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09/30/2014 01:44
kate 
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09/30/2014 01:44
kate
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Steroid injections
I have seen a very experienced Hand surgeon who said he disagreed with RT because he saw cancer developed on the hand after RT for a benign condition although it was not DD. After that I was not sure and started looking for another treatments for early stages of DD. I have read on this web.site that a study for the treatment with steroid injections found that 50% of patients had their DD reactivated after 1 to 3 years of treatment. Does it mean that other 50% were cured?
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09/30/2014 06:42
spanishbuddha  Administrator
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09/30/2014 06:42
spanishbuddha Administrator
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Re: Steroid injections
It's loose or non-specific statements that pose a problem in understanding science and risks.
Was the RT dose and length for the benign growth the same as that used for DD? We publish a risk calculation or estimate on this site.
There is no cure for DD.
Sorry I can't help further.
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09/30/2014 06:56
Seph 
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09/30/2014 06:56
Seph
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Re: Steroid injections
Kate; There is no cure for DD. This is a disease that is non life threatening and simply needs to be managed as best you can. Treatment is about slowing the progression of the disease. With NA the disease comes back more quickly and often in the same place but you can repeat the procedure as many times as you like.
Surgery seems to delay the disease in the site of the surgery for longer but doesn't stop it popping up in an adjacent part of the hand. All the people that I know who have gone the surgery route have had multiple surgeries and it becomes more problematic each time.
RT seem to be effective in slowing the progression but it also is not a cure.
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09/30/2014 07:14
kate
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09/30/2014 07:14
kate
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Re: Steroid injections
Thanks Spanishbudda and Seph. I agree with both of you
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10/01/2014 09:49
newman
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10/01/2014 09:49
newman
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Re: Steroid injections
kate:
I have seen a very experienced Hand surgeon who said he disagreed with RT because he saw cancer developed on the hand after RT for a benign condition although it was not DD. After that I was not sure and started looking for another treatments for early stages of DD. I have read on this web.site that a study for the treatment with steroid injections found that 50% of patients had their DD reactivated after 1 to 3 years of treatment. Does it mean that other 50% were cured?
Hi kate firstly I have been on the forum since 2007 and this is the first post I have seen where Cancer of the hand has been raised. I wonder if the Surgeon told you the dose rate of the RT. Just a point Surgeons and Oncologists do not have much interaction within the other specialists field and this a problem. I find it very unusual that radiotherapy was used for a benign (unknown)condition of the hand. Coming from Australia I am aware of cancer caused by the sun and this accounts for up to 90% of malignant tumours (skin cancer) in the hand . ( melanoma about 3%.) The others % nos are rare conditions.
I've had 15 odd surgeries including 4 grafts. The surgeons had no idea of treating with low dose radiotherapy. I had one medico look at my hands and thought that the skin grafts because of the colour change was the result of Rt, which I had in Germany in 2007. These days the patients are more up to date with the latest trends because of places like this forum. Age is a factor to consider with RT. other than that I would not hesitate. Talk to an Oncologist about it. I have no idea about the use of steroids .Regards.
Edited 10/01/14 13:15
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10/01/2014 10:52
kate
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10/01/2014 10:52
kate
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Re: Steroid injections
Hi Newman. I too was surprised when the surgeon told me about a cancer developed after RT. I have asked him if the treatment was for DD and he said "no'.Today I have been told by a radiologist to monitor a progression of nodules and cords as he thought it was too early to do RT now and in his opinion the risk of complication was low. I wonder if there is a special method for measuring nodules, I tried to do it with the usual ruler but it was difficult.
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10/01/2014 15:21
spanishbuddha Administrator
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10/01/2014 15:21
spanishbuddha Administrator
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Re: Steroid injections
kate:
Hi Newman. I too was surprised when the surgeon told me about a cancer developed after RT. I have asked him if the treatment was for DD and he said "no'.Today I have been told by a radiologist to monitor a progression of nodules and cords as he thought it was too early to do RT now and in his opinion the risk of complication was low. I wonder if there is a special method for measuring nodules, I tried to do it with the usual ruler but it was difficult.
One quite easy way to monitor progression of nodules is with photo's. Possibly monthly. To enhance this, just draw an outline with felt pen around the nodules, and take the photo's. I wouldn't wouldn't worry too much about month to month differences, which might just be your own inaccuracy with the pen or other irregular/cyclical changes, but over several months a progression would be noticeable.
ProfS takes photos with pen markings, and I found this useful, but the comparison I made was two years later!
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10/01/2014 20:33
kate
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10/01/2014 20:33
kate
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Re: Steroid injections
Thank you, spanishbuddda. It is very good advice, I will try to use a pen marking
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10/01/2014 21:59
BRIANB 
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10/01/2014 21:59
BRIANB
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Re: Steroid injections
Steroid injections weeks prior to NA...softened and shrunk nodules ...
5 years and all is still very good ... still wear hand braces almost every night ...
Guess I have been lucky !:
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