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skin cream
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11/02/2012 15:52
aryan 
11/02/2012 15:52
aryan 
skin cream

Hi

Has anyone found a good skin cream for post radiotherapy treatment? My treatment has been quite successful as to stopping any progression of nodules and indeed softening and reducing them to some extent.

My problem is the unpleasant feel of the treated skin, which feels like smooth plastic. I apply lots of creams all the time but I suspect the RT kills off the sweat glands and sebaceous glands, so that this feeling is inevitable and I'll just have to live with it. But I miss my sweaty palms!

Any ideas?

aryan

11/02/2012 18:25
spanishbuddha 

Administrator

11/02/2012 18:25
spanishbuddha 

Administrator

Re: skin cream

I use Gormel (high urea content) or Lotil cream.

Both are for dry skin, and effective, but this does not sound like your condition?

I do not have this 'plastic' skin after RT, just dry skin in cold weather.

11/03/2012 20:54
aryan 
11/03/2012 20:54
aryan 
Re: skin cream

Thanks for the tip. I'm happy to give anything a go

11/04/2012 03:46
flojo 
11/04/2012 03:46
flojo 
Re: skin cream

Is your dryness only in the palm or is it on the sides of your fingers and the back of your fingers, too?

11/04/2012 08:50
spanishbuddha 

Administrator

11/04/2012 08:50
spanishbuddha 

Administrator

Re: skin cream

Mine is palm side only, palm and fingers. It was explained to me that the radiation depth was limited by the use of a 'bolus'.

11/07/2012 21:11
aryan 
11/07/2012 21:11
aryan 
Re: skin cream

flojo:
Is your dryness only in the palm or is it on the sides of your fingers and the back of your fingers, too?
The dryness is only on the palms. My fingers are unaffected and the skin is normal. I suppose I'll get used to the weird contrast between the two skin surfaces but its strange to be really hot and sweaty after a run or gym session and to have really hot palms which are dry as a bone and very sweaty fingers!

Sometimes I wish I'd waited a bit to see if I had the signs of any contraction, before rushing into the RT option. As a potter I think I panicked a bit and just 'went for it' as the thought of curling fingers was a bit of a nightmare! But now I find I've stopped throwing (pots) on the wheel anyway (at least for the moment) as the dryness gets even worst!

Sorry if this is a bit of a moan and of course I'm hoping the skin may recover a bit in time but I think its quite an important thing to consider when going for RT.

11/07/2012 22:39
callie 
11/07/2012 22:39
callie 
Re: skin cream

Interesting comment. You said, "Sometimes I wish I'd waited a bit to see if I had the signs of any contraction, before rushing into the RT option

That is what I have been wrestling. Whether I would advise everyone who gets a nodule to have RT at $8,000 -13,000 a procedure. A great percentage of people never have contraction from their Dupuytren's. I had two dermal pits/nodules that have not progressed at all in 15 years and have actually almost gone away. If the costs were the same as in Germany, it would be a "no brainer", but at U.S. costs it becomes an interesting decision.

11/08/2012 08:17
Lanod 
11/08/2012 08:17
Lanod 
Re: skin cream

ARyan and Callie are correct in cautioning against rushing in too fast for RT threatment. It is always down to a personal decision where pros and cons all need to weighed up. I see it as a statistical issue. If you have early stage DD (Stage N) then according to latest Phase III clinical study study (this year) here are the statistictics:

Without RT: 1 in 3 chance of developing contracture within some 8 years
With RT: 1 in 30 chance of developing contracture within some 8 years

It is correct to say that some people, without treatment, might never develop contacture. It is also correct to say that if you wait for contracture then RT will be very much less effective.

So - it is a personal decision. For me it was a clear decision: I went for RT and I am delighted that I made that PERSONAL decision for myself.

11/08/2012 08:28
wach 

Administrator

11/08/2012 08:28
wach 

Administrator

Re: skin cream

Good point, callie! I believe everyone is struggling with this as the individual disease progression is not predictable. It's probably an individual decision for the most extent. Personally I wouldn't advise RT for someone who is 80 and developed a slowly growing nodule, neither would I advise it for someone who is 20. I myself had my first RT with 35 and that finger is still OK. I thought I could escape RT when I developed a new nodule 5 years later and that led into surgery which in turn triggered a lot of new nodules. Those I had irradiated are now dormant, those where I missed RT are causing trouble. But that's my personal experience. For someone else it might just be a nodule and that's it. In that case RT would be a waste of money and taking unneccessary risk. Hard to predict.

Wolfgang

callie:
...That is what I have been wrestling. Whether I would advise everyone who gets a nodule to have RT at $8,000 -13,000 a procedure. A great percentage of people never have contraction from their Dupuytren's. I had two dermal pits/nodules that have not progressed at all in 15 years and have actually almost gone away. If the costs were the same as in Germany, it would be a "no brainer", but at U.S. costs it becomes an interesting decision.

11/08/2012 13:56
callie 
11/08/2012 13:56
callie 
Re: skin cream

I decided to have RT because of the nature of this particular nodule that developed. It was completely different than previous nodules. It quickly developed and was almost clear in appearance like an opaque blister close to the surface. It was/is hard. Within a couple of months the cord was starting. No contracture, but definitely a cord was growing. I am finishing my first round of RT this week. No side effects so far. It will be interesting to see how this works because the nodule is very active. At the same time two nodules developed at base of the thumb. It was almost like I turned on a switch to start the activity in the Dupuytren's.

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