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Splints before contracture??
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10/15/2012 04:07
GaryBall 
10/15/2012 04:07
GaryBall 
Splints before contracture??

Hi all,

I ve read that many of you have recommended the use of splints after treatments. My dups is at an early stage with no contracture, although my hands are becoming progressively tighter. Neither hand is ready for RT or any other treatment.

So here is my question....would you advise someone in this position to wear night splints or gloves to keep fingers reasonably straight....any other suggestions would be welcomed.....

Many thanks

Gazza

10/15/2012 05:24
Seph 
10/15/2012 05:24
Seph 

Re: Splints before contracture??

Garry; Others may have a different view but I think splints would be a waste of effort. Your DD may sit dormant for years then fire up over a matter of weeks or months and in a different place to where it first started. Possibly even a different hand.

In my case the two fingers closest to the thumb are worst affected on my left hand but those two fingers show no signs of DD on my right hand. Right now the DD is active in both my hands at the same time, which is unusual for me, but this time it is in my thumbs and I have never had it there before.

Seph

10/15/2012 06:18
spanishbuddha 

Administrator

10/15/2012 06:18
spanishbuddha 

Administrator

Re: Splints before contracture??

I also don't know the answer to this. I've not hand surgery or NA or Xiaplex and started wearing a splint at night because one hand was getting tight. But I didn't like the short term stiffness it induces in the finger joints. This stiffness goes after 5-10 minutes in the morning. To allay the stiffness I then ensured the splint was not straight but had a curl for the fingers, but eventually conceded that that defeated the object of keeping the fingers straight overnight anyway, so have now stopped with the splint. YMMV so you could always try it but I'm not aware of any trials on people who have not had one of the treatments mentioned.

Edited 10/15/12 09:20

10/15/2012 06:20
LubaM. 
10/15/2012 06:20
LubaM. 
Re: Splints before contracture??

GaryBall:
Hi all,
I ve read that many of you have recommended the use of splints after treatments. My dups is at an early stage with no contracture, although my hands are becoming progressively tighter. Neither hand is ready for RT or any other treatment.
So here is my question....would you advise someone in this position to wear night splints or gloves to keep fingers reasonably straight....any other suggestions would be welcomed.....
Many thanks
Gazza
From what I have read over the years on this forum, I agree that splints are mostly recommended for after treatment such as NA or surgery. I don't think splinting would slow down the disease or prevent any progression. This is such a weird disease and it progresses so differently for everyone... even different from one hand to the other in the same person.

My only suggestion would be to watch closely what is happening with your hands. I wouldn't suggest splints, but if you have nodules it is not a bad idea and it wouldn't hurt to protect them with gloves when you are doing work with your hands that puts stress on the nodules. At the first sign of progression (i.e. nodules increasing in numbers or size, itching, burning, increased tightness) consider RT as it can stop the progression in the treated areas and possibly avoid contracture and treatments such as NA, Xiaflex or surgery in the future.

Edited 10/15/12 09:22

10/15/2012 06:44
wach 

Administrator

10/15/2012 06:44
wach 

Administrator

Re: Splints before contracture??

There is a theory by Albrecht Meinel that postulates (not proves) that the contracture is actually a freezing of the relaxed finger position. You can watch his presentation at the Miami conference on Youtube http://www.youtube.com/watch?v=kq4hr06tOtY&lr=1 (it addresses a medical audience). It is supposed that this freezing mostly happens at nicht where the finfers are at reast and typically in a curled position. According to this theory keeping the fingers straight at night will prevent further contracture.

There is no prrof for this theory. As others already noted the progression of Dupuytren's is fairly unpredictable and proving this theory might be difficult. But still, yes maybe a splint might prevent further progression. Is it worth using a night splint for decades on the assumption that it avoids further progression? I guess that's a personal decision.

Wolfgang

10/15/2012 11:28
Seph 
10/15/2012 11:28
Seph 

Re: Splints before contracture??

Wolfgang; Interesting video. I think I got it all until the leap to "night sprints will fix it".

When the condition gets advanced the growths can occur on the side of the fingers causing a twist. It is not all in a contraction toward that palm. The little finger on my right hand currently curves over the next finger (See attachment). I can feel the growth on the inside of the finger that causes it to twist.

Seph

Attachment
Seph RH 15Oct12.jpg Seph RH 15Oct12.jpg (15x)

Mime-Type: image/jpeg, 375 kB

10/15/2012 14:07
callie 
10/15/2012 14:07
callie 
Re: Splints before contracture??

I think prior splints would not be beneficial, but it could be tried. Why do you say you are not ready for RT? RT should be done before contracture. Contracture does not always occur so it would be difficult to know whether the splints worked, or not.

It is my understanding that the primary purpose of the splints after a procedure is to retrain the adjacent muscles, tendons and scar tissue to the "normal" position and not the contracted position.

10/16/2012 07:37
GaryBall 
10/16/2012 07:37
GaryBall 
Re: Splints before contracture??

Thanks for the responses.....I was particularly interested in the presentation that Wolfgang suggested looking at.......it certainly makes me think that it is worth wearing gloves or a splint in early stage N dups....nothing to loose.....and I am trying to buy time and do everything to keep progression at bay...

I am a long distance patient of Prof. seegenschmiedt and I have already had RT on my feet....a procedure that has so far been successful in halting progression, although it only 10 months since the treatment....

