only creating a number of scars and scar tissue--I knew I didn't want to even try going down that route. A local NA expert examined my little finger issue and said he wouldn't touch it due to the extreme cording and the increased possibility of damaging a nerve or tendon in the process. Xiaflex seemed the best option, as the end result is as good as I could expect, I guess.

It's no wonder the actual (process) and cost is not often advertised!

07/11/19 13:43
NYNW 
07/11/19 13:43
NYNW 
Re: Recovery after Xiaflex

I am fortunate in that insurance covered the entire cost of the xiaflex. I'm seeing the surgeon next week (will be 2 weeks post-manipulation). My primary concern now is that it is extremely painful to try to flex the affected finger, which was not present at all pre-xiaflex. I'm worried about nerve/ligament/tendon damage.

07/17/19 08:48
NYNW 
07/17/19 08:48
NYNW 
Re: Recovery after Xiaflex

Update: something definitely wrong. MRI has been ordered. I am convinced that the injection and/or manipulation caused some tendon/ligament/nerve damage.

07/17/19 12:51
spanishbuddha 

Administrator

07/17/19 12:51
spanishbuddha 

Administrator

Re: Recovery after Xiaflex

NYNW:
Update: something definitely wrong. MRI has been ordered. I am convinced that the injection and/or manipulation caused some tendon/ligament/nerve damage.
Keep us informed. Unfortunately these are a possible side effects, normally minimised by the skill and experience of the surgeon, but he/she should have informed you and been on the look out during aftercare.

 1
 1
later--despite   considerable   post-manipulation   manipulations   discoloration   uncomfortable   substantially   eliminating   manipulation   Unfortunately   basketball-sized   experience   hands--neither   Xiaflex   inconvenience   post-procedure   Recovery   approximately   contracture--I   investigating