The Prof. Did nt want to do RT on my last visit in April for my hands as he felt they needed more evidence of progression...but I will get them zapped when the time is right...


So I think I will be getting night gloves or splints to add to my list of things for my hands.....I ve had some great advice and tips over the last year which include...

Baby your hands.....wear gloves and avoid impacting your hands.

Eat a balanced diet which includes berries and tomatoes.

Avoid alcohol.

Avoid glucosamine.

Gazza

10/16/2012 23:03
Maddie 
10/16/2012 23:03
Maddie 
Re: Splints before contracture??

I've posted earlier about my extremely positive experience with splinting, and it may be relevant here as well. (And I still owe Wolfgang an account of this experience and photos of my splint for the "Personal Experiences" section of the website... I haven't forgotten!)

Anyway, here is my splint story:

I had received RT on my right hand, which had been successful at stopping progression in all areas except for the PIP joint in my little finger. The problem might have been that I never really had a nodule in that area -- it seemed to go straight to a cord (Dr. Eaton said that happens sometimes). Since RT doesn't have the same level of effectiveness on cords, that might be why that finger continued to progress.

Anyway, by about 2 years after I noted the initial cordlike thickening in that finger, the PIP contracture had progressed to the point where I wanted to address it. Two different hand docs (including Dr. Denkler) had said that they didn’t think NA was safe for this contracture because of the location of the nerve. They recommended Xiaflex instead, but due to other health issues I am reluctant to go that route (i.e., injecting a foreign substance into my body.).

So on April 17, 2012 I sought Dr. Eaton’s opinion. At that time he measured the PIP contracture at 30 degrees. Unlike the other doctors, he said he thought I could do the NA procedure despite the location of the nerve. But he also said that I didn’t need to do NA this soon – that I could wait until the finger was in the 40 to 60 degree range --and that using a splint might buy me some time by slowing down progression of the contracture.

He gave me an Rx for a custom splint, which I had fabricated by a Certified Hand Therapist (CHT).
By the time I had the splint made (on May 2, 2012, about two weeks after I saw Dr. Eaton) my contracture had increased by 5 degrees to 35 degrees, as measured by the CHT. She was able to make the splint on the spot out of a moldable plastic material. I wear it overnight.

My use of the splint – at least so far – has been successful beyond my wildest dreams. I quickly realized that my contracture was actually diminishing. On August 1, 2012, about three months after I began wearing the splint, I returned to the CHT to get a new splint made because the contracture had diminished so much that the one I had no longer fit. She measured the contracture at 15 degrees – a 20 degree reduction over three months!

She made me a new splint, which I have continued to wear. I had kind of hoped that the contracture would go away completely, but that hasn’t happened. Instead, it has continued to hover in the 15 – 20 degree range (less when I first wake up, and increasing a bit throughout the day). But this amount of contracture doesn’t really bother me – if doesn’t really affect the use of my hands for anything that I normally do, and it isn’t even very visible unless you’re looking for it. So as long as it continues at this level, I don’t feel the need to get any treatment.

Another great bonus from the splint is that I was getting periodic cramping in my right hand from the contracture, especially at night. Sometimes I could even feel the pain all the way up my arm. The splint stopped this from happening.

So what are the downsides? I find the splint to be very comfortable and no longer even notice that I’m wearing it when I go to bed. It is true that my finger is stiff when I wake up and painful to flex, but if I work it back and forth a few times, it loosens up and the pain goes away. So that is also something I barely notice at this point. So the only real downside I can see is that I look slightly less glamorous at bedtime! But this is a small price to pay.

Next steps: At this point I am getting a lot of tightening in my left hand, with about 20 degree contractures in a couple of the MCP joints. (NOTE: I had successful RT on this hand, which reduced the nodules. But I had the RT a little too late, so cords had already formed, and they have continued to gradually tighten. I’ve found RT to be very effective at stopping the progression of nodules, and even reducing their size significantly, but unlike some people, I have never had RT loosen any existing cords.) Anyway, I am now looking into the possibility of getting a custom splint for this hand as well, in the hope that it might loosen these cords up a bit as well. I’ll keep you posted on my results.

In sum: I don’t know if my splint experience was so successful because I had already had RT on this hand or not (maybe the RT made the Dups less aggressive?) But I don’t really see much reason NOT to try a splint. If it works it would be a very non-invasive and safe solution.

If you try it, please report back to us!

Maddie

10/17/2012 03:37
LubaM. 
10/17/2012 03:37
LubaM. 
Re: Splints before contracture??

Maddie,
I just answered you in the other thread re: my experience with splinting. Thanks for the detailed information about your experience with splinting. I too had RT for nodules in my left hand that has stopped the progression of the disease and has softened and diminished the number of nodules in the left hand. New nodules have developed in that hand, but they are definitely outside of the area treated with RT, so I am happy about that. The left hand pinkie is starting to bend at the PIP joint, I can certainly look into the possibility to using a splint and seeing if it stops it to progressing so quickly like my right hand pinkie did. It is worth a try.

The pinkie PIP joint that I had NA twice on, is my right hand. I didn't have RT on it, because it was way before RT became more widely used and talked about on this forum.

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v=kq4hr06tOtY&lr=1   contraction   fingers   effectiveness   presentation   straight   position   contracture   treatments   progressively   successful   nodules   splinting   because   experience   progression   Splints   recommended   significantly   seegenschmiedt